Re: second day on LDN- re Cec6

[Guest guest]

Hi Cec,

So happy to hear that my post about Dr helped you....yes He

is also my Doc....Nice guy....He started me out on 3mg too, and

after a month, to 4.5mg.....I got a lot of leg stiffness, so now i'm

back on 3mg. I am doing pretty well, after 3.5 months on

ldn......like you, I felt better balance the first few days. I

polished the furniture today......now that, in itself, doesn't seem

like such a big thing, but I hadn't been able to do it in years.

I remember a parapaleagic saying on TV one time " I would like to be

able to do all the things I used to hate to do " I can't do all of

them, but polishing furniture is one! lol.

Every once in awhile I feel the urge to increase my doseage,

thinking more has to be better, but I'm going to stick with 3 for

now,and give it a chance to like me.....but I won't hesitate to go

up if I feel the need.....I think anywhere between the 3mg and 4.5

is ok. I have good days and not so good days.....but I will never go

off of ldn, because, even though I still have MS (for over 30yrs) I

feel so much better and stronger and happier. I can put my feet

straight now and wiggle my toes. I still use a walker, but

sometimes, I can pick it up and carry it...lol.

Good luck to you Cec6 all all of my friends here.

Hugs, Sally

> Hi,

>

> I have been reading all the wonderful posts with very helpful

> information for about six weeks now. Your support has kept me

going

> in my pursuit of LDN. It was a long ordeal trying to get LDN

locally

> to no avail. Finally, I got it through a doctor that someone

posted

> here. Dr. starts everyone out on 3mg. I did ask him the

> question that someone asked today, if weight mattered. He did not

> know but his rule is it is better to start low to see how I do and

> then I can go up. Since I am 5'4 " and 120 pounds 3mg. I did not

want

> to start at 4.5.

>

> I have had MS for 19 years. I have never been on any of the ABCR

> drugs. My personal choice of not wanting those high power drugs in

my

> body. My MS has slowly declined and I started using a cane for

> balance and walking about a year ago.

>

> Don't know if it is wishful thinking but I think? my balance is a

> little bit better after two nights on LDN. Although, my sleep has

not

> been restful.

>

> Just wanted to say thank you to everyone here.