Re: Deterioration in MS and LDN...

[Guest guest]

Dear Angie, I am sorry your mom is doing badly. My honest opinion(as a mom) is to try LDN. It is not a cure, you must remember that, but it may help in some small way that would make her feel a little more comfortable. It may even stop the spasms that are giving her swallowing problems. You are a good daughter to her, trying to research all you can. I would only hope my kids never give up on me as long as I can understand what is goin on. It is not very expensive and may even be covered by insurance, so GO FOR IT! Kiki

[Guest guest]

Oh my goodness Angie. I just hate to hear of cases like this. I think to

myself what if..... What if your mom would have taken the LDN years ago.

This is when I get so damned mad at this whole system. I don't see where it

would hurt for you to embark on this road we are all traveling. I have heard

it said that it does not matter what type of MS a person has....LDN treats

them all the same. I would not want to promise anything in the way of

symptom relief but it should halt any further progression. I say give it a

shot. What do you have to lose. I'd be pulling for her and would be curious

to know how she might just improve over what position she is in. You sound

like a wonderful mother...please keep persuing other avenues as you are.

Perhaps you could call and speak with Dr. Bihari direct or maybe one of his

patients could ask him this question. Good luck to you and God bless. Please

keep us informed with all that you find out k? Joyce.

From: silentwren@...

low dose naltrexone

Subject: [low dose naltrexone] Deterioration in MS and LDN...

Date: Mon, 4 Aug 2003 19:39:55 EDT

Hi, all.....

I just joined the list and have enjoyed reading some of the positive results

some of you are getting with LDN.

My mother has had chronic-progressive MS for about 25 years now and has just

entered a nursing home. I was wondering if LDN would be of any use to her or

if it would be worth a try -- in anyone's opinion? I feel that anything is

worth trying at this point. She is very deteriorated, and I don't mean just

numbness, spasms, and fatigue. She has no trunk balance, is in bed or a

wheel

chair (propped up), has no use of her right hand (it's flaccid), has a foley

catheter and no bowel control. She is now having problems swallowing. She

does

have all her mental facilities though, so it is even harder seeing the body

going like this. Of course most doctors have given up on her, so I am taking

on

the quest to bring back or stabilize some of her weak areas. (even looking

into apitherapy)

I am researching all I can, and came across the LDN website for the first

time yesterday, and thought that it was worth a try.

If any one has an opinion or maybe knows of someone who has severe symptoms

like my Mom and has been helped, I'd love to hear them!

Thank you!!

Angie in FL

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[Guest guest]

Angie

My daughter is an angel like you

I hope you will always be there for your mom

LDN costs 38 dollars a month but have to order it from the pharmacies they

recommend

http://lowdoesnaltrixone.org

For me as I can't start it now yet (heart problems)

For all spasims and hell

I have daily High minerals and High C and many other things

Pls. See if you can call this Dr. Bihari and try LDN

and if not pls. contact me incase I can help you with making the mineral

shots and drips or contacting doctors who can help with those

I am sorry she is in so much pain

But pls. magnesium and postasium are MG and MS friends and my life savers up

to today.

I do not keep any minerals in my body ( so I am more regular with my IV of

High minerals and electrolyes) it all goes as I put it in,

but others I know only have them few times and they are doing well for

years.

Let me know if I can help.

Good luck

Mira

>From: noclue915@...

>Silentwren@...

>CC: low dose naltrexone

>Subject: Re: [low dose naltrexone] Deterioration in MS and LDN...

>Date: Mon, 4 Aug 2003 20:02:13 EDT

>

>Dear Angie, I am sorry your mom is doing badly. My honest opinion(as a mom)

>is to try LDN. It is not a cure, you must remember that, but it may help

>in

>some small way that would make her feel a little more comfortable. It may

>even

>stop the spasms that are giving her swallowing problems. You are a good

>daughter to her, trying to research all you can. I would only hope my kids

>never give

>up on me as long as I can understand what is goin on. It is not very

>expensive and may even be covered by insurance, so GO FOR IT!

> Kiki

_________________________________________________________________

Help STOP SPAM with the new MSN 8 and get 2 months FREE*

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[Guest guest]

I am his patient and I know he said he will speak and educate any doctor any

pharmacy and anyone as much as he can.

Pls. call him

and if you cant afford it maybe I can on your behalf

or even call the pharmacy I use to help you wish more doctors

Pls. let me know if I can help

I dont use it yet as I told you but thats cause of my heart condition and my

years if ignorant doctors back home who put me on something I can't mix with

LDN

So weaning is my road to LDN

But I can't say I ever heard anyone complain about it yet

again call if you need help maybe I can help

mailto:mira_gokal@...

Mira

>From: " wkendz 32 " <wkendz32@...>

>silentwren@...

>CC: low dose naltrexone

>Subject: Re: [low dose naltrexone] Deterioration in MS and LDN...

>Date: Mon, 04 Aug 2003 19:04:26 -0500

>

>Oh my goodness Angie. I just hate to hear of cases like this. I think to

>myself what if..... What if your mom would have taken the LDN years ago.

>This is when I get so damned mad at this whole system. I don't see where it

>would hurt for you to embark on this road we are all traveling. I have

>heard

>it said that it does not matter what type of MS a person has....LDN treats

>them all the same. I would not want to promise anything in the way of

>symptom relief but it should halt any further progression. I say give it a

>shot. What do you have to lose. I'd be pulling for her and would be curious

>to know how she might just improve over what position she is in. You sound

>like a wonderful mother...please keep persuing other avenues as you are.

>Perhaps you could call and speak with Dr. Bihari direct or maybe one of his

>patients could ask him this question. Good luck to you and God bless.

>Please

>keep us informed with all that you find out k? Joyce.

>

>

>From: silentwren@...

>low dose naltrexone

>Subject: [low dose naltrexone] Deterioration in MS and LDN...

>Date: Mon, 4 Aug 2003 19:39:55 EDT

>Hi, all.....

>I just joined the list and have enjoyed reading some of the positive

>results

>some of you are getting with LDN.

>My mother has had chronic-progressive MS for about 25 years now and has

>just

>entered a nursing home. I was wondering if LDN would be of any use to her

>or

>if it would be worth a try -- in anyone's opinion? I feel that anything is

>worth trying at this point. She is very deteriorated, and I don't mean just

>numbness, spasms, and fatigue. She has no trunk balance, is in bed or a

>wheel

>chair (propped up), has no use of her right hand (it's flaccid), has a

>foley

>catheter and no bowel control. She is now having problems swallowing. She

>does

>have all her mental facilities though, so it is even harder seeing the body

>going like this. Of course most doctors have given up on her, so I am

>taking

>on

>the quest to bring back or stabilize some of her weak areas. (even looking

>into apitherapy)

>I am researching all I can, and came across the LDN website for the first

>time yesterday, and thought that it was worth a try.

>If any one has an opinion or maybe knows of someone who has severe symptoms

>like my Mom and has been helped, I'd love to hear them!

>Thank you!!

>Angie in FL

>

>_________________________________________________________________

>MSN 8 helps eliminate e-mail viruses. Get 2 months FREE*.

>http://join.msn.com/?page=features/virus

>

_________________________________________________________________

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[Guest guest]

I am so sorry Angie...I said that you sounded like a wonderful mother but

what I meant to say was that you sounded like a wonderful daughter to your

mother....so sorry. Getting late...spose I should shuffle off to bed.

....lol..Joyce.

From: " wkendz 32 " <wkendz32@...>

silentwren@...

CC: low dose naltrexone

Subject: Re: [low dose naltrexone] Deterioration in MS and LDN...

Date: Mon, 04 Aug 2003 19:04:26 -0500

Oh my goodness Angie. I just hate to hear of cases like this. I think to

myself what if..... What if your mom would have taken the LDN years ago.

This is when I get so damned mad at this whole system. I don't see where it

would hurt for you to embark on this road we are all traveling. I have heard

it said that it does not matter what type of MS a person has....LDN treats

them all the same. I would not want to promise anything in the way of

symptom relief but it should halt any further progression. I say give it a

shot. What do you have to lose. I'd be pulling for her and would be curious

to know how she might just improve over what position she is in. You sound

like a wonderful mother...please keep persuing other avenues as you are.

Perhaps you could call and speak with Dr. Bihari direct or maybe one of his

patients could ask him this question. Good luck to you and God bless. Please

keep us informed with all that you find out k? Joyce.

From: silentwren@...

low dose naltrexone

Subject: [low dose naltrexone] Deterioration in MS and LDN...

Date: Mon, 4 Aug 2003 19:39:55 EDT

Hi, all.....

I just joined the list and have enjoyed reading some of the positive results

some of you are getting with LDN.

My mother has had chronic-progressive MS for about 25 years now and has just

entered a nursing home. I was wondering if LDN would be of any use to her or

if it would be worth a try -- in anyone's opinion? I feel that anything is

worth trying at this point. She is very deteriorated, and I don't mean just

numbness, spasms, and fatigue. She has no trunk balance, is in bed or a

wheel

chair (propped up), has no use of her right hand (it's flaccid), has a foley

catheter and no bowel control. She is now having problems swallowing. She

does

have all her mental facilities though, so it is even harder seeing the body

going like this. Of course most doctors have given up on her, so I am taking

on

the quest to bring back or stabilize some of her weak areas. (even looking

into apitherapy)

I am researching all I can, and came across the LDN website for the first

time yesterday, and thought that it was worth a try.

If any one has an opinion or maybe knows of someone who has severe symptoms

like my Mom and has been helped, I'd love to hear them!

Thank you!!

Angie in FL

_________________________________________________________________

MSN 8 helps eliminate e-mail viruses. Get 2 months FREE*.

http://join.msn.com/?page=features/virus

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[Guest guest]

It can only help!!

----- Original Message -----

From: silentwren@...

low dose naltrexone

Sent: Monday, August 04, 2003 7:39 PM

Subject: [low dose naltrexone] Deterioration in MS and LDN...

Hi, all.....I just joined the list and have enjoyed reading some of the positive results some of you are getting with LDN.My mother has had chronic-progressive MS for about 25 years now and has just entered a nursing home. I was wondering if LDN would be of any use to her or if it would be worth a try -- in anyone's opinion? I feel that anything is worth trying at this point. She is very deteriorated, and I don't mean just numbness, spasms, and fatigue. She has no trunk balance, is in bed or a wheel chair (propped up), has no use of her right hand (it's flaccid), has a foley catheter and no bowel control. She is now having problems swallowing. She does have all her mental facilities though, so it is even harder seeing the body going like this. Of course most doctors have given up on her, so I am taking on the quest to bring back or stabilize some of her weak areas. (even looking into apitherapy)I am researching all I can, and came across the LDN website for the first time yesterday, and thought that it was worth a try.If any one has an opinion or maybe knows of someone who has severe symptoms like my Mom and has been helped, I'd love to hear them!Thank you!!Angie in FL