Re: LDN-NOT A CURE, Not a Cure, not a cure

August 6, 2003

I have been on LDN for a couple of months. The LDN seems to have stopped the progression. Now it seems that as I appear to be somewhat recovering I am reliving the symptoms that brought me to where I am, in reverse. Has anyone else notices anything like this?

----- Original Message -----

From: LarryGC

LDN group

Sent: Wednesday, August 06, 2003 5:51 PM

Subject: [low dose naltrexone] LDN-NOT A CURE, Not a Cure, not a cure

EXCELLENT POINT

The Intent of LDN is to stop Further progression. I guess Anything else it may do is just an unfortunate side effect.

Perhaps the LDN does ONLY stop further progression. Whatever the body can heal from it's return towards a level of proper homeostasis would be individual. LDN just helps your body try to return to a level is should be at. I guess the body does the rest, not the LDN.

So it would make sense if you have an sx for many years, it may take many years, if ever, to heal itself. But it's the body doing it, not the LDN. The LDN is just kick starting a daily biological chemical reaction but perhaps we can't make that ourselves, so the LDN acts as the head of a match to ignite when the other systems say let's start the e-cycle. Without the LDN, the spark just isn't there, so it doesn't cook up what it needs.

Whatever it is, even if it just 'locks someone in' to where they do not get any worse than they are when they start it, that's not a bad deal either.

And as for me, if it ever stops doing what it's done for me, or what my body did for itself with proper production cycles that LDN helps with, well, I at least have memories and days I thought, 4 months ago, I'd never ever see again. I wanted JUST ONE DAY, Again, to feel how I felt in days gone by. I've had over 100 now, and memories to last a lifetime.

One day at a time, and my days and nights have been so much better in the last 112 24 hour periods.

LDN is also just one thing I'm doing. I'm exercising when I get the stiffness, or just because. I'm still working with my chiropractors. I'm eating a lot better. I'm drinking a lot better (i.e. water, not soda, during July camping weeks). I avoid chocolate as much as possible. I'm taking some B50-Complex here and there, Coral Calcium, other vitamins, not daily, but when the mood strikes.

Of course, I'm only talking about my experiences, YMMV Now.. that toe curling thing I mentioned a while ago... being able to curl the toes on my left foot, and I'm gaining some more control over my right toes, some day maybe they'll work again also... now, THAT HAS TO BE a direct result of the LDN, if nothing else but whatever it does for the body, the body was able to communicate to my toes what to do. I would say it has NOTHING to do with MS at all, but rather the spina bifida occulta that was found on my L5, sbo is something from birth, which would explain why it's not MS, and why it's something I could NEVER EVER do before. And back in the 60s, not ONE specialist ever thought that maybe something in my L5, or maybe even spina bifida, could be the cause and reason why. Would have saved a lot of visits my parents dragged me on trying to find out what was wrong with my toes. It's such an inconsequential thing in the grand scheme, but it's phenomenal to me. Not that I can do it, just that 'all of a sudden', after 43 1/2 years, I could.

Good luck to us all

----- Original Message -----

From: noclue915@...

maxwell98king@...

Cc: low dose naltrexone

Sent: Wednesday, August 06, 2003 17:11

Subject: [low dose naltrexone] LDN-NOT A CURE

You must understand that LDN is not a cure or fix-all. It is only to stop progression. Anything else is a perk. Many do not seem to understand that. It does have some nice side effects that benefit us . Dr. B' s only claim is to stop progression. He even says his daughters friend that has been on it for 17 yrs, still has the original hand and arm weakness but has remained the same.I personally have experienced alot less stiffness and pain. I also can fall into a deep sleep which I haven't in 8 yrs. This alone makes me feel better. I do not need my 4 pm nap anymore. As long as you accept the perks as just that, the progression is the important thing it is accomplishing. Kiki

August 7, 2003

I am now wondering when I will reach the point where my former women returns???? My MS drove her away. I didn't know anything was very wrong with me (major denial) and she blamed me for having something wrong (Thinking it was me not loving her anymore.) If you think that is confusing from where you are it is wicked confusing from where I am.

\

----- Original Message -----

From: LarryGC

Burnham

Sent: Wednesday, August 06, 2003 7:24 PM

Subject: Re: [low dose naltrexone] LDN-NOT A CURE, Not a Cure, not a cure

I think I wrote about that a month or so ago. I felt something that I remembered from 2000, and it went away rather quickly, and then I felt something from 1998 and that went away too, but took longer. And in-between those two feelings, which I didn't related right away, I realized my hernia was bothering me... I think I wrote about that a while ago in this group, asking about the operation if I needed it, and the pain killers they may want to give me. Well, the hernia was from 1999!!! And that pain for a few days, which was only a pain??? strangely enough, because I had my doc check and he said it was the same as before, but then I realized I felt it between the 2000 and 1998 sx's.

Very interesting! I wasn't sure.. but now that you mention it! Wow!

If I go deaf in my left ear for any length of time, then that was 1996. I think 1997 was dizziness turning to the left (only the left, it was my left side SCM that was out of place), but I haven't felt them yet/at all.

----- Original Message -----

From: Burnham

LDN group

Sent: Wednesday, August 06, 2003 18:21

Subject: Re: [low dose naltrexone] LDN-NOT A CURE, Not a Cure, not a cure

I have been on LDN for a couple of months. The LDN seems to have stopped the progression. Now it seems that as I appear to be somewhat recovering I am reliving the symptoms that brought me to where I am, in reverse. Has anyone else notices anything like this?

----- Original Message -----

From: LarryGC

LDN group

Sent: Wednesday, August 06, 2003 5:51 PM

Subject: [low dose naltrexone] LDN-NOT A CURE, Not a Cure, not a cure

EXCELLENT POINT

The Intent of LDN is to stop Further progression. I guess Anything else it may do is just an unfortunate side effect.

August 7, 2003

GREAT POST LARRY...THANKS

HUGS, SALLY

--- In low dose naltrexone , " LarryGC " <larrygc@s...>

wrote:

> EXCELLENT POINT

>

> The Intent of LDN is to stop Further progression. I guess

Anything else it may do is just an unfortunate side effect.

>

> Perhaps the LDN does ONLY stop further progression. Whatever the

body can heal from it's return towards a level of proper homeostasis

would be individual. LDN just helps your body try to return to a

level is should be at. I guess the body does the rest, not the LDN.

>

> So it would make sense if you have an sx for many years, it may

take many years, if ever, to heal itself. But it's the body doing

it, not the LDN. The LDN is just kick starting a daily biological

chemical reaction but perhaps we can't make that ourselves, so the

LDN acts as the head of a match to ignite when the other systems say

let's start the e-cycle. Without the LDN, the spark just isn't

there, so it doesn't cook up what it needs.

>

> Whatever it is, even if it just 'locks someone in' to where they

do not get any worse than they are when they start it, that's not a

bad deal either.

>

> And as for me, if it ever stops doing what it's done for me, or

what my body did for itself with proper production cycles that LDN

helps with, well, I at least have memories and days I thought, 4

months ago, I'd never ever see again. I wanted JUST ONE DAY, Again,

to feel how I felt in days gone by. I've had over 100 now, and

memories to last a lifetime.

>

> One day at a time, and my days and nights have been so much better

in the last 112 24 hour periods.

>

> LDN is also just one thing I'm doing. I'm exercising when I get

the stiffness, or just because. I'm still working with my

chiropractors. I'm eating a lot better. I'm drinking a lot better

(i.e. water, not soda, during July camping weeks). I avoid

chocolate as much as possible. I'm taking some B50-Complex here and

there, Coral Calcium, other vitamins, not daily, but when the mood

strikes.

>

> Of course, I'm only talking about my experiences, YMMV Now..

that toe curling thing I mentioned a while ago... being able to curl

the toes on my left foot, and I'm gaining some more control over my

right toes, some day maybe they'll work again also... now, THAT HAS

TO BE a direct result of the LDN, if nothing else but whatever it

does for the body, the body was able to communicate to my toes what

to do. I would say it has NOTHING to do with MS at all, but rather

the spina bifida occulta that was found on my L5, sbo is something

from birth, which would explain why it's not MS, and why it's

something I could NEVER EVER do before. And back in the 60s, not

ONE specialist ever thought that maybe something in my L5, or maybe

even spina bifida, could be the cause and reason why. Would have

saved a lot of visits my parents dragged me on trying to find out

what was wrong with my toes. It's such an inconsequential thing in

the grand scheme, but it's phenomenal to me. Not that I can do it,

just that 'all of a sudden', after 43 1/2 years, I could.

>

> Good luck to us all

>

> ----- Original Message -----

> From: noclue915@a...

> maxwell98king@y...

> Cc: low dose naltrexone

> Sent: Wednesday, August 06, 2003 17:11

> Subject: [low dose naltrexone] LDN-NOT A CURE

>

> You must understand that LDN is not a cure or fix-all. It is

only to stop progression. Anything else is a perk. Many do not seem

to understand that. It does have some nice side effects that benefit

us . Dr. B' s only claim is to stop progression. He even says his

daughters friend that has been on it for 17 yrs, still has the

original hand and arm weakness but has remained the same.

> I personally have experienced alot less stiffness and pain. I

also can fall into a deep sleep which I haven't in 8 yrs. This alone

makes me feel better. I do not need my 4 pm nap anymore.

> As long as you accept the perks as just that, the progression is

the important thing it is

accomplishing. Kiki

August 7, 2003

YES DAVID, I'M NOT EXACTLY HAPPY TO HEAR THAT YOU ARE HAVEING THE

SAME SYMPTOMS AS I, BUT IT'S ALSO NICE NOT TO BE ALONE. LATELY I

HAVE FELT A LITTLE BACKWARD STEP, BUT I'M BANKING THAT IT IS JUST

THE YUCKY WEATHER HERE IN OHIO (AS USUAL) AND JUST SOME OLD SYMPTOMS

RAISING THEIR UGLY HEADS. DR BAHARI SAID THAT THERE WOULD BE SOME

DAYS LIKE THIS. BUT I KNOW IT'S NOT AN ATTACK, BECAUSE THE NEXT DAY

OR TWO IM RIGHT BACK TO FEELING GOOD AGAIN. SO I WILL JUST (GRIN)

AND BEAR IT, AND KNOW THAT MY MS IS NOT GETTING WORSE.....AND I DO

BELIEVE THAT!

HUGS, SALLY

> I have been on LDN for a couple of months. The LDN seems to have

stopped the progression. Now it seems that as I appear to be

somewhat recovering I am reliving the symptoms that brought me to

where I am, in reverse. Has anyone else notices anything like this?

>

> ----- Original Message -----

> From: LarryGC

> LDN group

> Sent: Wednesday, August 06, 2003 5:51 PM

> Subject: [low dose naltrexone] LDN-NOT A CURE, Not a Cure, not a

cure

>

> EXCELLENT POINT

>

> The Intent of LDN is to stop Further progression. I guess

Anything else it may do is just an unfortunate side effect.

>

> Perhaps the LDN does ONLY stop further progression. Whatever

the body can heal from it's return towards a level of proper

homeostasis would be individual. LDN just helps your body try to

return to a level is should be at. I guess the body does the rest,

not the LDN.

>

> So it would make sense if you have an sx for many years, it may

take many years, if ever, to heal itself. But it's the body doing

it, not the LDN. The LDN is just kick starting a daily biological

chemical reaction but perhaps we can't make that ourselves, so the

LDN acts as the head of a match to ignite when the other systems say

let's start the e-cycle. Without the LDN, the spark just isn't

there, so it doesn't cook up what it needs.

>

> Whatever it is, even if it just 'locks someone in' to where they

do not get any worse than they are when they start it, that's not a

bad deal either.

>

> And as for me, if it ever stops doing what it's done for me, or

what my body did for itself with proper production cycles that LDN

helps with, well, I at least have memories and days I thought, 4

months ago, I'd never ever see again. I wanted JUST ONE DAY, Again,

to feel how I felt in days gone by. I've had over 100 now, and

memories to last a lifetime.

>

> One day at a time, and my days and nights have been so much

better in the last 112 24 hour periods.