Question - Wait or Not to Wait

August 8, 2003

Hi everyone!

In talking with my mom today, she basically told me she thinks I

should wait to go on LDN (or any drug) until/if I would have a 2nd

relapse.

My history is very brief, I'm 38, late March of this year, got Optic

Neuritis (ot a bad case), followed within 2 weeks with numbness in

feet and groin. Those went away within 2 months total for

everything, and I'm left with Lhermittes only when I get warm, and

then it's VERY mild.

I have never had any symptoms (looking back) that would lead me to

think I've had MS maybe for years. This is definitely the first

time it's happened.

Doc said last time, that it " could " be viral. I did have a headcold

probably 1 week after the Optic Neuritis started. I had no clue

about optic neuritis and wasn't sure why my eyeball was having pain,

then I got a headcold & kinda thought it was all related. But then

the numbess started.

Anyhow, to try & be brief - should I go on LDN now? or wait and see

if I ever have another attack? Doc said my chances as he sees it

now, are 40-50% MS. I do not want a spinal tap. He said if I did

have one and it was elevated, then that would put my risk upwards to

70-80% of MS, and if normal, more like 30%..Well, not gonna go there

just to find out that the percentages are changing.

I believe my mom is worried about me going on a drug for the rest of

my life that what if in 20 years they find out, it was actually

damaging something? I can see her point. I could just have had the

1 attack and maybe never have another, in which case, I am

needlessly taking drugs.

What do you think? I'm definitely leaning towards my LDN! I don't

wanna have another attack. She thinks that if I did just wait for

another episode that since this last episode was so very mild, my

next one would be too. This is not necessarily true and I told her

that.

Any opinions? I can see both sides of the coin!

Thanks,

Kathy

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