Chronic Lympocitic Leukemia

[Guest guest]

Dear Bill:

Thanks for your response. I'm surprised at you having so much trouble with

fatigue and infections at the WBC level you are at.

My WBC started up in 1995 and I was positively diagnosed with CLL in

February, 1998, when my WBC hit 22.2k. I have never suffered the fatigue

you described until the past 6+ months. Illnesses and infections have been

nearly non-existent. I had sinus problems frequently (every time the wind

blew dust) when living in southeast Arizona but none since I came to Grand

Junction, CO. I had a light case of the flu once but knocked it quick with

Sambucol, a special black elderberry extract from Israel.

I continue to work 50-60 hrs per 5-day week eventho it has been a struggle

the last 6+ months. The main cause for my fatigue appears to be the low RBC

and hemoglobin won't carry enough oxygen to my body. I have supplemented

the oxygen problem some by taking hydrogen peroxide IV's. The IV's

certainly helped the severe leg and foot cramps I was having.

I hadn't noticed any improvements other than better, deeper sleep since I

started taking LDN until this last Saturday (7/5/03). When I got up

Saturday morning I noticed that I felt different somehow but couldn't really

pin it down. However, by the end of the day I was definitely identifying

that I had much more energy and stamina. I worked all day remodeling our

guest bathroom and still had energy left. A great feeling!!!!! I still

have energy today and am feeling great.

I am currently scheduled with my oncologist for this coming Wednesday to get

a blood transfusion to boost my RBC and platelets. However, if I'm still

feeling this good by then, I'm going to STRONGLY evaluate the need for a

transfusion at this time. I'm sure that will " thrill " her closed mind since

she's not in favor of me taking LDN anyway.

Have a good day and keep in tough.

Noland

----- Original Message -----

From: " Bill Blackford " <bblackford@...>

" nrdurnell " <rangeus50@...>

Sent: Thursday, July 03, 2003 3:49 PM

Subject: Re: LDN is truly Amazing stuff to me !!! Chronic Lympocitic

Leukemia

> Hi Noland,

> I have taken ldn for almost one year. My benefits are an increase in

energy

> and less fatigue. I also have a decrease in low grade chronic ENT

> infections. I used to need antibiotics every 2-3 months ,but hardly at all

> since ldn. 7 years since diagnosis and my WBC is still moderate. It was

29k

> a year ago and 21k in May 03. My other counts are unchanged normal range.

> Guess I am a smoulderer. Not much hard data here but I do feel better than

I

> have in years. Best wishes, Bill

>

> Bill Blackford

> Blackford Studios

> 2700 N. Holloway

> Bethany, Ok. 73008

> (405) 495-1975

> bblackford@...

> ----- Original Message -----

> From: " nrdurnell " <rangeus50@...>

> " artisaniam " <bblackford@...>

> Sent: Thursday, July 03, 2003 11:00 AM

> Subject: Re: LDN is truly Amazing stuff to me !!! Chronic Lympocitic

> Leukemia

>

>

> > Hello Bill:

> >

> > I found your e-mail on the LDN chat room and am wondering if you are

> > still taking the LDN for your Chronic Lymphocytic Leukemia (CLL). If

> > so, what improvements have you made since February, 2003? WBC

> > counts? RBC and hemoglobin counts?

> >

> > I am extremely interested since I have CLL and started LDN about 3

> > weeks ago. I currently have a WBC of 190k, RBC of 3.46 and

> > hemoglobin of 8.4.

> >

> > Looking forward to hearing from you.

> >

> > Noland