Re: People, People, People

[Guest guest]

Excellent post.

I only started 3 days ago and haven't been expecting any (overnight) miracles I have to admit. Any damage done by my recent relapse will take time to heal. It's a waiting game.

Don't give up!

Matt.

-----Original Message-----From: [mailto:nrhyne@...]Sent: 10 June 2003 12:24low dose naltrexone Subject: [low dose naltrexone] People, People, PeopleI'm fairly new to this board, but not LDN. So many of the posts seem to think that LDN will cure their MS overnight. That's not how it works. LDN appears to halt progression of the disease so the sufferer can work on healing, reversing the damage that has been done in the years that the disease was active. My daughter has been on LDN for over 3 years. That with Prokarin has made it possible for her to lead a reasonably normal life and do all those things to heal her body. It has NOT cured her MS. The human body WANTS to heal itself. You have to give it all those things it needs to accomplish the task. Diet is very important as well as appropriate supplements that your body needs to start this healing. Muscles and nerves need to be exercised. Lots of them have not been used for years - they won't start up on their own. A well qualified physical therapist or personal trainer can get them working again. It's not overnight. It's a lot of hard work and often a big expense, but it's needed. FYI, my daughter, (GA) has made terrific strides on LDN and Procarin. In three years she has reversed a lot, but not ALL of her damage. The great part is that with a lot of work, she's getting better all the time - her strength and stamina constantly improving, but, it's a long hard process. I'm writing this so people won't give up on LDN when there's no overnight miracle. It's a miracle, but it takes time and effort to get the best results.

[Guest guest]

I agree with you wholeheartedly. Many people expect that " silver bullet "

in the form of a pill, but nature just doesn't work that way. It's a

multifaceted approach involving diet, exercise, mental attitude (work),

spiritual cleansing (forgiveness), etc. in other words: whole-istic.

We didn't get this disease in just one way, we won't cure it in just one

way either (or even manage it well).

My only " issue " I have is that the LDN site may set expectations too high.

For e.g. : " In addition to the apparent ability of LDN to stop disease

progression, approximately two-thirds of MS patients starting LDN have

some symptomatic improvement generally apparent within the first few

days. "

I think the " within the first few days. " is leading people to believe if

they haven't noticed anything by the first week's end, it's not working.

Everyone is so different that this is an erroneous conclusion.

We all need to stay the course. The alternative is ABCs, steroids,

methotrexate all of which YOU WILL DEF. NOTICE A DIFFERENCE but maybe not

what you'd like!

imho, phil

On Tue, 10 Jun 2003, wrote:

> I'm fairly new to this board, but not LDN. So many of the posts

> seem to think that LDN will cure their MS overnight. That's not how

> it works. LDN appears to halt progression of the disease so the

> sufferer can work on healing, reversing the damage that has been

> done in the years that the disease was active. My daughter has been

> on LDN for over 3 years. That with Prokarin has made it possible

> for her to lead a reasonably normal life and do all those things to

> heal her body. It has NOT cured her MS.

>

> The human body WANTS to heal itself. You have to give it all those

> things it needs to accomplish the task. Diet is very important as

> well as appropriate supplements that your body needs to start this

> healing. Muscles and nerves need to be exercised. Lots of them

> have not been used for years - they won't start up on their own. A

> well qualified physical therapist or personal trainer can get them

> working again. It's not overnight. It's a lot of hard work and

> often a big expense, but it's needed.

>

> FYI, my daughter, (GA) has made terrific strides on LDN and

> Procarin. In three years she has reversed a lot, but not ALL of her

> damage. The great part is that with a lot of work, she's getting

> better all the time - her strength and stamina constantly improving,

> but, it's a long hard process.

>

> I'm writing this so people won't give up on LDN when there's no

> overnight miracle. It's a miracle, but it takes time and effort to

> get the best results.

>

>

>

>

[Guest guest]

Oh for sure, I know I still have it. I don't expect to be cured, eradicated, remyelinated with the LDN. But I'll accept that as an outcome. I like what I got so far

----- Original Message -----

From: Verrill

; low dose naltrexone

Sent: Tuesday, June 10, 2003 18:09

Subject: Re: [low dose naltrexone] People, People, People

Hi ,

I haven't gotten the impression once, from anyone here, that they think LDN will cure their MS. I honestly feel that they are looking for it to work in some way or another. Many LDN users report symptom changes almost immediately, while it's taking a bit longer for others.

Just my opinion!

[Guest guest]

Gotta love statistics.

Let's take a poll.

How many have noticed " some symptomatic improvement generally apparent within

the first few days. " ?

What do you consider the first few days? My wife noticed right away I was

sleeping better. My RLS went away first, that was within the first week. Then

my BU a week later, my T5 issues I noticed a week later, and I was stretching

my legs in about a week also.

Maybe they should tell the other 1/3 to give it at least a month?

----- Original Message -----

From: " G. Harding " <philh@...>

" " <nrhyne@...>

Cc: <low dose naltrexone >

Sent: Tuesday, June 10, 2003 08:23

Subject: Re: [low dose naltrexone] People, People, People

> I agree with you wholeheartedly. Many people expect that " silver bullet "

> in the form of a pill, but nature just doesn't work that way. It's a

> multifaceted approach involving diet, exercise, mental attitude (work),

> spiritual cleansing (forgiveness), etc. in other words: whole-istic.

> We didn't get this disease in just one way, we won't cure it in just one

> way either (or even manage it well).

> My only " issue " I have is that the LDN site may set expectations too high.

> For e.g. : " In addition to the apparent ability of LDN to stop disease

> progression, approximately two-thirds of MS patients starting LDN have

> some symptomatic improvement generally apparent within the first few

> days. "

>