Guest guest Posted June 12, 2003 Report Share Posted June 12, 2003 WHAT A WONDERFUL TESTIMONIAL FOR LDN. THANK YOU SO MUCH FOR LETTING US KNOW HOW IT HAS HELPED YOUR HUSBAND, FAMILY AND FRIENDS. I HAVE ONLY BEEN ON LDN FOR 2 MONTHS AND HAVE MY BALANCE BACK BUT NOT MUCH ELSE YET. BUT YOU HAVE GIVEN ME THE INCENTIVE TO STICK WITH IT TO THE END.......THANK YOU FOR THAT. I KNOW WE ALL GET DISCOURAGED AT TIMES, AND NEED A LITTLE PEP TALK. WELL YOU HAVE GIVEN IT HERE TONIGHT FOR ALL OF US. GOOD LUCK TO YOU AND YOURS IN THE FUTURE. AND PLEASE KEEP IN TOUCH...OFTEN. ~SALLY > Hi People, > > My husand has MS.I feel it is my duty to post my husbands > improvements since starting LDN. From Jan 2002 to Sep 2002 my husband > obviously deteriorated on a month to month basis. He was dx sept 98, > had symptoms from shortly after I first met him in 1991, started with > numb feet (1991), numb up to knees (1996), big relapse 1998 (numb > upto hips) and slowly weakness progressed until dec 2001 (needed a > cane), until aug 2002 really, really needed a cane for even all > indoor needs. > He started LDN 4.5mg from Dr Bihari Sept 2002, Irmats pharmay NYC, > and since then progression has not only stopped but pulled back. No > more erectile dysfunction, bladder much improved, balance much > improved, facial acne gone, he never had serious fatique, progression > stopped and now walks noramlly with a cane. He was on Avonex for 3 > years or so. Neuro wanted him to stay on Avonex or switch to > copaxone. To make a long story short, he did neither. He switched to > LDN and we have our lives back. The rapid progression has stopped. He > can walk normally with a cane for about 20 mins now and generally > feels great. We work out twice a week at the YMCA. > Also, my uncle with Parkinsons started LDN Sept 2002 and has pulled > back and still in remission, my Mom with breast cancer in remission > started LDN Sept 2002 is still in remission, my cousin with > fibromalgia started feb 2003 and is practically symptom free and a > dear friend with MS started march 2003 has noticed significant > improvement. > This mail is purely to encourage anybody or any spouse or any friend > of anybody with an illness that Dr Bihari claims to help, that he is > not a phoney. He is remarkable. I have met him and in my opinion > because of the vast difference he has made to so much of my immediate > family and thousands of others he deserves a nobel prize. I must say > here that I would never have been convinced of him but for the > guidance and encouragement received from Mr Goodshape's site. Thank > you Mr Goodshape! > Best Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2003 Report Share Posted June 12, 2003 I just started LDN last Friday and am seeing a little happening but need the encouragement that you gave me. thank you so much for your letter. God Bless You, Marie ----- Original Message ----- From: " mboylebradley " <mboylebradley@...> <low dose naltrexone > Sent: Thursday, June 12, 2003 12:40 AM Subject: [low dose naltrexone] LDN Testimony > Hi People, > > My husand has MS.I feel it is my duty to post my husbands > improvements since starting LDN. From Jan 2002 to Sep 2002 my husband > obviously deteriorated on a month to month basis. He was dx sept 98, > had symptoms from shortly after I first met him in 1991, started with > numb feet (1991), numb up to knees (1996), big relapse 1998 (numb > upto hips) and slowly weakness progressed until dec 2001 (needed a > cane), until aug 2002 really, really needed a cane for even all > indoor needs. > He started LDN 4.5mg from Dr Bihari Sept 2002, Irmats pharmay NYC, > and since then progression has not only stopped but pulled back. No > more erectile dysfunction, bladder much improved, balance much > improved, facial acne gone, he never had serious fatique, progression > stopped and now walks noramlly with a cane. He was on Avonex for 3 > years or so. Neuro wanted him to stay on Avonex or switch to > copaxone. To make a long story short, he did neither. He switched to > LDN and we have our lives back. The rapid progression has stopped. He > can walk normally with a cane for about 20 mins now and generally > feels great. We work out twice a week at the YMCA. > Also, my uncle with Parkinsons started LDN Sept 2002 and has pulled > back and still in remission, my Mom with breast cancer in remission > started LDN Sept 2002 is still in remission, my cousin with > fibromalgia started feb 2003 and is practically symptom free and a > dear friend with MS started march 2003 has noticed significant > improvement. > This mail is purely to encourage anybody or any spouse or any friend > of anybody with an illness that Dr Bihari claims to help, that he is > not a phoney. He is remarkable. I have met him and in my opinion > because of the vast difference he has made to so much of my immediate > family and thousands of others he deserves a nobel prize. I must say > here that I would never have been convinced of him but for the > guidance and encouragement received from Mr Goodshape's site. Thank > you Mr Goodshape! > Best > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2003 Report Share Posted June 14, 2003 Hi Massimo, I went to that heathboard.com and posted a message about the LDN. Interesting site. I feel as you do, compelled to share with others what was shared with me. I am so thankful to have come in contact with someone that told me about this remarkable drug. This is the message that I posted at healthboards.com today. Hi, New here and have been reading some of the older posts on this board. Came across a post from back in January of this year by Batman777. He posted some info about something called Low Dose Naltrexone. I am here to tell all of you that the information he posted is certainly not quackary. I have been using this treatment protocol for the last year and am very convinced that it is exactly what it says it is. I am no expert at explaining how it works but somehow it works with the body causing it to create endorphins which in turn help regulate the bodys immune system back to a normal state. No scientific explanation there but I am convinced that it is halting the progression of my MS. I have been in contact with several people that have been using it over the course of a few years. I think that when I post these comments I can only imagine them wondering why I am so adament about all this. Well I feel so thankful for the information that several have shared with me that I feel compelled to share it myself. This is not an easy thing to do, you must first find a doctor who will prescribe it for you. Most neuros will not prescribe anything " out of the box " so to speak. Then you must get a compounder to compound this drug. There are several out there doing just that for thousands of us MSer's. Do a search for Low Dose Naltrexone and you will find the website. Not sure I am supposed to post it but here it is low dose naltrexone.org There is also a chat associated with the site now and you will find all the info that you need to get started on this regime. LDN taken at such a low dose of 4.5 mg is totally harmless. FDA approved at a much higher dose for over 20 years. Therein is the rub. No drug company is gonna spend the millions it takes to clinically test it for MS in our lifetime with no payback in the form of a patent. We are all on our own here unfortunately. Good luck and God bless. Hope that someone sees it and gets out of it just the same thing I did a year ago. So glad that your sister is doing so well. Give her our best. Hey tell her to come and join us sometime. Joyce. >From: Max Spotlight_ldn CC: >low dose naltrexone Subject: [low dose naltrexone] LDN >Testimony Date: Fri, 13 Jun 2003 19:26:26 +0100 (BST) > > >Hi, > >I have been away for a while. I didn’t post any message lately, however I >have been reading your testimonials at least twice a day because I needed >to know I was right. I used to post here using a different nick too. I >preferred changing it when starting writing about LDN in an Italian MS >forum. Needless to say how difficult and discouraging it can be. Outside >here, people are not always willing to accept new things. Additionally, >they don’t like anyone raising doubts the cure they’re following might not >be working, no matter how badly they’re suffering trough. I will be >extremely pleased if just one person among these will eventually find >benefit from switching to LDN. As far as I know, In Italy my sister is >still the only one under Naltrexone. This is briefly her story with MS and >LDN: She had 2 optic neuritis almost regularly in 1999 and 2001. She had >been treated with steroids and she fully recovered from these attacks. No >long time treatment was undertaken at the time. In March 2003 she had her >worst relapse. She accused numbness and tingling in arms and stomach, lost >of touch feeling at her fingertips, difficulty with bladder control, >fatigue, pain and electric shocks on her back. MRs showed several lesions >at her cervical and 1 at her spinal cord, confirming the RR MS diagnosis. >Treated with steroids during the attach she has been dismissed and waiting >to start either Interferon or an experimental drug on a medical trial. Was >during this time that we came across LDN. I still remember the first >message about LDN I ever encountered in an health board by someone called >“batman777” that I believe it’s still online… > >http://www.healthboards.com/ubb/Forum84/HTML/000415.html > >From there, I reached low dose naltrexone website and then joined this >amazing group of people you are. You’d agree with me, we have to keep >writing to others about our testimonials no matter if we are repeating our >self. It is so important and encouraging for anyone considering starting >LDN. At first, I had from someone of you guys, the name of doctor Lawrence >in UK (I am still in contact with him). He really encouraged us to go ahead >with LDN and he was also about to supply us with the LDN directly from UK >to Italy. In the meantime we successfully found a doctor in Italy that >firstly showed interest for this therapy. I am expecting him to start soon >prescribing Naltrexone to other of his patients, especially considering my >sisters’ progresses since then using LDN. Today, 40th day with LDN, she is >just complaining minor electric shocks at her neck once every other day >that is also attenuating (This might be a sign that she didn’t quite get >used to the current dosage of 3.3 mg but we are confident it will be just >question of time). All her other symptoms are gone! Tomorrow, she said, >she’ll go back again to the gym. Other than an intention to encourage >anyone that is thinking about starting LDN but is still hesitant, giving >this testimonial was my commitment to all of you. I know that all you want >from this forum is to hear you helped someone else…well, you certainly did >it with us. Perhaps, someone of you can also help me to let batman777 know >that, in the end, someone heard him during his bloody fight against >skepticisms in the Health Board. He probably doesn’t know. If you know him, >could you please tell him that, thanks to him, my sister is today feeling >extremely optimistic for her future and therefore truly happy for any >single moment she is now enjoying in good health? > >PS: “maxbtm” is a combination of “max” and “batman”. I wish I could do >something as much as he did for me. > > > > > > > > > >--------- Quote Link to comment Share on other sites More sharing options...
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