Re: Question - Wait or Not to Wait

[Guest guest]

Hi Kathy,

Well you sure do have yourself a dilemma. I'd hate to wait for another

attack and end up with something permanent. I was very lucky after I had

about 3 bouts of optic neuritis and never really knew why. Do you exercise a

lot? I think that is what saved me for many years, I only started to decline

once I got lazy and did not exercise the way I used to. Boy..not quite sure

what to tell you. This is the attitude that I had for many years. Used to

say to myself...yikes on shooting something into my veins for the rest of my

life when I was basically symptom free. Well if you do truly have ms it may

just be a matter of time before you start to decline. I spose it is possible

that you don't have ms but optic neuritis is pretty conclusive I think no?

What do the others think? You are the only one that can make this decision

for yourself....it is a big one isn't it? Well you could wait and see but at

the first sign of what looks like MS I would hi tail it to the doc for a

prescription for this. It is pretty harmless at such a low dose but of

course you are right....one never really knows 100% and no one can guantee

you anything. Good luck with whatever you decide. Joyce.

From: " Kathy Young "

low dose naltrexone

Subject: [low dose naltrexone] Question - Wait or Not to Wait

Date: Fri, 08 Aug 2003 22:43:52 -0000

Hi everyone!

In talking with my mom today, she basically told me she thinks I

should wait to go on LDN (or any drug) until/if I would have a 2nd

relapse.

My history is very brief, I'm 38, late March of this year, got Optic

Neuritis (ot a bad case), followed within 2 weeks with numbness in

feet and groin. Those went away within 2 months total for

everything, and I'm left with Lhermittes only when I get warm, and

then it's VERY mild.

I have never had any symptoms (looking back) that would lead me to

think I've had MS maybe for years. This is definitely the first

time it's happened.

Doc said last time, that it " could " be viral. I did have a headcold

probably 1 week after the Optic Neuritis started. I had no clue

about optic neuritis and wasn't sure why my eyeball was having pain,

then I got a headcold & kinda thought it was all related. But then

the numbess started.

Anyhow, to try & be brief - should I go on LDN now? or wait and see

if I ever have another attack? Doc said my chances as he sees it

now, are 40-50% MS. I do not want a spinal tap. He said if I did

have one and it was elevated, then that would put my risk upwards to

70-80% of MS, and if normal, more like 30%..Well, not gonna go there

just to find out that the percentages are changing.

I believe my mom is worried about me going on a drug for the rest of

my life that what if in 20 years they find out, it was actually

damaging something? I can see her point. I could just have had the

1 attack and maybe never have another, in which case, I am

needlessly taking drugs.

What do you think? I'm definitely leaning towards my LDN! I don't

wanna have another attack. She thinks that if I did just wait for

another episode that since this last episode was so very mild, my

next one would be too. This is not necessarily true and I told her

that.

Any opinions? I can see both sides of the coin!

Thanks,

Kathy

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[Guest guest]

Dr Bihari and Wife both take LDN as a precautionary effort because of family history of cancer (also helped by LDN).

----- Original Message -----

From: Kathy Young

low dose naltrexone

Sent: Friday, August 08, 2003 6:43 PM

Subject: [low dose naltrexone] Question - Wait or Not to Wait

Hi everyone!In talking with my mom today, she basically told me she thinks I should wait to go on LDN (or any drug) until/if I would have a 2nd relapse.My history is very brief, I'm 38, late March of this year, got Optic Neuritis (ot a bad case), followed within 2 weeks with numbness in feet and groin. Those went away within 2 months total for everything, and I'm left with Lhermittes only when I get warm, and then it's VERY mild. I have never had any symptoms (looking back) that would lead me to think I've had MS maybe for years. This is definitely the first time it's happened.Doc said last time, that it "could" be viral. I did have a headcold probably 1 week after the Optic Neuritis started. I had no clue about optic neuritis and wasn't sure why my eyeball was having pain, then I got a headcold & kinda thought it was all related. But then the numbess started.Anyhow, to try & be brief - should I go on LDN now? or wait and see if I ever have another attack? Doc said my chances as he sees it now, are 40-50% MS. I do not want a spinal tap. He said if I did have one and it was elevated, then that would put my risk upwards to 70-80% of MS, and if normal, more like 30%..Well, not gonna go there just to find out that the percentages are changing.I believe my mom is worried about me going on a drug for the rest of my life that what if in 20 years they find out, it was actually damaging something? I can see her point. I could just have had the 1 attack and maybe never have another, in which case, I am needlessly taking drugs.What do you think? I'm definitely leaning towards my LDN! I don't wanna have another attack. She thinks that if I did just wait for another episode that since this last episode was so very mild, my next one would be too. This is not necessarily true and I told her that.Any opinions? I can see both sides of the coin!Thanks,Kathy

[Guest guest]

Stopping another attack is what you need to try to do. An attack means the

disease is active and progressing. LDN halts the progression of MS and could

very well keep you from getting any worse than you already are. There's no

telling what sort of damage you will have if a second attack occurs.

Paralysis or weakness in any part of the body, visual loss, bladder or bowel

problems, more fatigue, increased spasticity are just a few things that just

might happen if the disease progresses.

I'd get the LDN now.

[Guest guest]

Good point ....Goodshape is taking it too from what I recall.

www.goodshape.net..his wife has MS but he decided after looking at all the

facts to start using it to prevent cancer. Joyce.

From: " Burnham " <david@...>

<low dose naltrexone >, " Kathy Young " <schnebbles@...>

Subject: Re: [low dose naltrexone] Question - Wait or Not to Wait

Date: Fri, 8 Aug 2003 19:09:17 -0400

Dr Bihari and Wife both take LDN as a precautionary effort because of family

history of cancer (also helped by LDN).

----- Original Message -----

From: Kathy Young

low dose naltrexone

Sent: Friday, August 08, 2003 6:43 PM

Subject: [low dose naltrexone] Question - Wait or Not to Wait

Hi everyone!

In talking with my mom today, she basically told me she thinks I

should wait to go on LDN (or any drug) until/if I would have a 2nd

relapse.

My history is very brief, I'm 38, late March of this year, got Optic

Neuritis (ot a bad case), followed within 2 weeks with numbness in

feet and groin. Those went away within 2 months total for

everything, and I'm left with Lhermittes only when I get warm, and

then it's VERY mild.

I have never had any symptoms (looking back) that would lead me to

think I've had MS maybe for years. This is definitely the first

time it's happened.

Doc said last time, that it " could " be viral. I did have a headcold

probably 1 week after the Optic Neuritis started. I had no clue

about optic neuritis and wasn't sure why my eyeball was having pain,

then I got a headcold & kinda thought it was all related. But then

the numbess started.

Anyhow, to try & be brief - should I go on LDN now? or wait and see

if I ever have another attack? Doc said my chances as he sees it

now, are 40-50% MS. I do not want a spinal tap. He said if I did

have one and it was elevated, then that would put my risk upwards to

70-80% of MS, and if normal, more like 30%..Well, not gonna go there

just to find out that the percentages are changing.

I believe my mom is worried about me going on a drug for the rest of

my life that what if in 20 years they find out, it was actually

damaging something? I can see her point. I could just have had the

1 attack and maybe never have another, in which case, I am

needlessly taking drugs.

What do you think? I'm definitely leaning towards my LDN! I don't

wanna have another attack. She thinks that if I did just wait for

another episode that since this last episode was so very mild, my

next one would be too. This is not necessarily true and I told her

that.

Any opinions? I can see both sides of the coin!

Thanks,

Kathy

[Guest guest]

Kathy

This is my two cents worth. Why wait? If you have another attack, it could

leave you with something like paralysis. Why take that chance? I wouldn't.

LDN is like a supplement. It has no side effects. Br. Bihari and his wife

take it as a precautionary so that they won't get cancer. both of their

families have a long history of cancer and they are taking LDN so they won't

get cancer. Why not stop the disease now?

Good luck

Marie

----- Original Message -----

From: " Kathy Young " <schnebbles@...>

<low dose naltrexone >

Sent: Friday, August 08, 2003 6:43 PM

Subject: [low dose naltrexone] Question - Wait or Not to Wait

> Hi everyone!

>

> In talking with my mom today, she basically told me she thinks I

> should wait to go on LDN (or any drug) until/if I would have a 2nd

> relapse.

>

> My history is very brief, I'm 38, late March of this year, got Optic

> Neuritis (ot a bad case), followed within 2 weeks with numbness in

> feet and groin. Those went away within 2 months total for

> everything, and I'm left with Lhermittes only when I get warm, and

> then it's VERY mild.

>

> I have never had any symptoms (looking back) that would lead me to

> think I've had MS maybe for years. This is definitely the first

> time it's happened.

>

> Doc said last time, that it " could " be viral. I did have a headcold

> probably 1 week after the Optic Neuritis started. I had no clue

> about optic neuritis and wasn't sure why my eyeball was having pain,

> then I got a headcold & kinda thought it was all related. But then

> the numbess started.

>

> Anyhow, to try & be brief - should I go on LDN now? or wait and see

> if I ever have another attack? Doc said my chances as he sees it

> now, are 40-50% MS. I do not want a spinal tap. He said if I did

> have one and it was elevated, then that would put my risk upwards to

> 70-80% of MS, and if normal, more like 30%..Well, not gonna go there

> just to find out that the percentages are changing.

>

> I believe my mom is worried about me going on a drug for the rest of

> my life that what if in 20 years they find out, it was actually

> damaging something? I can see her point. I could just have had the

> 1 attack and maybe never have another, in which case, I am

> needlessly taking drugs.

>

> What do you think? I'm definitely leaning towards my LDN! I don't

> wanna have another attack. She thinks that if I did just wait for

> another episode that since this last episode was so very mild, my

> next one would be too. This is not necessarily true and I told her

> that.

>

> Any opinions? I can see both sides of the coin!

>

> Thanks,

> Kathy

>

>

>

>