Re: LDN Will it ever make a difference?

[Guest guest]

I didn't feel better immediately but after a couple weeks seemed to feel better. I've found mine to be more of a roller coaster - I feel better for a while than I don't. I've been on LDN for almost 3 months. Last week, I went back up to 4.5 mg and I'm going to stay there for a while and see if the leg stiffness passes after a period of time. Stiffness was the biggest drawback with the higher dose but I don't think I gave it a chance. I seem to feel better on the higher dose, however.

-----Original Message-----From: blairdardieblues [mailto:blairdardieblues@...]Sent: Monday, July 21, 2003 9:18 AMlow dose naltrexone Subject: [low dose naltrexone] LDN Will it ever make a difference?

I've now been taking LDN 3.5mg, for ten weeks. The first month the fatigue was even worse...and I had the nightmares from hell. That's settled now, but the fatigue really hasn't got much better. I really don't feel any different than prior to starting LDN. Do I keep on taking it? I did read somewhere?? that LDN wasn't primarily to improve symptoms, but to stablise the MS ( I'm secondary progressive by the way ) Anyone else found it took time for LDN to have an effect on day to day symptoms? Thanks, Kate

[Guest guest]

Hi Kate, Have you tried upping the dosage? It seems Dr. Bihari

recommends 4.5mg as a standard dose, and lowering it if we have

problems. I started at 4.5 and weathered some leg stiffness that

went away after a few weeks. But I noticed an increase in energy

right away. My energy has been up and down since then, as all ms

symptoms tend to do. But my ups have been up-er and the downs

haven't been as low since I started ldn. Please hang in there and

don't hesitate to experiment with the dosage. Sue

> I've now been taking LDN 3.5mg, for ten weeks. The first month the

> fatigue was even worse...and I had the nightmares from hell. That's

> settled now, but the fatigue really hasn't got much better. I

really

> don't feel any different than prior to starting LDN. Do I keep on

> taking it? I did read somewhere?? that LDN wasn't primarily to

> improve symptoms, but to stablise the MS ( I'm secondary

progressive

> by the way ) Anyone else found it took time for LDN to have an

effect

> on day to day symptoms? Thanks, Kate