Guest guest Posted July 7, 2003 Report Share Posted July 7, 2003 Hi , I am taking LDN for cancer (nonhodgkins lymphoma), but I'm trying to get my brother with primary progressive MS to try it. He is afraid that alternative therapies might make things worse. Could you (or anyone else) tell me your history--diagnosis, symptoms prior to MS, length of time you've been on LDN, etc.--so that I can offer him some reassurance that others like him have had positive experiences with LDN. Regards, S. Burnham wrote: I was on Copaxone, it did nothing for the progression (secondary progression???). I stopped the Copaxone and all other drugs too. There were some minor leg cramps at first (perhaps it is the nerves coming back alive that is the cause of that???). At this time the leg cramps are gone. Bladder control is now normal. No more fatigue! Sense of balance returned. No longer need Vigeria! I can feel myself returning to normal. LDN does stop the progression allowing the body to heal itself. I no longer get the terrible leg pains I once had. All MS pain is gone! I threw out sever thousand dollars worth of poisonous drugs I was taking. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2003 Report Share Posted July 20, 2003 Yes, it is MS. I take two of the 1.5mg caps per day. I got the 1.5mg caps so I could adjust the dosage alittle easier. I started out with 4.5mg (3 caps) per day but it was too much. I back off to 3mg (2 caps) per day and felt better. After a couple of months I will try to increase back to 4.5mg. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2003 Report Share Posted July 20, 2003 Hi , Do you take the ldn during the day then? I thought Dr Bahari say to take it at bed time, because that is when the little endorphine guys wake up....lol But, I do remember reading on one of the ldn sites, that one girl took it in the daytime and it made here spastisity go away???? I wonder???? Has anyone tried taking it during the day? And, if so, with what results. Maybe while we are experimenting on ourselves, we should try that, to see what happens. Just curious...lol. ~Sally > Yes, it is MS. I take two of the 1.5mg caps per day. I got the 1.5mg caps so I could adjust the dosage alittle easier. I started out with 4.5mg (3 caps) per day but it was too much. I back off to 3mg (2 caps) per day and felt better. After a couple of months I will try to increase back to 4.5mg. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2003 Report Share Posted July 20, 2003 IM STAYING WITH THE LDN.I WENT BACK TO 3MG AND I FEEL BETTER. SORIE FOR BEING A PAIN IN THE ---! THANK YOU ALL FOR YOUR HELP. (((((((((HUGS & PEACE)))))))))) LIN Quote Link to comment Share on other sites More sharing options...
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