Guest guest Posted August 19, 2003 Report Share Posted August 19, 2003 Al , that was an interesting thought. I don't know where you live but our LI chapter has a special fund for the Swim classes given to us for free at various area pools. I am sure all chapters have special funds that directly benefit the PEOPLE. My daughter is trying to set up a fund for special occasions to have hair and makeup done for those who cannot do it themselves or do not have the means. We are having a difficult time getting help from the MS society on "how to" start it but we will keep on it. I am sure your local chapter has some special area close to your heart that directly benefits your wife and others. Let us know how you made out. Kiki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2003 Report Share Posted August 19, 2003 HI Allan..oh boy. So funny that you should bring this up because I too used to contribute whenever I'd get those envelopes. I stopped doing that since knowing what I know about all this stuff. Glad I'm not alone in my thoughts about how I just don't want my money supporting that stuff. I just throw out the envelopes now. Joyce. From: " Allan Eisel " <faddle54444@...> Reply-faddle54444@... salpal@..., low dose naltrexone Subject: [low dose naltrexone] Re: various Date: Mon, 18 Aug 2003 23:12:44 -0400 (EDT) Question for our MSers. Since my wife's diagnosis, we have both been regular and generous contributors to the National MS Society. Considering all the written stuff we get from them, the direction of most of the MS research (big pharma looking for more big money drugs that may or may not help the patient but will increase the bottom line), and the damage that two of the CRABs have already done to her, when I got my bi-monthly NMSS pledge request today in the mail, I just filed it away. I'm wondering if there isn't a better place to put our money. I don't feel the usual good feeling I used to have when I sent in a check. Maybe it's just me, but instead of feeling like this organization is " us, " I'm feeling more and more like it's " them. " So I'm asking, do I have a problem here, or is there a better place for our MS-intended contributions? Thanks! -Al " If you don't stand for something, you'll fall for anything. " From: Sally [mailto: salpal@...]To: low dose naltrexone@...: Tue, 19 Aug 2003 00:14:13 -0000Subject: [low dose naltrexone] Re: variousYES DAVID AND IT DOES!!! ~SALLY & gt; great questions. If accomodation (tachyphylaxis) does happen & gt; with poisons, or LDN, could it also happen with the interferons? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2003 Report Share Posted August 19, 2003 Check out www.bostoncurg.org for a good organization with the cure in mind. Beth >From: "Sally" >low dose naltrexone >Subject: [low dose naltrexone] Re: various >Date: Tue, 19 Aug 2003 03:45:34 -0000 > >Hi , > >It is true, that the nmss had. until recently, ever recommended any >drug to msers. They must have been offered a big bonus for >recommending the crab drugs. > >I used to contribute as well, but not any more. With the big money >that they must receive from the drug companies, they don't need my >little pittence. If the best they can do for us is more of those >horrible immune suppressant horrors, then they are not using my >money, with my best interest at heart. > >My best to you and your wife. >~Sally > > "Allan Eisel" wrote: > > Question for our MSers. Since my wife's diagnosis, we have both >been regular and generous contributors to the National MS Society. >Considering all the written stuff we get from them, the direction of >most of the MS research (big pharma looking for more big money drugs >that may or may not help the patient but will increase the bottom >line), and the damage that two of the CRABs have already done to >her, when I got my bi-monthly NMSS pledge request today in the mail, >I just filed it away. I'm wondering if there isn't a better place >to put our money. I don't feel the usual good feeling I used to >have when I sent in a check. Maybe it's just me, but instead of >feeling like this organization is "us," I'm feeling more and more >like it's "them." So I'm asking, do I have a problem here, or is >there a better place for our MS-intended contributions? Thanks! - >Al "If you don't stand for something, you'll fall for anything."--- >On Mon 08/18, Sally < salpal@d... > wrote:From: Sally [mailto: >salpal@d...]low dose naltrexone@y...: Tue, 19 Aug 2003 00:14:13 - >0000Subject: [low dose naltrexone] Re: variousYES DAVID AND IT DOES!!! >~SALLY> > great questions. If accomodation (tachyphylaxis) does happen >> with poisons, or LDN, could it also happen with the >interferons> _______________________________________________ > Get MSN 8 and help protect your children with advanced parental controls. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2003 Report Share Posted August 21, 2003 Allan Too true. Haven't seen much help from them either. Been a few years. I started up a deaf school at home for very poor kids from Pakistan who sleep on the roads. Sounds to me like your wasting your money going towards MS society they have always been way behind of things that help and not too open minded with things that they knew could be true. How are you and your wife feeling. You post sounded so down. Hope your feeling better both of you. Mira On Monday, Aug 18, 2003, at 22:12 US/Central, Allan Eisel wrote: <image.tiff> > > > > <image.tiff> > <image.tiff> <image.tiff> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2003 Report Share Posted August 21, 2003 Beth tried to get there nothing came up. Wrong URL. Very interested! Mira On Tuesday, Aug 19, 2003, at 13:12 US/Central, Beth Ravenelle wrote: > www.bostoncurg.org for a good organization with the cure in mind. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2003 Report Share Posted August 21, 2003 GREAT ! Thanks a lot to read coming up for me, But very excited how you doing? metals sorted out? mira On Wednesday, Aug 20, 2003, at 21:59 US/Central, mertburton wrote: > bostoncure.org. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2003 Report Share Posted August 21, 2003 Sorry, The correct address is www.bostoncure.org, I forgot the e. Thanks for looking into this organization. Beth -----Original Message----- From: wordww@... [mailto:wordww@...] Sent: Wednesday, August 20, 2003 8:15 PM Beth Ravenelle Cc: salpal@...; low dose naltrexone Subject: Re: [low dose naltrexone] Re: various Beth tried to get there nothing came up. Wrong URL. Very interested! Mira On Tuesday, Aug 19, 2003, at 13:12 US/Central, Beth Ravenelle wrote: > www.bostoncurg.org for a good organization with the cure in mind. To unsubscribe from this group, send an email to: low dose naltrexone-unsubscribe Your use of is subject to the Terms of Service. Quote Link to comment Share on other sites More sharing options...
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