Guest guest Posted July 5, 2003 Report Share Posted July 5, 2003 Hi All, I am going to go to my GP on Monday to talk to her about LDN. Before I go I'd like to know some things in case she asks me: - Where in the UK can you get LDN and how much does it cost? I have R & R MS, has any other member with R & R had positive effects with LDN? What dosage would I start on? Does anyone know the answers to theses questions? Thanks in advance Iain _________________________________________________________________ Express yourself with cool emoticons - download MSN Messenger today! http://www.msn.co.uk/messenger Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2003 Report Share Posted July 5, 2003 Hi there Iain, Welcome to the group. Good luck with your doc on Monday. Not sure about where to get LDN in the UK but I know ce from the spotlight_ldn group is from the UK. Not sure if he is a member here or not. I'll cc this message to that group as well. As far as your question about RR ms...it does not matter what type of ms you have. They are all the same as far as LDN is concerned. As far as the dose. Most of us are on 4.5 mg but several have had problems with spasticity at that dose and went back to the 3 mg dose. You might want to start with 3mg and if you have no problems you can up the dose on your first refill to the 4.5 mg which is what Dr. Bihari recommends. Joyce From: " Iain Kerr " <kerrso74@...> low dose naltrexone Subject: [low dose naltrexone] Visiting my GP Date: Sat, 05 Jul 2003 10:59:37 +0000 Hi All, I am going to go to my GP on Monday to talk to her about LDN. Before I go I'd like to know some things in case she asks me: - Where in the UK can you get LDN and how much does it cost? I have R & R MS, has any other member with R & R had positive effects with LDN? What dosage would I start on? Does anyone know the answers to theses questions? Thanks in advance Iain _________________________________________________________________ Express yourself with cool emoticons - download MSN Messenger today! http://www.msn.co.uk/messenger _________________________________________________________________ MSN 8 helps eliminate e-mail viruses. Get 2 months FREE*. http://join.msn.com/?page=features/virus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2003 Report Share Posted July 5, 2003 Hi Ian, welcome to the group. There doesn't appear to be many UK users in this group but I know there are quite a few out there from reading comments made on the MSRC (Multiple Sclerosis Research Centre) website. If you haven't found this yet check out www.msrc.co.uk in particular the message board for some very interesting comments. I found my source through the New Pathways magazine which is produced by the MSRC and again worth subscribing to - if for no other reason than to help this brilliant but struggling organisation keep afloat - I have found the mag extremely informative and very positive. I was unable to get LDN from either my GP or my neurologist because it has not been trialled in this country neither were willing to prescribe. However Dr Lawrence has MS himself and although he is apparently swamped with requests he is worth a try. Simply write to him at the address below giving a brief history of your MS symptoms and hopefully he will reply with a fact sheet (including prices) and an order form. The capsules cost £25 (p & p £90p) for a 30 day supply. His details are as follows: Dr M R Lawrence Dietary Research Ltd 10 Heol Gerrig Treboeth Swansea West Glam SA5 9BP I took 3mg for 1 month with good results but after joining my local gym and training 3 times a week if found my legs were getting stiff but I assumed that was the bike riding. However, after starting the 4.5mg the second month the stiffness became more intense even though I was on holiday, not using the gym and being pushed about in a wheelchair. I am now going to reduce the dosage for a while to see how I get on. I have secondary progressive so any improvement is a bonus to me and I have found that I am sleeping much better, the burning sensation in my right leg has all but disappeared and I do have more energy, especially in the mornings. I hope you are successful and continue to post to the group - I am sure everyone will be interested in how you get on. Good luck Sue ----- Original Message ----- From: " Iain Kerr " <kerrso74@...> <low dose naltrexone > Sent: Saturday, July 05, 2003 11:59 AM Subject: [low dose naltrexone] Visiting my GP > Hi All, > > I am going to go to my GP on Monday to talk to her about LDN. > Before I go I'd like to know some things in case she asks me: - > > Where in the UK can you get LDN and how much does it cost? > I have R & R MS, has any other member with R & R had positive effects with LDN? > What dosage would I start on? > > Does anyone know the answers to theses questions? > > Thanks in advance > > Iain > > _________________________________________________________________ > Express yourself with cool emoticons - download MSN Messenger today! > http://www.msn.co.uk/messenger > > > > Quote Link to comment Share on other sites More sharing options...
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