Guest guest Posted January 21, 2001 Report Share Posted January 21, 2001 ----- Original Message ----- From: Elaine <elainer@...> a <aa@...> Sent: Friday, January 19, 2001 10:34 PM Subject: FW: not doing well > not sure this will get to group.. wanted > you and them to know what is happening. > Going to bed now... > Take care my friend > elaine > > -----Original Message----- > From: Elaine [mailto:elainer@...] > Sent: Friday, January 19, 2001 10:31 PM > RA > Subject: FW: not doing well > > > The original message was received at Fri, 19 Jan 2001 > 20:13:58 -0800 (PST) > from ip10.chicago31.il.pub-ip.psi.net [38.33.74.10] > > ----- The following addresses had permanent fatal errors ----- > <RA-Support@...> > (reason: 550 5.1.2 <RA-Support@...>... Unsupported > mail destination) > > ----- Transcript of session follows ----- > ... while talking to nomail..: > >>> RCPT To:<RA-Support@...> > <<< 550 5.1.2 <RA-Support@...>... Unsupported mail > destination > 550 5.1.1 <RA-Support@...>... User unknown-----Original > Message----- > > RESENDING this... > > From: Elaine [mailto:elainer@...] > Sent: Friday, January 19, 2001 10:21 PM > RA > Subject: not doing well > > > I apologize for not keeping you updated > on my prayer requests and my health info. > The MRI did not go well. It was not a > good experience. I woke up in the middle > and just about " freaked out " from the > panic disorder.. messed up part of the > MRI films, so the doctor will not have the > complete picture on my shoulder.. however, > due to the POOR CARE I received at the > day surgery unit, the anesthesiologist > did the best she could.. and then INSISTED > that I call the hospital and explain what > happened in the day surgery unit.. > (basically put my husband and me in a > small, hot room (I have SEVERE HEAT SENSITIVITY) > and LEFT US THERE for 2 hours (not even telling > us that the MRI has been postponed for 45 min.) > NOR helping me to take the IV down and use the > bathroom.. telling my husband after we put the > call light on 2 times and they ignored it.. and > he went to the nurse's station.. that HE COULD > JUST TAKE THE IV down and take me to the bathroom.. > and I just got more and more " uptight " , thinking > (circular thinking that goes with the panic disorder) > that they " forgot me " .. (we were at the end of the > hall, and like I said NO NURSE or ANYONE came in the > room for 2 HOURS).. > > By the time the anesthesiologist got to me, she had > to give me MASSIVE amounts of Versed to calm me down > which didn't work.. and then the propofol depressed > my breathing and she had to be cautious about how > much to give me and I woke up in the middle and > moved around.. > > Anyway, the MRI report states: There is a partial > articular surface tear along the most anterior aspect > of the supraspinatus tendon just prior to the insertion > into the tuberosity. In addition, there is thickening of > the cortical humeral ligament which is associated with > rotator interval lesion. > > The labrum appears grossly intact, however the axial images > are severely degraded secondary to patient movement (I think > this is due to me " waking up " and moving around.. yelling > " get me out of here " ) > > No abnormal signal was seen within the visualized bone marrow. > > IMPRESSION: Small partial tear along the articular surface of > the supraspinatus tendon anteriorly. > > I am in severe pain.. really need to take pain meds and sleep, > but had to call the hospital and wait for phone calls today... > Our HMO and the anesthesiologist INSISTED that I report the > " mismanaged care of the day surgical unit " to the administration > of the hospital.. because even though I am insulin dependent > no one even checked my glucose for the 5 hours that I was there > and that is definitely DANGEROUS.. both for the anesthesiologist > and for me, the patient.. and for future patients. > > So.. I called and the " patient advocate " brought me 2 copies > of my entire chart, as well as copies of the MRI's and the > MRI report today. The MRI report had never even been faxed > to my surgeon like they are required to do within 72 hours.. > so the surgeon does not even have the results yet.. MAJOR > SCREW-UP. I have an appointment for next Wed. afternoon > with the surgeon, and will hand carry the MRI copies and > report to him. The patient advocate is starting a " full > scale " investigation, and will get back to me either Tues > or Thurs.. (right now, I couldn't care less.. I didn't even > want to call her to begin with.. but if I hadn't the jerks > wouldn't even have informed my doctor of the results!!!!!) > > The patient advocate is an RN.. she advised TOTAL REST of > the right arm and hand until I see the surgeon.. > > Also, the " trauma " of the experience has caused my fibro to > flare worse than I can ever remember.. and the adrenal > insufficiency is making my body just about stopping function.. > I finally raised the prednisone last night and believe it or > not, LOST 4 # of fluid overnight... > > I can't type anymore.. I have been reading the e-mail.. > I appreciate your prayers.. and have been praying for you all. > > I am going to take the pain meds that the doctor prescribed > and try to sleep more to let my body recover a bit during > the weekend while my husband is home to make sure that I > wake up for meds and glucose monitoring, etc.. > > BTW, Ed's job has NOT improved.. the stress HE is under is > unbelievable as well.. > > Love you all > God bless you, > elaine > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2001 Report Share Posted January 21, 2001 Elaine, honey, you and Ed are in my prayers. What a nightmare.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2001 Report Share Posted January 21, 2001 Elaine, So sorry to read about your bad experience with the Day Surgery Crew. Sounds like a nightmare to us! Please accept our hugs ((((((((((( Elaine )))))))))). Try to rest your arm and relax if possible. Am praying for you and also for Ed. ~ Esther & Carol~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 Hi All, I think I need a pep talk on the benefits of LDN again, The past week has not been an uplifting experience for me. I was doing so well, and now I seem to be getting weaker and and less muscle strength. This may just be one of those temporary setbacks, I hope so, but I sure don't like the feeling. I recently went up to 4.5mg, and felt great for the first couple of days, then, not so well. I'm not a big exercise buff, but never have been. I do more exercise and stretches now than I have ever done, but still feel the weakness and muscle loss coming on. I try to do all the healthy things for myself (except I still smoke and don't always get the proper sleep) I know, Ican here you saying that's the cause...lol, and you are right, but it can't be the total cause, because I have always done these things and never had problems. I don't want to go back to the 3mg, because I felt I really needed to go to the 4.5 and I don't have the stiffness like I did before on 4.5mg. Everyone has been doing so well and I hate to sound like I'm complaining. I guess what really worries me, is that I may be having an exaserbation. The weather has been awful here in Ohio, not hot, but raining and the humidity is high. I go to bed every night with a storm and get up in the morning to one. The funny thing is, the bad weather hasn't been bothering til this week. Any thoughts? I always appreciate your help, and I could sure use some now. I will still stay on ldn forever. Without it, I could be worse. Love & Hugs Sally Quote Link to comment Share on other sites More sharing options...
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