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Re: RE: proof

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> Does the article say anything about ABs not being able to rid the

> body of the bacteria?

Lyra, This is going to sound harsh and its not meant to be. You dont want

to take anyones word for anything, and I dont blame you. So why dont you

research your questions yourself? Didnt Larry give the address for this

study? Pepi

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Lyra,

That's the $64,000.00 question. Science doesn't know why the symptom

perpetuate. Science hasn't figured out what or when the cetes exit the T

cells, how to get them out or what kills them when they are out (similar to

aids). Obviously there seems to be reactions to virulent proteins from

different body systems but how the exposure occurs, no one has figured out.

Abx must have something to do with it. I think it's a matter of timing.

When they do, wahla, a cure.

Larry NV

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  • 2 years later...

Oh boy Chris..good luck finding the poor souls that would not be on the LDN.

I suspect that not one member of this group would be willing to give it up

would you? Joyce.

From: " Sullivan " <chris_sullivan@...>

<low dose naltrexone >

Subject: [low dose naltrexone] RE: proof

Date: Sun, 17 Aug 2003 13:36:08 -0400

Proof will only come from a study which is approved

by the scientific community. I repeat my question of yesterday:

Why can't a drug trial be completely run by volunteers, and through

self-funding?

This will take time (2-3 years). A group of volunteers is needed, both

as a placebo group and the treated group. The numbers should be above 500.

There needs to be an accepted method of choosing who is who, and volunteers

to administer the information collection.

There needs to be testing. MRIs are accepted as a diagnostic tool

and as a means of evaluating progression. The " burden of lesions "

is examined. Gadolinium is used to determine whether lesions are

" active " or not. There is a scale for disability called ESS which

is used to determine whether there has been disability progression.

I would add to the above that there is lacking a means of determining

a person's own assessment of things like balance, fatigue level, numbness,

sensitivity to heat, etc. These can be addressed by surveys but the results

may not be acceptable as proof of anything. There are objective

measurements

that can be done for things like strength, response times, reflex response

times, fields of vision, eye abilities, etc. There are tests that can be

run by physiologists, optometrists, occupational and other therapists.

What is intended to be proven? That LDN stops MS progression? In RRMS,

CPMS,

SPMS, PPMS? That further healing can take place over a period of years?

Under

what other conditions, and with what dietary and medical regimes? What are

the

" exit criteria " ? In other words, when is enough enough?

I figure the testing is the main expense, as it all has to be done by

professionals. A neurologist must evaluate the results. Does anyone

here know of doctors, nurses, and therapists who might volunteer for

such an effort? Some money would be needed for MRIs.

-Sullivan

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