Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 Well had my last neruo exam.July 17th 2003.Been in limbo land since Feb 1999.From Feb 1999 till the present I have had 5 mri's of the brain.Last mri of the brain was done.June 27th 2003 with contrast.Well that mri came back negative no lesions.Just show bilateral mastoid sinus disease.No lesions at all.Had mri's done of my neck from base of brain to the c-7.and mri done of the lower back.That was done on Arpil 11 2003.Well we looked at those films also.No lesions and no swelling of the spinal cord.My neruo science doctor stated lesions show on the spinal cord.Well they were negative.Before these I have had 3 other mri's of the brain.A spinal tap there fun.Nerve tests.Blood work out the butt.Urine test.Man I'm just tired of all these tests.All my tests are negative.I also had 5 different complete neruo exams.Passed all them also.So my new doctor now which is my 4th neruo doc.Stated I dont have ms and to get it out of my mind.Well doc tell my body that.He's been working with ms people for over 15+ years.He leads the neruo science depart in his practice.There 8 others under him.Two of the 8 are recommended by the nmss.Well he reviewed all my tests since 1999 till now.And stated he can't find nothing neruo wrong with me at this point.And all the tests I have had for ms are clear and negative.Plus my neruo exam passed with flying colors.So why is it that I still have burning,numbness all over my body,weakness all over my body.muscle jerks and muscle twitched all over my body.Hand tremors leg's and arm tremors.Hmmmmmmmmmmmmmmmmmm I guess its all in my head.NOT!!!!!!!!! So now were going to do a nerve test where they put needles in my arms and legs and i dont know where else.Is it possible to have all these tests with the mri's the spinal tap neuro exams and so.Is it possible to still have MS with all these tests being negative in the last 4.5 years.I'm just screwed here.I mean I get burning and numbness in my mouth on my tongue in my private areas.Now he wants to check me for Guillian Barre disease.But I read up on that I have the sx's but my reflexs are in working order.In that disease it say's your reflexs are next to nill in responding.Need help here.I'll ask for another spinal tap,a nerve bio test,and what else maybe another mri of my spine with contrast.Doc stated I dont need any more tests.I had enough tests.Well I'm getting no where fast.Now heres another problem.How can I get my GP to give me a script of LDN tomorrow?I want to take something anything to help me a little bit...............Pete Quote Link to comment Share on other sites More sharing options...
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