Guest guest Posted June 19, 2003 Report Share Posted June 19, 2003 I know this has been discussed and I have received so many great answers and encouragement from everyone. I reduced my ldn dosage from 4.5 to 3mg, because I thought, like some of you, that it would solve the leg stiffness that I was experiencing, but the stiffness is so bad now, I can't walk at all. I called the Dr. and the Pharmacist (Dr. wasn't in) and the pharmacist said that he had never heard from any of his MS patients, about leg stiffness, and that he was going to e-mail Dr. Bahari about it. I will let you all know what I find out, as soon as I know. I would like to know if my friends here have any input for this delima of mine. Maybe I am having an exacerbation?? I haven't had one in years but thats what it feels like. My arms are also getting a little heavy and tingly. But I could be over-stressed about this....and that I know will bring back old symptoms. I would really love to hear what you have to say about this......I don't know weather to stop or go up or go down in dosage?? I love LDN....it has given me my balance back......but what good is balance, if you can't stand up and walk..lol....I guess I won't fall out of my chair...thats a plus. I wish you all well....Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2003 Report Share Posted June 19, 2003 Hi Sally, I am sorry to hear that you are getting so stiff. I am on 3mg and when I get up in the morning I am a little stiff but after moving around I loosen up fine. I definetely would get in touch with your Dr. about this. Maybe you need to go to 2mg. Everybody is different and you may get as good of results that someone else may get at a higher dose. LDN is a good thing, you just need to find what is right for you. Please keep us posted, we care. And I hope that everything turns out okay for you. Marie ----- Original Message ----- From: " Sally " <salpal@...> <low dose naltrexone > Sent: Wednesday, June 18, 2003 8:13 PM Subject: [low dose naltrexone] LDN and leg stiffness > I know this has been discussed and I have received so many great > answers and encouragement from everyone. I reduced my ldn dosage > from 4.5 to 3mg, because I thought, like some of you, that it would > solve the leg stiffness that I was experiencing, but the stiffness > is so bad now, I can't walk at all. I called the Dr. and the > Pharmacist (Dr. wasn't in) and the pharmacist said that he had never > heard from any of his MS patients, about leg stiffness, and that he > was going to e-mail Dr. Bahari about it. I will let you all know > what I find out, as soon as I know. I would like to know if my > friends here have any input for this delima of mine. Maybe I am > having an exacerbation?? I haven't had one in years but thats what > it feels like. My arms are also getting a little heavy and tingly. > But I could be over-stressed about this....and that I know will > bring back old symptoms. I would really love to hear what you > have to say about this......I don't know weather to stop or go up or > go down in dosage?? I love LDN....it has given me my balance > back......but what good is balance, if you can't stand up and > walk..lol....I guess I won't fall out of my chair...thats a plus. > I wish you all well....Sally > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2003 Report Share Posted June 19, 2003 It's hard, at least it has been for me, to figure out what doseage to take even after a couple months of using LDN. But I'm still experimenting and hope that after awhile, I will learn what to take and when. I started on 4.5 mg. and because of spasms and stiffness, I went to 3 mg. and felt much better. Then, at one point started feeling worse and went back to 4.5 mg. for a few days and felt better. Then after a week, had to go back to 3 mg. again. Once again over the past few weeks , I found myself really deteriorating (worse than usual) because of extreme stress, so I started back on 4.5 mg last night. Today, already I feel somewhat better. I think it's really a learning experience that maybe we will eventually all learn for ourselves over a period of time what works for us. Fortunately, I now have both 4.5 mg. and 3.0 supply so I can go back and forth as needed. -----Original Message-----From: Sally [mailto:salpal@...]Sent: Wednesday, June 18, 2003 8:13 PMlow dose naltrexone Subject: [low dose naltrexone] LDN and leg stiffnessI know this has been discussed and I have received so many great answers and encouragement from everyone. I reduced my ldn dosage from 4.5 to 3mg, because I thought, like some of you, that it would solve the leg stiffness that I was experiencing, but the stiffness is so bad now, I can't walk at all. I called the Dr. and the Pharmacist (Dr. wasn't in) and the pharmacist said that he had never heard from any of his MS patients, about leg stiffness, and that he was going to e-mail Dr. Bahari about it. I will let you all know what I find out, as soon as I know. I would like to know if my friends here have any input for this delima of mine. Maybe I am having an exacerbation?? I haven't had one in years but thats what it feels like. My arms are also getting a little heavy and tingly. But I could be over-stressed about this....and that I know will bring back old symptoms. I would really love to hear what you have to say about this......I don't know weather to stop or go up or go down in dosage?? I love LDN....it has given me my balance back......but what good is balance, if you can't stand up and walk..lol....I guess I won't fall out of my chair...thats a plus.I wish you all well....Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2003 Report Share Posted June 19, 2003 Thank you Marie, and all who responded to my questions. I feel so much better. It is so comforting to know that I am not alone and that within every problem...there is a solution!! You are very special people and I am so glad that I found you. Your advise has been sound and I will take it, and let you know what works for me. I wish only the best for all of you ~ Sally > Hi Sally, > I am sorry to hear that you are getting so stiff. I am on 3mg and when I > get up in the morning I am a little stiff but after moving around I loosen > up fine. I definetely would get in touch with your Dr. about this. Maybe > you need to go to 2mg. Everybody is different and you may get as good of > results that someone else may get at a higher dose. LDN is a good thing, you > just need to find what is right for you. Please keep us posted, we care. > And I hope that everything turns out okay for you. > Marie > ----- Original Message ----- > From: " Sally " <salpal@d...> > <low dose naltrexone > > Sent: Wednesday, June 18, 2003 8:13 PM > Subject: [low dose naltrexone] LDN and leg stiffness > > > > I know this has been discussed and I have received so many great > > answers and encouragement from everyone. I reduced my ldn dosage > > from 4.5 to 3mg, because I thought, like some of you, that it would > > solve the leg stiffness that I was experiencing, but the stiffness > > is so bad now, I can't walk at all. I called the Dr. and the > > Pharmacist (Dr. wasn't in) and the pharmacist said that he had never > > heard from any of his MS patients, about leg stiffness, and that he > > was going to e-mail Dr. Bahari about it. I will let you all know > > what I find out, as soon as I know. I would like to know if my > > friends here have any input for this delima of mine. Maybe I am > > having an exacerbation?? I haven't had one in years but thats what > > it feels like. My arms are also getting a little heavy and tingly. > > But I could be over-stressed about this....and that I know will > > bring back old symptoms. I would really love to hear what you > > have to say about this......I don't know weather to stop or go up or > > go down in dosage?? I love LDN....it has given me my balance > > back......but what good is balance, if you can't stand up and > > walk..lol....I guess I won't fall out of my chair...thats a plus. > > I wish you all well....Sally > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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