Re: HOW CONVINCE GP TO GIVE ME LDN?

July 21, 2003

Oh boy Pete, you are starting to sound like a pin cushion or something. I

don't know much about MS testing but I'd say that you've had your fair

share. It is quite possible that you have something other then MS. I think I

agree with the doc that said you've had enough tests. Please be careful with

taking too many x-rays. That may just turn out to be the most dangerous

part. X-rays are like russian roulette really. Don't think I will be getting

any more if at all possible. You might be able to find a doctor willing to

give you a prescription for the LDN. It is so completely harmless at this

low dose. Something tells me that it might just help you. Just wish I had

more words of encouragement for ya. Wondering if you shouldn't try to find a

different facility. They will hopefully take a look at all these tests

you've already done and make a determination that way? Joyce.

From: " feeltherathe "

low dose naltrexone

Subject: [low dose naltrexone] HOW CONVINCE GP TO GIVE ME LDN?

Date: Sun, 20 Jul 2003 23:18:04 -0000

Well had my last neruo exam.July 17th 2003.Been in limbo land since

Feb 1999.From Feb 1999 till the present I have had 5 mri's of the

brain.Last mri of the brain was done.June 27th 2003 with

contrast.Well that mri came back negative no lesions.Just show

bilateral mastoid sinus disease.No lesions at all.Had mri's done of

my neck from base of brain to the c-7.and mri done of the lower

back.That was done on Arpil 11 2003.Well we looked at those films

also.No lesions and no swelling of the spinal cord.My neruo science

doctor stated lesions show on the spinal cord.Well they were

negative.Before these I have had 3 other mri's of the brain.A spinal

tap there fun.Nerve tests.Blood work out the butt.Urine test.Man I'm

just tired of all these tests.All my tests are negative.I also had 5

different complete neruo exams.Passed all them also.So my new doctor

now which is my 4th neruo doc.Stated I dont have ms and to get it

out of my mind.Well doc tell my body that.He's been working with ms

people for over 15+ years.He leads the neruo science depart in his

practice.There 8 others under him.Two of the 8 are recommended by

the nmss.Well he reviewed all my tests since 1999 till now.And

stated he can't find nothing neruo wrong with me at this point.And

all the tests I have had for ms are clear and negative.Plus my neruo

exam passed with flying colors.So why is it that I still have

burning,numbness all over my body,weakness all over my body.muscle

jerks and muscle twitched all over my body.Hand tremors leg's and

arm tremors.Hmmmmmmmmmmmmmmmmmm I guess its all in my

head.NOT!!!!!!!!! So now were going to do a nerve test where they

put needles in my arms and legs and i dont know where else.Is it

possible to have all these tests with the mri's the spinal tap neuro

exams and so.Is it possible to still have MS with all these tests

being negative in the last 4.5 years.I'm just screwed here.I mean I

get burning and numbness in my mouth on my tongue in my private

areas.Now he wants to check me for Guillian Barre disease.But I read

up on that I have the sx's but my reflexs are in working order.In

that disease it say's your reflexs are next to nill in

responding.Need help here.I'll ask for another spinal tap,a nerve

bio test,and what else maybe another mri of my spine with

contrast.Doc stated I dont need any more tests.I had enough

tests.Well I'm getting no where fast.Now heres another problem.How

can I get my GP to give me a script of LDN tomorrow?I want to take

something anything to help me a little bit...............Pete

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July 21, 2003

Hi Pete,Went through a lot of that for the first 10 years of going to

doctors. they thought that I was a nut case. I even started feeling like a

nut case. they even sent me to a phychiatrist. he told me that I was

holding back something. That I looked to healthy to be sick. Finally a very

smart doctor told me that she thought that I had MS and proceded to prove

it. I was really happy when I was told that I had MS cause now I knew that

I wasn't crazy. Now there was a name for my problems and I wasn't imagening

all of this. That was a bad 10 years.

As far as getting LDN, you would be better off calling Dr. Bihari's office

in NY. at 212-929-4196. He actually takes LDn himself as a maintenace.

His family has a lot of cancer and he is trying to prevent himself from

getting cancer. Good luck

Marie

----- Original Message -----

From: " feeltherathe " <feeltherathe@...>

Sent: Sunday, July 20, 2003 7:18 PM

Subject: [low dose naltrexone] HOW CONVINCE GP TO GIVE ME LDN?

> Well had my last neruo exam.July 17th 2003.Been in limbo land since

> Feb 1999.From Feb 1999 till the present I have had 5 mri's of the

> brain.Last mri of the brain was done.June 27th 2003 with

> contrast.Well that mri came back negative no lesions.Just show

> bilateral mastoid sinus disease.No lesions at all.Had mri's done of

> my neck from base of brain to the c-7.and mri done of the lower

> back.That was done on Arpil 11 2003.Well we looked at those films

> also.No lesions and no swelling of the spinal cord.My neruo science

> doctor stated lesions show on the spinal cord.Well they were

> negative.Before these I have had 3 other mri's of the brain.A spinal

> tap there fun.Nerve tests.Blood work out the butt.Urine test.Man I'm

> just tired of all these tests.All my tests are negative.I also had 5

> different complete neruo exams.Passed all them also.So my new doctor

> now which is my 4th neruo doc.Stated I dont have ms and to get it

> out of my mind.Well doc tell my body that.He's been working with ms

> people for over 15+ years.He leads the neruo science depart in his

> practice.There 8 others under him.Two of the 8 are recommended by

> the nmss.Well he reviewed all my tests since 1999 till now.And

> stated he can't find nothing neruo wrong with me at this point.And

> all the tests I have had for ms are clear and negative.Plus my neruo

> exam passed with flying colors.So why is it that I still have

> burning,numbness all over my body,weakness all over my body.muscle

> jerks and muscle twitched all over my body.Hand tremors leg's and

> arm tremors.Hmmmmmmmmmmmmmmmmmm I guess its all in my

> head.NOT!!!!!!!!! So now were going to do a nerve test where they

> put needles in my arms and legs and i dont know where else.Is it

> possible to have all these tests with the mri's the spinal tap neuro

> exams and so.Is it possible to still have MS with all these tests

> being negative in the last 4.5 years.I'm just screwed here.I mean I

> get burning and numbness in my mouth on my tongue in my private

> areas.Now he wants to check me for Guillian Barre disease.But I read

> up on that I have the sx's but my reflexs are in working order.In

> that disease it say's your reflexs are next to nill in

> responding.Need help here.I'll ask for another spinal tap,a nerve

> bio test,and what else maybe another mri of my spine with

> contrast.Doc stated I dont need any more tests.I had enough

> tests.Well I'm getting no where fast.Now heres another problem.How

> can I get my GP to give me a script of LDN tomorrow?I want to take

> something anything to help me a little bit...............Pete

>

April 30, 2008

Has anyone checked you for b-12 deficiency? That mimmics MS.

>

> Oh boy Pete, you are starting to sound like a pin cushion or something. I

> don't know much about MS testing but I'd say that you've had your fair

> share. It is quite possible that you have something other then MS. I think I

> agree with the doc that said you've had enough tests. Please be careful with

> taking too many x-rays. That may just turn out to be the most dangerous

> part. X-rays are like russian roulette really. Don't think I will be getting

> any more if at all possible. You might be able to find a doctor willing to

> give you a prescription for the LDN. It is so completely harmless at this

> low dose. Something tells me that it might just help you. Just wish I had

> more words of encouragement for ya. Wondering if you shouldn't try to find a

> different facility. They will hopefully take a look at all these tests

> you've already done and make a determination that way? Joyce.

>

> From: " feeltherathe "

> low dose naltrexone

> Subject: [low dose naltrexone] HOW CONVINCE GP TO GIVE ME LDN?

> Date: Sun, 20 Jul 2003 23:18:04 -0000