Thanks!

August 17, 2003

Hi Everyone,

I have never written before, but been reading for the last couple of weeks.

I know there is a web-site for this so I hope to be brief. I have had MS

for about 9 yrs. Took Avonex for awhile. Got terribly sick at times with

flu-like symptoms. Did the Copaxone thing too. Hated every minute of it,

and felt worse all the time. My neuro is on the local board for the MS

Society, and said that I would never feel better, but may slow the

progression down. Don't want to live to 100 and feel horrible everyday.

Some of the symptoms are: numb feet and legs, difficulty walking any

distance, balance, horrible fatigue, speech, handwriting. I started

Prokarin cream last week from a Compounding Pharmacy. Wrote an email to my

Dr. and asked for LDN. He said he had never heard of it, and so no! My

appt. with him is not until Dec. and I don't want to wait. Will write him

AGAIN tomorrow and then go from there. I can relate to Jeff although I don't

understand or agree. I am very careful and check things out too, but you

all have written such wonderful reports and really have nothing to gain! I

will take your word over anyone that doesn't have MS and deal with the

affects. I do have a few questions?

1. I understand (correct or not?) that Prokarin is for the symptoms and LDN

is for progression?

2. The price, which is wonderful ranges from $18 to $38. or course I want

the good stuff but at the best price

3. You start with 3mg and take it between 9:00PM and 2:00am?

4. You may have results, you may not but its still helping in the

progression?

If I can't get a script, may need help finding someone and a good pharmacy.

Thanks so much for being there and " giving me hope. " You are all my hero's!

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