Guest guest Posted August 17, 2003 Report Share Posted August 17, 2003 These are not "small" things , these are awesome things....only those of us with this dang disease would realize that, and appreciate it. The little things make a big difference in our everyday lives! I can feel your happiness and excitement in your post, and I love hearing about how awesome people are doing on this wonderful drug. Myself am on day 20, and the change has been incredible.....never thought I'd see the day when the "old me" was back. My husband just shakes his head in disbelief at all that I have been doing. This past week in particular I have been on my feet at least 12 hours out of the day. My garden is all ready now and I have been canning like a maniac. Also we are renovating our house, and I've been doing ALL the painting myself.....up and down the ladder.....up and down the stairs, it's amazing. I couldn't have done even close to what I've been doing 20 days ago. Hubby and I were dicussing all the changes I've been going through in the last 20 days, and I really wanted to cry, I was just sooooooooo happy. I am sooper dooper happy for you , keep on enjoying those great days!! Kerry ----- Original Message ----- From: S.Czap low dose naltrexone Sent: Sunday, August 17, 2003 10:01 AM Subject: [low dose naltrexone] Update, Day 2 Hi Guys and Sweeties too, Second day arrived and noticed two phenomenal things have happened! First of all my feet have been totally numb for the last three years (have to wear shoes to feel where I'm going!) but upon first steps this morning I realized I could actually feel my feet!!!!!!!! This may not be major to some people, but you try walking barefoot and not knowing where your feet are, haha! Second wonder, my husband says I no longer sound like the "French upstairs maid!" I thought after saying a few things today that I actually sounded like ME for a change, but had to hear it from someone else! (cheez, gonna miss that French Broad, she was somethin' else!) We are also watching my walking, which seems to have improved dramatically, haven't fallen for over a day and a half.........new record for me since I thought I was just such a klutz. These are all "small" items I'm sure to most people, but they are really "biggies" to us..............some things just can't be imagined and trust me just to be able to talk like a normal person wants to make me cry! Will keep you posted, can't imagine how much more I can regain, these things are so wonderful. Check in later. Hugs to All, C & Toby the W onder Dog Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2003 Report Share Posted August 17, 2003 Great Glad to hear that you are doing so good. Keep up the good works.Marie ----- Original Message ----- From: S.Czap low dose naltrexone Sent: Sunday, August 17, 2003 1:01 PM Subject: [low dose naltrexone] Update, Day 2 Hi Guys and Sweeties too, Second day arrived and noticed two phenomenal things have happened! First of all my feet have been totally numb for the last three years (have to wear shoes to feel where I'm going!) but upon first steps this morning I realized I could actually feel my feet!!!!!!!! This may not be major to some people, but you try walking barefoot and not knowing where your feet are, haha! Second wonder, my husband says I no longer sound like the "French upstairs maid!" I thought after saying a few things today that I actually sounded like ME for a change, but had to hear it from someone else! (cheez, gonna miss that French Broad, she was somethin' else!) We are also watching my walking, which seems to have improved dramatically, haven't fallen for over a day and a half.........new record for me since I thought I was just such a klutz. These are all "small" items I'm sure to most people, but they are really "biggies" to us..............some things just can't be imagined and trust me just to be able to talk like a normal person wants to make me cry! Will keep you posted, can't imagine how much more I can regain, these things are so wonderful. Check in later. Hugs to All, C & Toby the W onder Dog Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2003 Report Share Posted August 17, 2003 That's how I felt for a while.. when people were commenting to me, I got the idea they weren't really happy, that some of them were actually wishing me harm. Don't know if I it's just an illusion or I was really reading between the lines correctly... but that's what it felt like. Then there's some other people who think I can do whatever they want me to do, when they want, and in the amount of time they think it should be. Then again, I think they thought that even before LDN. They just never got it that if I couldn't do it, that was it, nothing they would say or think would change the facts. Still quite an adventure. ----- Original Message ----- From: Kerry Guy Du Monte Cc: low dose naltrexone ; spotlight_ldn Sent: Sunday, August 17, 2003 17:21 Subject: Re: [low dose naltrexone] Update, Day 2 Sometimes I think she almost wants me to feel as bad as she does, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2003 Report Share Posted August 17, 2003 It is superfantasmagorical to be living again Guy!! I never thought that such simple things would make me sooooooo happy! The last year and a half has been a living hell, but I really do feel like I have my life back...I hear that so much in here, but it's so true. I just want everyone to feel like I do. My best friend has had MS for 17 years, she's been in a wheelchair for the last two. She is very dependent on her hubby. I would love her to try ldn, but she won't hear of it. She is not on any kind of drug whatsoever, but she has given up. All she ever talks about is death and dying...it's driving all of us nuts. She has nothing to lose trying ldn. Right now she really can't afford to get any worse, or she could be nursing home bound, and I would hate to see that happen, especially for no reason. You have to understand my friend, she's the type of person, that if it's not HER idea, then it's a bad idea lol. I'm tired of fighting with her, but the part that really hurts is that she's not even happy for me....she just ignores me when I tell her how good I'm feeling and how much I get done in a day. Sometimes I think she almost wants me to feel as bad as she does, but that ain't gonna happen, I have toooo much living to do. For now, I've just dropped the subject with her, the next move is hers. She is coming over for supper tonight, she's going to be amazed with all the stuff I have done around here, but she won't say a word lol. Actually I used to help out with her care before my dx, I would go over and do cleaning and baking for her, wonder what she would think if I started doing that again!! Oh well, not much I can do about this, it's up to her. I'm just happy that I've found ldn and all of you!!!!!!!!!! Kerry ----- Original Message ----- From: Guy Du Monte Kerry Cc: low dose naltrexone ; spotlight_ldn Sent: Sunday, August 17, 2003 11:03 AM Subject: Re: [low dose naltrexone] Update, Day 2 Kerry, You like myself are living proof that "Miracles DO happen." It is so wonderful to hear of your success with LDN. Keep postin, and encouraging others. With all the negative that comes with MS, the LDN success stories are a truly bright spot in our days. Keep paintin, gardening, and postin. Isn't it fantastic to feel like living again? Hugs, Guy Quote Link to comment Share on other sites More sharing options...
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