Guest guest Posted July 14, 2003 Report Share Posted July 14, 2003 Oh boy ....I sure hate to hear you say that your hopes are dashed. Maybe you could call Dr. Bihari and ask what could be done. Not sure but is there no hope that the LDN could possibly help to the point of you not needing the morphine? I am ever the optimist. Don't give up just yet k? Joyce. From: <iodine@...> LDN <low dose naltrexone > Subject: [low dose naltrexone] Re: LDN and Morphine Date: Sun, 13 Jul 2003 13:01:26 -0800 Thank you for your quick reply. Pain is one of my worst MS symptoms. I've tried every medication non narcotic and narcotic to manage this crippling pain without any success. My neurologist tried To persuade me for quite some time to try the Morphine. I kept saying no because I feared becoming a quad addict. But nothing we tried even put it a dent in dulling my pain. It finally reached a point where I had a butcher knife in my hand and was prepared to cut off my own legs as I was dialing my neurologist. that was when I finally gave in and tried the Morphine. That was the first time since 1998 that I was nearly pain free. I can't even imagine giving this up and going back to living with that unrelenting and severe pain again. I was so hopeful that this ldn would be just what I needed to keep from becoming a complete Quad. Now my hopes are dashed. I do thank you for this information. From: " Sally " <salpal@...> Date: Sun, 13 Jul 2003 03:57:59 -0000 " " <iodine@...> Subject: Re: LDN and Morphine Hi , Welcome! You are right, you are not supposed to take LDN with opiads....but not because it will harm you, but because the ldn blocks the morphine from doing it's job. Talk to your Dr about taking a non-opiad pain killer and take ldn. It has been known to help with pain as well....according to some people here. Let us know what you decide and how you are doing. My prayers and lots of love, Sally > > When my doctor looked up Naltrexone in the PDR (Physician's > Desk > > Reference) book he too found that Naltrexone was in a > controlled > > substance category and dismissed the idea at first. Because > the PDR > > does not have a thing in it about low dose Naltrexone and the > usage > > of it for other diseases. > > > > It only states that it should be used for drug addiction > withdrawal, > > mainly heroine. It must work like Narcon used to for > withdrawal > > symptoms. > > > > This is why we print out the 14 pages and highlight what > referes to > > our particuliar disease be it MS, Lupus, fibromyalgia, certain > > cancers, Parkinson's and other mentioned diseases. > > > > General Practioner's (GP's) are more open to the idea after > they read > > and study the information we provide for them. (One shoved all > the > > papers back at me.) Please be persistent if you want to try Low > Dose > > Naltrexone. Be sure you are not on any Narcotics! > > > > Your doctor may even want to call Dr. Bernard Bihari or another > > physician who is familiar with the protocal of this drug. > > > > For fibromyalgic people most doctor's and the patient are near > the > > end of the treatments (or at the end of the rope) looking for help > > for us. That persisent nagging over-all or total body pain is > sooo > > hard to treat. Eventually nothing works as years with this > syndrome > > persists. > > > > That is where my doctor and I was at when we looked into > LDN. Thank > > goodness he gave me a choice...LDN or Guiafenesin. He > found that the > > pain increased with the Guia treatment and people were not > willing to > > stay on it due to increased pain and all of the products that a > > person can't use while on it. > > > > People with fibro pain want good relief and as soon as > possible. > > Some people are so down from chronic pain that they wish for > death as > > an escape. Which leads to depression. I know, I have been > through > > that. > > > > So don't let your doctor discourage you by saying: We can't > > prescribe that, because doctors can legally prescribe LDN in > small > > doses. The drug is approved in large doses. The drug itself is > FDA > > approved. The problem is this: No pharacedical company is > making > > the capsule in fast-acting small doses. That is why we need a > > compounding pharmacist to crush the drug into smaller > dosages. > > > > I am saying this to help those who are new here or wanted to > know why > > the drug isn't in the PDR. Hope this helps some of you that are > > confused or wondering why. _________________________________________________________________ STOP MORE SPAM with the new MSN 8 and get 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2003 Report Share Posted July 14, 2003 I'll be checking into it further for sure. From: " wkendz 32 " <wkendz32@...> Date: Sun, 13 Jul 2003 18:39:59 -0500 iodine@... Cc: low dose naltrexone Subject: Re: [low dose naltrexone] Re: LDN and Morphine Oh boy ....I sure hate to hear you say that your hopes are dashed. Maybe you could call Dr. Bihari and ask what could be done. Not sure but is there no hope that the LDN could possibly help to the point of you not needing the morphine? I am ever the optimist. Don't give up just yet k? Joyce. From: <iodine@...> LDN <low dose naltrexone > Subject: [low dose naltrexone] Re: LDN and Morphine Date: Sun, 13 Jul 2003 13:01:26 -0800 Thank you for your quick reply. Pain is one of my worst MS symptoms. I've tried every medication non narcotic and narcotic to manage this crippling pain without any success. My neurologist tried To persuade me for quite some time to try the Morphine. I kept saying no because I feared becoming a quad addict. But nothing we tried even put it a dent in dulling my pain. It finally reached a point where I had a butcher knife in my hand and was prepared to cut off my own legs as I was dialing my neurologist. that was when I finally gave in and tried the Morphine. That was the first time since 1998 that I was nearly pain free. I can't even imagine giving this up and going back to living with that unrelenting and severe pain again. I was so hopeful that this ldn would be just what I needed to keep from becoming a complete Quad. Now my hopes are dashed. I do thank you for this information. From: " Sally " <salpal@...> Date: Sun, 13 Jul 2003 03:57:59 -0000 " " <iodine@...> Subject: Re: LDN and Morphine Hi , Welcome! You are right, you are not supposed to take LDN with opiads....but not because it will harm you, but because the ldn blocks the morphine from doing it's job. Talk to your Dr about taking a non-opiad pain killer and take ldn. It has been known to help with pain as well....according to some people here. Let us know what you decide and how you are doing. My prayers and lots of love, Sally > > When my doctor looked up Naltrexone in the PDR (Physician's > Desk > > Reference) book he too found that Naltrexone was in a > controlled > > substance category and dismissed the idea at first. Because > the PDR > > does not have a thing in it about low dose Naltrexone and the > usage > > of it for other diseases. > > > > It only states that it should be used for drug addiction > withdrawal, > > mainly heroine. It must work like Narcon used to for > withdrawal > > symptoms. > > > > This is why we print out the 14 pages and highlight what > referes to > > our particuliar disease be it MS, Lupus, fibromyalgia, certain > > cancers, Parkinson's and other mentioned diseases. > > > > General Practioner's (GP's) are more open to the idea after > they read > > and study the information we provide for them. (One shoved all > the > > papers back at me.) Please be persistent if you want to try Low > Dose > > Naltrexone. Be sure you are not on any Narcotics! > > > > Your doctor may even want to call Dr. Bernard Bihari or another > > physician who is familiar with the protocal of this drug. > > > > For fibromyalgic people most doctor's and the patient are near > the > > end of the treatments (or at the end of the rope) looking for help > > for us. That persisent nagging over-all or total body pain is > sooo > > hard to treat. Eventually nothing works as years with this > syndrome > > persists. > > > > That is where my doctor and I was at when we looked into > LDN. Thank > > goodness he gave me a choice...LDN or Guiafenesin. He > found that the > > pain increased with the Guia treatment and people were not > willing to > > stay on it due to increased pain and all of the products that a > > person can't use while on it. > > > > People with fibro pain want good relief and as soon as > possible. > > Some people are so down from chronic pain that they wish for > death as > > an escape. Which leads to depression. I know, I have been > through > > that. > > > > So don't let your doctor discourage you by saying: We can't > > prescribe that, because doctors can legally prescribe LDN in > small > > doses. The drug is approved in large doses. The drug itself is > FDA > > approved. The problem is this: No pharacedical company is > making > > the capsule in fast-acting small doses. That is why we need a > > compounding pharmacist to crush the drug into smaller > dosages. > > > > I am saying this to help those who are new here or wanted to > know why > > the drug isn't in the PDR. Hope this helps some of you that are > > confused or wondering why. _________________________________________________________________ STOP MORE SPAM with the new MSN 8 and get 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2003 Report Share Posted July 15, 2003 Yes I have. I have tried everything available and combinations thereof. Believe me the decision to use Morphine was my very last resort. My only side effect is constipation. It has taken me quite some time to figure out fiber and laxative combinations to remain regular. So increasing the dosage is really out of the question. From: <larry@...> Organization: The Compounder Reply-<larry@...> Date: Mon, 14 Jul 2003 14:23:38 -0500 " " <iodine@...> Subject: Re: [low dose naltrexone] Re: LDN and Morphine Naltrexone is a narcotic antagonist - meaning that it counteracts some of the effects of the narcotic. One of the effects that is impaired is the pain relief. You might fond that you need to use more to get the same pain relief - yet the other side effects may increase to unacceptable levels. Have you tried other non-narcotic pain relief products? 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If you have received this e-mail in error, please contact the sender of this message. ----- Original Message ----- From: <mailto:iodine@...> LDN <mailto:low dose naltrexone > Sent: Monday, July 14, 2003 3:03 PM Subject: Re: [low dose naltrexone] Re: LDN and Morphine I'll be checking into it further for sure. From: " wkendz 32 " <wkendz32@...> Date: Sun, 13 Jul 2003 18:39:59 -0500 iodine@... Cc: low dose naltrexone Subject: Re: [low dose naltrexone] Re: LDN and Morphine Oh boy ....I sure hate to hear you say that your hopes are dashed. Maybe you could call Dr. Bihari and ask what could be done. Not sure but is there no hope that the LDN could possibly help to the point of you not needing the morphine? I am ever the optimist. Don't give up just yet k? Joyce. From: <iodine@...> LDN <low dose naltrexone > Subject: [low dose naltrexone] Re: LDN and Morphine Date: Sun, 13 Jul 2003 13:01:26 -0800 Thank you for your quick reply. Pain is one of my worst MS symptoms. I've tried every medication non narcotic and narcotic to manage this crippling pain without any success. My neurologist tried To persuade me for quite some time to try the Morphine. I kept saying no because I feared becoming a quad addict. But nothing we tried even put it a dent in dulling my pain. It finally reached a point where I had a butcher knife in my hand and was prepared to cut off my own legs as I was dialing my neurologist. that was when I finally gave in and tried the Morphine. That was the first time since 1998 that I was nearly pain free. I can't even imagine giving this up and going back to living with that unrelenting and severe pain again. I was so hopeful that this ldn would be just what I needed to keep from becoming a complete Quad. Now my hopes are dashed. I do thank you for this information. From: " Sally " <salpal@...> Date: Sun, 13 Jul 2003 03:57:59 -0000 " " <iodine@...> Subject: Re: LDN and Morphine Hi , Welcome! You are right, you are not supposed to take LDN with opiads....but not because it will harm you, but because the ldn blocks the morphine from doing it's job. Talk to your Dr about taking a non-opiad pain killer and take ldn. It has been known to help with pain as well....according to some people here. Let us know what you decide and how you are doing. My prayers and lots of love, Sally > > When my doctor looked up Naltrexone in the PDR (Physician's > Desk > > Reference) book he too found that Naltrexone was in a > controlled > > substance category and dismissed the idea at first. Because > the PDR > > does not have a thing in it about low dose Naltrexone and the > usage > > of it for other diseases. > > > > It only states that it should be used for drug addiction > withdrawal, > > mainly heroine. It must work like Narcon used to for > withdrawal > > symptoms. > > > > This is why we print out the 14 pages and highlight what > referes to > > our particuliar disease be it MS, Lupus, fibromyalgia, certain > > cancers, Parkinson's and other mentioned diseases. > > > > General Practioner's (GP's) are more open to the idea after > they read > > and study the information we provide for them. (One shoved all > the > > papers back at me.) Please be persistent if you want to try Low > Dose > > Naltrexone. Be sure you are not on any Narcotics! > > > > Your doctor may even want to call Dr. Bernard Bihari or another > > physician who is familiar with the protocal of this drug. > > > > For fibromyalgic people most doctor's and the patient are near > the > > end of the treatments (or at the end of the rope) looking for help > > for us. That persisent nagging over-all or total body pain is > sooo > > hard to treat. Eventually nothing works as years with this > syndrome > > persists. > > > > That is where my doctor and I was at when we looked into > LDN. Thank > > goodness he gave me a choice...LDN or Guiafenesin. He > found that the > > pain increased with the Guia treatment and people were not > willing to > > stay on it due to increased pain and all of the products that a > > person can't use while on it. > > > > People with fibro pain want good relief and as soon as > possible. > > Some people are so down from chronic pain that they wish for > death as > > an escape. Which leads to depression. I know, I have been > through > > that. > > > > So don't let your doctor discourage you by saying: We can't > > prescribe that, because doctors can legally prescribe LDN in > small > > doses. The drug is approved in large doses. The drug itself is > FDA > > approved. The problem is this: No pharacedical company is > making > > the capsule in fast-acting small doses. That is why we need a > > compounding pharmacist to crush the drug into smaller > dosages. > > > > I am saying this to help those who are new here or wanted to > know why > > the drug isn't in the PDR. Hope this helps some of you that are > > confused or wondering why. _________________________________________________________________ STOP MORE SPAM with the new MSN 8 and get 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
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