Fibro patients on other boards are on too small of a dose

[Guest guest]

There are some people with fibromyalgia on other message boards that

are now trying LDN but are on such small doses, some under 1 mg and

complaining of being tired. Can't seem to get them to go to a normal

dose, at least 1.75 to 3 mg. In fact I feel I have been ignored much

of the time. I keep updating my reports but get no responses. Why?

One even said they hate it when someone finds something that helps

them! Sorry to bring up negativity here, I only wanted to help

others who are in such chronic pain as I was. I am feeling down

about them. I only wanted to help them. Mymisspriss

[Guest guest]

Got to give you A for effort. some people don't like to be helped but I

think that it was nice of you anyway.

God Bless

Marie

----- Original Message -----

From: " mymisspriss19472000 " <mymisspriss19472000@...>

<low dose naltrexone >

Sent: Thursday, July 17, 2003 3:42 PM

Subject: [low dose naltrexone] Fibro patients on other boards are on too small

of a dose

> There are some people with fibromyalgia on other message boards that

> are now trying LDN but are on such small doses, some under 1 mg and

> complaining of being tired. Can't seem to get them to go to a normal

> dose, at least 1.75 to 3 mg. In fact I feel I have been ignored much

> of the time. I keep updating my reports but get no responses. Why?

> One even said they hate it when someone finds something that helps

> them! Sorry to bring up negativity here, I only wanted to help

> others who are in such chronic pain as I was. I am feeling down

> about them. I only wanted to help them. Mymisspriss

>

>

>

>

[Guest guest]

mymisspriss:

What would be the address of some of those fibro message boards. I might

want to " give them my 2 cents worth " , also.

Thanks, Noland

----- Original Message -----

From: " mymisspriss19472000 " <mymisspriss19472000@...>

<low dose naltrexone >

Sent: Thursday, July 17, 2003 1:42 PM

Subject: [low dose naltrexone] Fibro patients on other boards are on too small

of a dose

> There are some people with fibromyalgia on other message boards that

> are now trying LDN but are on such small doses, some under 1 mg and

> complaining of being tired. Can't seem to get them to go to a normal

> dose, at least 1.75 to 3 mg. In fact I feel I have been ignored much

> of the time. I keep updating my reports but get no responses. Why?

> One even said they hate it when someone finds something that helps

> them! Sorry to bring up negativity here, I only wanted to help

> others who are in such chronic pain as I was. I am feeling down

> about them. I only wanted to help them. Mymisspriss

>

>

>

>

[Guest guest]

Hi Misspriss, Wow you and " Larry " don't seem to get good reception

from some people. I just don't Understand it??? This board and

spotlight have been a wonderful refuge for me.

Just don't go to those other clicky boards anymore. Just come here

where you are appreciated. If those other people don't want support

and love, then why do they go there at all?? Maybe they just like to

see there own words coming back at them...LOL. I know some people

like that....they want to tell you all their problems, but don't

want you to suggest how to solve them.

I know that Larry is really hurt by his being booted from some sites

for daring to mention the words LDN.....I hope he comes back

here!!!! I like his posts!!! And you stay right here to

Misspriss. We need you too.

Hugs Sally

> There are some people with fibromyalgia on other message boards

that

> are now trying LDN but are on such small doses, some under 1 mg

and

> complaining of being tired. Can't seem to get them to go to a

normal

> dose, at least 1.75 to 3 mg. In fact I feel I have been ignored

much

> of the time. I keep updating my reports but get no responses.

Why?

> One even said they hate it when someone finds something that helps

> them! Sorry to bring up negativity here, I only wanted to help

> others who are in such chronic pain as I was. I am feeling down

> about them. I only wanted to help them. Mymisspriss