feedback requested

[Guest guest]

I just read an article given to me by a retired MD here in Ann Arbor about

the resurgence of histamine treatment for MS patients. I know that some of

you are using the Procarin patch but wondering also who is using the

following:

procarin

Swank diet

Adaptrin (aka Padma 28)

IV of AMP

IV of B12

DHEA

I also know that many of you use the transdermal histamine from Goodshape

(as I do).

All these treatments were discussed in the Townsend Letter (Oct. 2000)

along with medical references for clinical studies, quite interesting.

They also refer to much work being done for MS at the Tahoma Clinic

(http://www.tahoma-clinic.com/index.shtml) in WA, who believe MS is an

allergic reaction to either a food, something in the environment or a

provirus.

You can email me back directly or to the whole group of us -- whatever you

are more comfortable with. Thanks...

This is from the site: (it's long)

V. , M.D.

Medical Director

TAHOMA CLINIC

Histamine Patch

Published: The Virginia Pilot - Monday, April 10, 2000

Section: DAILY BREAK Source: ALEXANDRIA BERGER

PART III

Does histamine patch really help MS patients?

Third of six parts on alternative medicine: Today: the truth about

Procarin, the histamine patch: Does it really help MS?

To hundreds of multiple sclerosis patients fighting loss of strength,

Washington State registered nurse Elaine De Lack is their guardian angel.

Her Invention of the histamine patch Procarin to treat MS symptoms has

catapulated the 41 year-old from obscurity to celebrity.

De Lack never thought of fame when she was diagnosed with MS in 1988.

Instead, she struggled with daily unremitting fatigue, tingling and

numbness. Believing there had to be relief, she began to search medical

literature for answers.

In a 1944 paper written by Dr. Bayard T. Horton of the Mayo Clinic, she

read of his 17-year experience using " histamine. " He reported improvements

in 60 percent of 102 MS patients given intravenous infusions. From this,

De Lack developed her yet to be proved theory about histamine's role in

MS.

" Histamine is a substance that is found in the body, and acts as a

mediator, affecting many systems. I believe MS patients are deficient in

histamine, which accounts for their immune cells. It's involved in gastric

secretions. We think of histamine only when we get an allergic reaction.

But, it's a very potent stimulator in our body, " De Lack explains.

In MS, destruction of the myelin sheath or fat-like substance insulating

the nerves in the central nervous system and spinal cord takes place.

Called demyelinization, it causes nerve fibers to short circuit.

Simply, De Lack believes that histamine does not stop demyelinization or

cure the disease. Instead, she contends it stimulates repair by increasing

the production of the myelin, repleinshing the sheath.

De Lack first injected herself with a small amount of histamine twice a

day. Later she made it into a cream, adding caffeine as a catalyst to the

histamine and covering it with an adhensive patch. She patented its use

and licensed the rights to make it to independent compounding pharmacists.

Currently, more than 600 physicians are prescribing Procarin throughout

the U.S., Canada and Australia for approximately 1,600 MS patients. A

month's supply costs $250.

Not everyone who tries Procarin gets results. In the first U.S. clinical

trial of Procarin's effectiveness conducted on 55 MS patients by Dr.

Gillson and Dr. at the Tahoma Clinic in Kent,

Wash., they reported 70 percent responded favorably.

Thirty-five percent had improvements in three or more areas. These

included extremity strength, balance, bladder control, fatigue and

cognitive functioning. Another 35 percent reported improvements in at

least one area. The gains were sustained for the length of the three-month

trial period.

There are variables as well. MS symptoms waxes and wanes, making it

difficult, to determine the true effectiveness of Procarin. Some patients,

who report no response are also not heat sensitive, a key MS symptom,

raising the question of diagnosis. Some MS patients may not lack

histamine, while those responding may have a histamine deficiency. This

may be an additional symptom of MS, but not necessarily indicative of it.

Steve , a colleague at The Seattle Times, who fought MS for 18

years, reports, " Sure, I tried it. The first week I got up out of my

wheelchair and walked to the bathroom. After that nothing happened. Other

people swear by it. "

Deisler, 28, from Port Orchard, Wash., does. Diagnosed in 1997 with

relapsing-remitting MS, the patch has improved her symptoms. " It's

definitely helped. I can shower by myself now. I used to cry once a day.

Now, I cry once a month, " she says.

Greylyn Wanzer, 43, from Battle Creek, Mich., uses two patches a day.

Wanzer recently walked up flight of stairs for the first time in five

years. He credits Procarin, which can be used together with drugs that

slow disease progression.

It would be nice to validate or refute De Lack's theories scientifically.

As Gillson, and De Lack wrote, " We feel this therapy should be

studied in controlled trials. "

As the numbers of users mount, is anyone at the National Institutes of

Health curious?

* Write to andria Berger, c/o The Virginia-Pilot,

150 W. Brambleton Avenue, Norfolk, Va., 23510

* E-mail her at alex@...

Pioneers in combining natural treatments with conventional medicine.

Copyright 2000 by Tahoma Clinic,

[Guest guest]

Hi Elliot

They both went to the Bio Medical Clinic in TJ, Mexico. Money is always my

problem however, but I understand it is not really expensive and they let you

make payments. Also you have to pay only once for your lifetime as I understand

it. Better to check on that however.

There is a couple pages that lists people you can call that have been to

different places or have done different therapies.

http://cancercontrolsociety.com/patients2.htm

I found it kind of interesting and called a few people on there. Tell me what

you think.

Pam

breathedeepnow <aug20@...> wrote:

Hi, Pam.

Where did they do or where did they get the Hoxsey treatment?

I looked into it a year or so ago, and was able to find just a couple

of Hoxsey-like products being sold.

The first person/website I tried that was selling it, I was very

unhappy with the attitude of the seller. Very poor communication---so

bad that I was never even able to get any of the formula.

The second place was eBay. Good communication, and I was able to get

a bottle of the Hoxsey-like formula, but for me personally it did no

good whatsoever.

So I am interested to know where these women went for Hoxsey

treatment, or where they were able to obtain the formula.

Thanks,

Elliot

---------------------------------

Be a better Heartthrob. Get better relationship answers from someone who knows.

Answers - Check it out.

[Guest guest]

Most interesting list, Pam! Thanks for it! I may have seen it a long

time ago, but had certainly forgotten about it. Sad to see so many

breast cancers. " The System " certainly needs to redouble its efforts

to find out the CAUSES of breast cancer instead of just doing early

diagnosis and treatment.

It just occurred to me---duuh---that although I have mentioned

several times that there ought to be a central place where people

who've had remissions or who are cured could send filled out

questionaires so that it could be seen what similar things they have

been doing, there ALSO ought to be a questionaire people diagnosed

with cancer fill out that concerns what they were doing, how they

were living PRIOR to being diagnosed with cancer.

I have checked the people on the list who were treated for lymphoma.

I might speak with a couple of them.

Thanks again!

Elliot