Guest guest Posted July 7, 2003 Report Share Posted July 7, 2003 HI MY NAME IS PAT I HAVE HAD MS SINCE 1989 AND ITS GETTING WORSE.MY NERO DOCTOR HAS BEEN GOOD TO ME I AM PRESENTLY TAKING COPAXONE I HAVE ASKED MY NERO ABOUT LDN I EVEN GAVE HIM SOME FACTS ABOUT IT OFF THE LDN WEB SITE BUT HE DOSENT WANT TO PRESCRIBE IT FOR ME I AM AT THE END OF MY ROPE.I LIVE NEAR FLORENCE SOUTH CAROLINA IF YOU KNOW OF ANY DOCTOR IN MY AREA THAT WOULD PRESCRIBE THE LDN FOR ME WOULD YOU PLEASE LET ME KNOW MY EMAIL ADDRESS IS AS FOLLOWS yellowroselatta@... thank you for your time Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2003 Report Share Posted July 7, 2003 HI there Pat, I don't personally know any docs in that particular area but believe me there is a way to get it prescribed no matter where you live. What kind of doctors have you tried? If they are all neuros, well that is the problem cuz none of them, or I should say most of them will not go out on a limb with the whole situation. Their mindset is that we should be on one of the ABCR's period. End of discussion. Well you can find a GP or an endocronologist that will work with you much easier because they are not so brainwashed to think that is the only way to go. Try one of the www.acam.com doctors or the www.lef.org under innovatitive doctors. You'd be surprised how many doctors out there realize there conventional medicine is not always the way to go and will work with you. After all, this is your life. I have decided that at this point in my life I do not even need a neuro. I have a wonderful forward thinking endocronologist that was onboard with me from day one. I think I'll stay with him. Are you not getting the results that you would like with the Copaxone? I personally feel that the LDN is the way to go but am always curious about why a person wants to go off of one of the ABCR's. I'd love to see the status of all of you after a given period of time as to how it compares as far as symptoms. Good luck Pat and please come back with any questions you have. I'm sure someone here will be able to help you. Joyce. From: To: Subject: [low dose naltrexone] I NEED SOME HELP Date: Mon, 7 Jul 2003 16:44:08 -0400 HI MY NAME IS PAT I HAVE HAD MS SINCE 1989 AND ITS GETTING WORSE.MY NERO DOCTOR HAS BEEN GOOD TO ME I AM PRESENTLY TAKING COPAXONE I HAVE ASKED MY NERO ABOUT LDN I EVEN GAVE HIM SOME FACTS ABOUT IT OFF THE LDN WEB SITE BUT HE DOSENT WANT TO PRESCRIBE IT FOR ME I AM AT THE END OF MY ROPE.I LIVE NEAR FLORENCE SOUTH CAROLINA IF YOU KNOW OF ANY DOCTOR IN MY AREA THAT WOULD PRESCRIBE THE LDN FOR ME WOULD YOU PLEASE LET ME KNOW MY EMAIL ADDRESS IS AS FOLLOWS yellowroselatta@... thank you for your time _________________________________________________________________ Add photos to your messages with MSN 8. Get 2 months FREE*. http://join.msn.com/?page=features/featuredemail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2003 Report Share Posted July 7, 2003 I recently saw my nuro. He was impressed when he saw the condition I am in and when I told him I had stopped taking all drugs except LDN. I quit the Copaxone after I realized I was continuing to get worse with out having a relapse (secondary progression???). The side affects of Copaxone include muscle stiffness and weakness. (Why take drug that has side affects the same as MS is?) My nuro requested the URL to check LDN out himself. I just saw my GP, whom had had a conference with my nuro (I'm impressed). When I saw my nuro we planned a second MRI for November (a year since the first, when I was DX. My nuro said not to expect miracles and asked if I would stay on LDN even if the MRI didn't show improvement. I will stay on the LDN, I know I am improving. The MRI may be confused by six months on Copaxone in which I was still progressing. I do hope I show enough improvment (MRI) so my nuro will consider giving LDN to others in need! ----- Original Message ----- From: wkendz 32 yellowroselatta@... Cc: low dose naltrexone Sent: Monday, July 07, 2003 5:05 PM Subject: Re: [low dose naltrexone] I NEED SOME HELP HI there Pat,I don't personally know any docs in that particular area but believe me there is a way to get it prescribed no matter where you live. What kind of doctors have you tried? If they are all neuros, well that is the problem cuz none of them, or I should say most of them will not go out on a limb with the whole situation. Their mindset is that we should be on one of the ABCR's period. End of discussion. Well you can find a GP or an endocronologist that will work with you much easier because they are not so brainwashed to think that is the only way to go. Try one of the www.acam.com doctors or the www.lef.org under innovatitive doctors. You'd be surprised how many doctors out there realize there conventional medicine is not always the way to go and will work with you. After all, this is your life. I have decided that at this point in my life I do not even need a neuro. I have a wonderful forward thinking endocronologist that was onboard with me from day one. I think I'll stay with him.Are you not getting the results that you would like with the Copaxone? I personally feel that the LDN is the way to go but am always curious about why a person wants to go off of one of the ABCR's. I'd love to see the status of all of you after a given period of time as to how it compares as far as symptoms. Good luck Pat and please come back with any questions you have. I'm sure someone here will be able to help you. Joyce.From:To:Subject: [low dose naltrexone] I NEED SOME HELPDate: Mon, 7 Jul 2003 16:44:08 -0400HIMY NAME IS PAT I HAVE HAD MS SINCE 1989 AND ITS GETTING WORSE.MY NERO DOCTOR HAS BEEN GOOD TO ME I AM PRESENTLY TAKING COPAXONE I HAVE ASKED MY NERO ABOUT LDN I EVEN GAVE HIM SOME FACTS ABOUT IT OFF THE LDN WEB SITE BUT HE DOSENT WANT TO PRESCRIBE IT FOR ME I AM AT THE END OF MY ROPE.I LIVE NEAR FLORENCE SOUTH CAROLINA IF YOU KNOW OF ANY DOCTOR IN MY AREA THAT WOULD PRESCRIBE THE LDN FOR ME WOULD YOU PLEASE LET ME KNOW MY EMAIL ADDRESS IS AS FOLLOWSyellowroselatta@...thank you for your time_________________________________________________________________Add photos to your messages with MSN 8. Get 2 months FREE*. http://join.msn.com/?page=features/featuredemail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2003 Report Share Posted July 8, 2003 Hi Lin, Great news!!! Thanks for sharing that info. So glad that things are going so well for you. From: "Mylinda Riker" "wkendz 32" Subject: Re: [low dose naltrexone] I NEED SOME HELP Date: Tue, 8 Jul 2003 11:56:30 -0400 hi Joyce, I was on rebif for almost a year and stopped.it was making me worse. i went on the ldn and IM improving every day. lin ----- Original Message ----- From: wkendz 32 yellowroselatta@... Cc: low dose naltrexone Sent: Monday, July 07, 2003 5:05 PM Subject: Re: [low dose naltrexone] I NEED SOME HELP HI there Pat, I don't personally know any docs in that particular area but believe me there is a way to get it prescribed no matter where you live. What kind of doctors have you tried? If they are all neuros, well that is the problem cuz none of them, or I should say most of them will not go out on a limb with the whole situation. Their mindset is that we should be on one of the ABCR's period. End of discussion. Well you can find a GP or an endocronologist that will work with you much easier because they are not so brainwashed to think that is the only way to go. Try one of the www.acam.com doctors or the www.lef.org under innovatitive doctors. You'd be surprised how many doctors out there realize there conventional medicine is not always the way to go and will work with you. After all, this is your life. I have decided that at this point in my life I do not even need a neuro. I have a wonderful forward thinking endocronologist that was onboard with me from day one. I think I'll stay with him. Are you not getting the results that you would like with the Copaxone? I personally feel that the LDN is the way to go but am always curious about why a person wants to go off of one of the ABCR's. I'd love to see the status of all of you after a given period of time as to how it compares as far as symptoms. Good luck Pat and please come back with any questions you have. I'm sure someone here will be able to help you. Joyce. From: Subject: [low dose naltrexone] I NEED SOME HELP Date: Mon, 7 Jul 2003 16:44:08 -0400 HI MY NAME IS PAT I HAVE HAD MS SINCE 1989 AND ITS GETTING WORSE.MY NERO DOCTOR HAS BEEN GOOD TO ME I AM PRESENTLY TAKING COPAXONE I HAVE ASKED MY NERO ABOUT LDN I EVEN GAVE HIM SOME FACTS ABOUT IT OFF THE LDN WEB SITE BUT HE DOSENT WANT TO PRESCRIBE IT FOR ME I AM AT THE END OF MY ROPE.I LIVE NEAR FLORENCE SOUTH CAROLINA IF YOU KNOW OF ANY DOCTOR IN MY AREA THAT WOULD PRESCRIBE THE LDN FOR ME WOULD YOU PLEASE LET ME KNOW MY EMAIL ADDRESS IS AS FOLLOWS yellowroselatta@... thank you for your time _________________________________________________________________ Add photos to your messages with MSN 8. Get 2 months FREE*. http://join.msn.com/?page=features/featuredemail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2005 Report Share Posted April 12, 2005 Arlene, don't get crazy. You can either spill some out or skip. The first time I could not remember whether I took my pill or not, I remembered Dr. B's words...... better to skip than risk taking twice. So...one night is fine to miss, 2 nights, maybe not. I would spill some out of the 6 and take if it is more than a day. The 6mgs was probably for me and they sent it to you(.lol ) Kiki Quote Link to comment Share on other sites More sharing options...
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