Guest guest Posted February 3, 2003 Report Share Posted February 3, 2003 , It is such a small world! My doctor was Dr. , but it seemed like he was always on vacation, so Dr. Barnett did my first retrieval, and the retieval and embryo transfer the second time. I give him most of the credit. And the people at Presby Plano are awesome! Were you 3 for 2 or did you have other attempts? Hope that's not too personal... Congrats again on your 3 babies. Can you post a picture of your twins? Gail New here...info needed> > > We have almost 7-month old twins (Nolan & - born July 4, > 2002) that both have what looks like moderate - severe brachycephaly. > (this is in comparison to the photos from cranialtech.com site)> > We expressed our concern at the boys' 4 month ped visit, then again > at their 6 month. Both times we were told just to give it time and > change their sleeping postions. Once I started researching it more, > the more concerned I've become and feel like we need to do something > now. I called our ped and she is suppose to be making an appt for us > at Children's Medical Center in Dallas, TX. It's been a week, and > still no set appt.> > My question is this - where do we get started and how long should we > have to wait for an appt? Should I go ahead and call the Cranial Tech > office? Does anyone have any experience in the DFW area? We live in > East TX.> > Thanks!> > mom to (3), Nolan & > (all IVF miracle babies!!!)> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2003 Report Share Posted February 3, 2003 Gail - that is crazy! When was your 3 yr old born? We could have been there around the same time! My retrieval/t'fer with was in Feb/March and he was born in Nov 99. We are 3 for 2 and actually were almost 4 for 2. originally had a twin that we unfortunately lost at about 3 months into the pregnancy. I called Cranio Tech earlier and they told me to go ahead and call the dr at Childrens Medical, since that was where our ped was referring us. We have an appt with Dr Hobar for next Wednesday (the 12th). I'm so glad to finally have this ball rolling!!! How old were your twins when banded, and how long did it take? I'm so glad to have found this board! I will try to add a pic as soon as I can figure out how!! > > !!! I have 3 IVF miracle babies too, a 3 year old and 15 > month old twins, and we live near Dallas! My twins had > moderate/severe plagio and we saw Dr. Day at Medical City, and he > sent us to Cranial Technologies off Hillcrest Drive in Dallas. We > couldn't be more pleased with the results! We got in to Dr. Day only > a week after being referred by our ped. We saw him again a few weeks > ago for a different problem, and we only had to wait about 4 days. > If you go to him or the Craniofacial Institute at Medical City, they > only conduct clinic on Tuesdays, but you can get in very quick. I > would definitely put in a call to your ped and start pushing the > issue! In the meantime, you can go to CT for a free consultation. > Good luck. I feel like we have so much in common already. You will > really enjoy this group. > > > > Gail, Sam and Sara's mom, DOC grads > > New here...info needed > > > > > > We have almost 7-month old twins (Nolan & - born July 4, > > 2002) that both have what looks like moderate - severe > brachycephaly. > > (this is in comparison to the photos from cranialtech.com site) > > > > We expressed our concern at the boys' 4 month ped visit, then > again > > at their 6 month. Both times we were told just to give it time > and > > change their sleeping postions. Once I started researching it > more, > > the more concerned I've become and feel like we need to do > something > > now. I called our ped and she is suppose to be making an appt for > us > > at Children's Medical Center in Dallas, TX. It's been a week, and > > still no set appt. > > > > My question is this - where do we get started and how long should > we > > have to wait for an appt? Should I go ahead and call the Cranial > Tech > > office? Does anyone have any experience in the DFW area? We live > in > > East TX. > > > > Thanks! > > > > mom to (3), Nolan & > > (all IVF miracle babies!!!) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2003 Report Share Posted July 31, 2003 Hello all... I am new here. Just found you today via my MS forum. I'll give you a little history and then get my questions out: I am 27 years old, I was diagnosed with MS at 26. I took Copaxone for 8 months until my husband and I decided to start our family. I have not had any problems (knock on wood) since I stopped my Copaxone and am currently pregnant with my first child due in January 2004. I am exploring new avenues of treatment for my MS (which luckily was found very early on and I have been lucky to not have severe symptoms, although they are plentiful!) I would like to steer clear of my Copaxone injections forever, yet I am not deluded in thinking that I can just go drug free and never have a relapse. I am currently looking for as much information on LDN as I can gather prior to 8/22/03 which is my next neurology appointment. I will need to start some kind of treatment immediately after delivery to conter- act the stress that my body will be under and hopefully prevent a relapse. I can nurse and take Copaxone, even though I would rather find something with more " umph " and less side effects. I don't have relapses while on Copaxone, but it does very little to reduce my symptoms. Any information or website links would be greatly appreciated. TIA, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2003 Report Share Posted July 31, 2003 HI SHANNON, WELCOME TO OUR GROUP. I HAD MY FIRST SYMPTOMS OF MS AT YOUR AGE (35 YRS AGO) YOU DO THE MATH...LOL IF YOU HAVEN'T BEEN ALREADY, A GOOD PLACE TO START IS: http://www.low dose naltrexone.org_and_ms.htm THIS IS DR. BAHARI'S SITE, AND WILL EXPLAIN A LOT ABOUT LDN. GOOD LUCK TO YOU AND ANY QUESTIONS, JUST ASK. BEST REGARDS, SALLY > Hello all... I am new here. Just found you today via my MS forum. > I'll give you a little history and then get my questions out: > > I am 27 years old, I was diagnosed with MS at 26. I took Copaxone > for 8 months until my husband and I decided to start our family. I > have not had any problems (knock on wood) since I stopped my Copaxone > and am currently pregnant with my first child due in January 2004. I > am exploring new avenues of treatment for my MS (which luckily was > found very early on and I have been lucky to not have severe > symptoms, although they are plentiful!) I would like to steer clear > of my Copaxone injections forever, yet I am not deluded in thinking > that I can just go drug free and never have a relapse. I am > currently looking for as much information on LDN as I can gather > prior to 8/22/03 which is my next neurology appointment. I will need > to start some kind of treatment immediately after delivery to conter- > act the stress that my body will be under and hopefully prevent a > relapse. I can nurse and take Copaxone, even though I would rather > find something with more " umph " and less side effects. I don't have > relapses while on Copaxone, but it does very little to reduce my > symptoms. Any information or website links would be greatly > appreciated. > > TIA, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2003 Report Share Posted July 31, 2003 http://www.low dose naltrexone.org/ldn_and_ms.htm RE-DO OF LDN SITE....ADV. COVERED IT UP. ~SALLY > > Hello all... I am new here. Just found you today via my MS > forum. > > I'll give you a little history and then get my questions out: > > > > I am 27 years old, I was diagnosed with MS at 26. I took Copaxone > > for 8 months until my husband and I decided to start our family. > I > > have not had any problems (knock on wood) since I stopped my > Copaxone > > and am currently pregnant with my first child due in January > 2004. I > > am exploring new avenues of treatment for my MS (which luckily was > > found very early on and I have been lucky to not have severe > > symptoms, although they are plentiful!) I would like to steer > clear > > of my Copaxone injections forever, yet I am not deluded in > thinking > > that I can just go drug free and never have a relapse. I am > > currently looking for as much information on LDN as I can gather > > prior to 8/22/03 which is my next neurology appointment. I will > need > > to start some kind of treatment immediately after delivery to > conter- > > act the stress that my body will be under and hopefully prevent a > > relapse. I can nurse and take Copaxone, even though I would > rather > > find something with more " umph " and less side effects. I don't > have > > relapses while on Copaxone, but it does very little to reduce my > > symptoms. Any information or website links would be greatly > > appreciated. > > > > TIA, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2003 Report Share Posted August 1, 2003 I tried to post a reply but it will not show up... how do I do that??? Thank you everyone for your responses. I have a lot of research to do. I really think that this will help me out and after reading a little more last night, I am even more encouraged. My mother has lupus and fibromayalgia and my sister has Chrone's disease and rheumatoid arthritis... this could help all of us - of course they'd both have to give up the pain killers - but it'd be worth it if they no longer needed them! Thank you, thank you and pregnant belly rubs to all! Quote Link to comment Share on other sites More sharing options...
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