Guest guest Posted June 12, 2003 Report Share Posted June 12, 2003 Hello board! I am 's daughter. I've been lurking here for a week or so and am now posting. I am still learning the format for this board so bear with me! As for histamine treatment..... This is not the same " histamine " that you take Benadryl to combat. I have been on Prokarin (transdermal histamine patch) for 3.5 years with amazing improvements in symptoms. Day 2 I was taking hot showers, something MS had taken away from me. Now I don't have to hibernate in the summers in Atlanta (Hotlanta for a reason!!) as I can tolerate the heat. Also, before Prokarin I was crippled with fatigue - I was 24 years old and could barely make it through the day at work. I felt like I was 90! That too improved with Prokarin and allowed me to start becoming more normal. Could make it through the day and even have energy left over. I was still having attacks though... .....until LDN. My mom has told you my story, so I won't bore you repeating the details except to say that I have never really received any symptom relief from LDN, per se. If I didn't have RRMS it probably would be a bit more difficult to determine if it is working. For me, no attacks in 3 years when I was having them every 2 months tells me it is working. For those without " attacks " it will be more gradual and subtle, and will take more time to know. If you don't get worse, it is working. If you get " better " , well that is a bonus. I am so excited about this board and that the word about LDN is slowly but surely getting out there. Quote Link to comment Share on other sites More sharing options...
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