Post of Beth's question & Sally's answer.

[Guest guest]

HI BETH, MY ADVISE......TRY LDN AGAIN, WITHOUT THE STEROIDS.

YOU DON'T ALWAYS FEEL CHANGES, AT FIRST.....YOU HAVE TO GIVE IT

AT LEAST 2 MONTHS AND DR. BAHARI SAYS 3 MONTHS.

STEROIDS HAVE SIDE EFFECTS ALL THEIR OWN AND MAY HAVE

SHUT OUT THE BENEFITS OF THE LDN?

REGARDS

SALLY

----- Original Message -----

From: Beth Ravenelle

salpal@...

Sent: Sunday, June 29, 2003 1:37 PM

Subject: Re: LDN and Spinal Cord Lesions

Sally,

How long did it take you to feel improvement? I was on it for two

weeks along with being on steroids and was getting considerably

worse.

Thanks for answering.

Beth

>From: " sally chrisman "

> " Beth Ravenelle "

>Subject: Re: LDN and Spinal Cord Lesions

>Date: Sat, 28 Jun 2003 23:06:35 -0500

>

> HI BETH,

> HOW LONG WERE YOU ON LDN? YOU SHOULD HAVE EITHER GIVEN IT LONGER,

OR GONE UP TO 4.5MG.

> I CAN'T TELL YOU HOW MANY TIMES I WANTED TO GIVE UP, BUT, WITH THE

ENCOURAGEMENT OF OTHERS

> ON LDN, I HUNG IN THERE AND AM I GLAD.

> I WILL NEVER GO OFF LDN....I LOVE IT. WHY DON'T YOU TRY THE 4.6MG

FOR 2 OR 3 MONTHS AND SEE WHAT

> HAPPENS. NOVANTRONE IS A RADICAL ALTERNATIVE TO LDN. IT CAN DO

MORE HARM THAN HELP, I THINK.

> WHATEVER YOU DECIDE, I WISH YOU WELL.

> SALLY

>

> ----- Original Message -----

> From: Beth Ravenelle

> salpal@... ; low dose naltrexone

> Sent: Saturday, June 28, 2003 9:53 PM

> Subject: LDN and Spinal Cord Lesions

>

>

> Sally,

>

> I tried the 3mg dose and it did absolutely nothing. I wonder if it

is due the lesions which have accumulated in the spinal cord and

atrophy of the cord. MS will celebrate ten years in this body in

October. I lost the ability to walk for any distance in May and am

going Monday for an ultrasound to see if I can tolerate Novantrone.

The neurologist says it is my last hope. Anybody have any

suggestions?

>

> Thanks,

>

> Beth

>

>

>

>

>

> >From: " Sally "

> >low dose naltrexone

> >Subject: [low dose naltrexone] Re: Great experience with LDN

> >Date: Sat, 28 Jun 2003 18:26:03 -0000

> >

> >WELCOME GIRLFRIEND!

> >SO GLAD YOU SHARED YOUR SUCCESS STORY WITH THE OTHERS!

> >I WILL DEFFINATELY BE TRYING TO FOLLOW IN YOUR FOOTSTEPS

(LITERALLY)

> >LOL

> >YOUR PAL, SAL

> >

> >

> >

> > > Hi Everyone

> > > I am so glad to see so many people that have discovered LDN,

It is

> >a

> > > god sent for all of us with MS. I have been on 4.5mg since dec

of

> > > last year and everyday there is improvement. All numbness is

gone,

> > > my balance is so much improved and lately I can even walk

normally

> > > for the first time in years. I used to have constant movement

in

> >my

> > > head and I called them shock waves that would go through my

head

> > > when i bent my head down and that is all gone to what a relief

> >that

> > > was my head is clear now. I didn't experience any stiffness at

> >all

> > > but we are individul so our experiences are different. I have

had

> >MS

> > > now for 34 yrs maybe that is why the 4.5mg worked for me with

all

> > > the damage I have on my brain I have lesions in both

hemispheres,

> > > and the cerubellm. thought I would tell my story so everybody

> >could

> > > benefit from my experience.

> > >

> > > Love and Peace to all in the group

> > > Kathy

> >

>

>

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