Wait for the Midnight Hour - LDN Peak Time

[Guest guest]

I have learned a lot from this group over the past several months - so much, in fact, that my wife, who has MS, and I were able to persuade her neuro to take her off the interferons and allow her to try LDN. (Some neuros are open-minded). She was on Avonex for four years and tried Rebif twice before taking herself off it. During the four years on these drugs she has gotten slowly, but steadily, worse. And she felt bad all the time. The first night she took LDN there was a change. She got up to go to the bathroom and was walking so well and felt so improved that she came downstairs just to see what she could do with her hands, etc. I could see the next morning how excited she was. I shared her excitement. And a little disbelief. And guarded optimism. Well, here's what I'm wondering about. She has now been on LDN for a little over a week. She always gets up in the middle of the night to go to the bathroom. She feels so good during this time that she stays up for a couple of hours to enjoy the feeling because she can use her arms and legs better than she has been able to in years. She then goes back to bed and sleeps through until morning. Mornings are now better than they used to be, but she wears down as the day goes on. This seems to be a developing pattern. I'm wondering if anyone else out there has had this reaction to LDN. I understand the physiology of how LDN works, what it does, and why it is taken at bed time. But it seems like, for my wife at least, her very best time in a 24-hour day is anything but optimal. If we had our druthers, this multi-hour peak time would come mid-day rather than in the middle of the night. We're hoping, of course, that the window of improvement will stretch out and grow over time, and we're curious to know if that is a realistic expectation. Thanks for any input on our situation. -AlFrom: Burnham [mailto: david@...]yellowroselatta@..., wkendz32@...Cc: low dose naltrexone Date: Mon, 7 Jul 2003 18:09:49 -0400Subject: Re: [low dose naltrexone] I NEED SOME HELPI recently saw my nuro. He was impressed when he saw the condition I am in and when I told him I had stopped taking all drugs except LDN. I quit the Copaxone after I realized I was continuing to get worse with out having a relapse (secondary progression???). The side affects of Copaxone include muscle stiffness and weakness. (Why take drug that has side affects the same as MS is?) My nuro requested the URL to check LDN out himself. I just saw my GP, whom had had a conference with my nuro (I'm impressed). When I saw my nuro we planned a second MRI for November (a year since the first, when I was DX. My nuro said not to expect miracles and asked if I would stay on LDN even if the MRI didn't show improvement. I will stay on the LDN, I know I am improving. The MRI may be confused by six months on Copaxone in which I was still progressing. I do hope I show enough improvment (MRI) so my nuro will consider giving LDN to others in need!----- Original Message ----- From: wkendz 32 yellowroselatta@... Cc: low dose naltrexone Sent: Monday, July 07, 2003 5:05 PMSubject: Re: [low dose naltrexone] I NEED SOME HELPHI there Pat,I don't personally know any docs in that particular area but believe me there is a way to get it prescribed no matter where you live. What kind of doctors have you tried? If they are all neuros, well that is the problem cuz none of them, or I should say most of them will not go out on a limb with the whole situation. Their mindset is that we should be on one of the ABCR's period. End of discussion. Well you can find a GP or an endocronologist that will work with you much easier because they are not so brainwashed to think that is the only way to go. Try one of the www.acam.com doctors or the www.lef.org under innovatitive doctors. You'd be surprised how many doctors out there realize there conventional medicine is not always the way to go and will work with you. After all, this is your life. I have decided that at this point in my life I do not even need a neuro. I have a wonderful forward thinking endocronologist that was onboard with me from day one. I think I'll stay with him.Are you not getting the results that you would like with the Copaxone? I personally feel that the LDN is the way to go but am always curious about why a person wants to go off of one of the ABCR's. I'd love to see the status of all of you after a given period of time as to how it compares as far as symptoms. Good luck Pat and please come back with any questions you have. I'm sure someone here will be able to help you. Joyce.From:To:Subject: [low dose naltrexone] I NEED SOME HELPDate: Mon, 7 Jul 2003 16:44:08 -0400HIMY NAME IS PAT I HAVE HAD MS SINCE 1989 AND ITS GETTING WORSE.MY NERO DOCTOR HAS BEEN GOOD TO ME I AM PRESENTLY TAKING COPAXONE I HAVE ASKED MY NERO ABOUT LDN I EVEN GAVE HIM SOME FACTS ABOUT IT OFF THE LDN WEB SITE BUT HE DOSENT WANT TO PRESCRIBE IT FOR ME I AM AT THE END OF MY ROPE.I LIVE NEAR FLORENCE SOUTH CAROLINA IF YOU KNOW OF ANY DOCTOR IN MY AREA THAT WOULD PRESCRIBE THE LDN FOR ME WOULD YOU PLEASE LET ME KNOW MY EMAIL ADDRESS IS AS FOLLOWSyellowroselatta@...thank you for your time_________________________________________________________________Add photos to your messages with MSN 8. Get 2 months FREE*. http://join.msn.com/?page=features/featuredemail

[Guest guest]

HI AL,

SO NICE TO SEE SUCH A SUPPORTIVE HUSBAND....NICE TO SEE ANOTHER OPEN

MINDED NEUROLOGIST AS WELL. I TAKE MY LDN AT 9 OR 10PM NOW, AND I

HAVE NOTICED THE SAME THING AS YOUR WIFE...I HAVE GREAT ENERGY AT

NIGHT AND IN THE MORNING....AND RUN OUT OF STEAM IN THE AFTERNOON.

MY THOUGHTS ARE THAT WE ARE DOING MORE NOW, DUE TO THE ENERGY LDN

GIVES US, SO WE ARE NOW TIRED FROM DOING SOMETHING, INSTEAD OF JUST

MS TIRED. I HAVE NOTICED, THOUGH, THAT, AS TIME GOES ON, THE TIME I

HAVE ENERGY IS A LITTLE LONGER. I HOPE THAT THIS WILL BE THE WAY

YOUR WIFE REACTS AS WELL.

WELCOME AND GOOD LUCK TO YOU AND YOUR WIFE, AND THANK YOU FOR

SHARING. KEEP IN TOUCH AND LET US KNOW HOW YOUR SHE DOES WITH LDN.

WARM REGARDS, SALLY

From: Burnham [mailto: david@b...]To:

yellowroselatta@b..., wkendz32@h...: low dose naltrexone@y...: Mon, 7

Jul 2003 18:09:49 -0400Subject: Re: [low dose naltrexone] I NEED SOME

HELP

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> I recently saw my nuro. He was impressed when he saw the

condition I am in and when I told him I had stopped taking all drugs

except LDN. I quit the Copaxone after I realized I was continuing

to get worse with out having a relapse (secondary progression???).

The side affects of Copaxone include muscle stiffness and weakness.

(Why take drug that has side affects the same as MS is?) My nuro

requested the URL to check LDN out himself. I just saw my GP, whom

had had a conference with my nuro (I'm impressed). When I saw my

nuro we planned a second MRI for November (a year since the first,

when I was DX. My nuro said not to expect miracles and asked if I

would stay on LDN even if the MRI didn't show improvement. I will

stay on the LDN, I know I am improving. The MRI may be confused by

six months on Copaxone in which I was still progressing. I do hope I

show enough improvment (MRI) so my nuro will consider giving LDN to

others in need!

> ----- Original Message ----- From: wkendz 32 To:

yellowroselatta@b... Cc: low dose naltrexone Sent:

Monday, July 07, 2003 5:05 PMSubject: Re: [low dose naltrexone] I NEED

SOME HELPHI there Pat,I don't personally know any docs in that

particular area but believe me there is a way to get it prescribed

no matter where you live. What kind of doctors have you tried? If

they are all neuros, well that is the problem cuz none of them, or I

should say most of them will not go out on a limb with the whole

situation. Their mindset is that we should be on one of the ABCR's

period. End of discussion. Well you can find a GP or an

endocronologist that will work with you much easier because they are

not so brainwashed to think that is the only way to go. Try one of

the www.acam.com doctors or the www.lef.org under innovatitive

doctors. You'd be surprised how many doctors out there realize there

conventional medicine is not always the way to go and will work with

you. After all, this is your life. I have decided that at this point

in my life I do not even need a neuro. I have a wonderful forward

thinking endocronologist that was onboard with me from day one. I

think I'll stay with him.Are you not getting the results that you

would like with the Copaxone? I personally feel that the LDN is the

way to go but am always curious about why a person wants to go off

of one of the ABCR's. I'd love to see the status of all of you after

a given period of time as to how it compares as far as symptoms.

Good luck Pat and please come back with any questions you have. I'm

sure someone here will be able to help you. Joyce.From:To:Subject:

[low dose naltrexone] I NEED SOME HELPDate: Mon, 7 Jul 2003 16:44:08 -

0400HIMY NAME IS PAT I HAVE HAD MS SINCE 1989 AND ITS GETTING

WORSE.MY NERO DOCTOR HAS BEEN GOOD TO ME I AM PRESENTLY TAKING

COPAXONE I HAVE ASKED MY NERO ABOUT LDN I EVEN GAVE HIM SOME FACTS

ABOUT IT OFF THE LDN WEB SITE BUT HE DOSENT WANT TO PRESCRIBE IT FOR

ME I AM AT THE END OF MY ROPE.I LIVE NEAR FLORENCE SOUTH CAROLINA IF

YOU KNOW OF ANY DOCTOR IN MY AREA THAT WOULD PRESCRIBE THE LDN FOR

ME WOULD YOU PLEASE LET ME KNOW MY EMAIL ADDRESS IS AS

FOLLOWSyellowroselatta@b... you for your

time_________________________________________________________________

Add photos to your messages with MSN 8. Get 2 months FREE*.

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