Guest guest Posted July 27, 2003 Report Share Posted July 27, 2003 Hi everyone. I'm back. I hesitate to talk about my trip or any more about the last 4 weeks. I don't even know how long it's going to take to 'catch up', but I have gone through some of the 270 new messages in these 2 groups since Wednesday morning. I read through a few and this one seems to be the best to respond to... to sally, guy and mymisspriss and everyone else ----- Original Message ----- From: sally chrisman Mylinda Riker ; low dose naltrexone ; Spotlight_ldn Sent: Saturday, July 19, 2003 19:46 Subject: [spotlight_ldn] Re: [low dose naltrexone] Re: LIN sally IM not making progress. im gonna stop. lin [...] SOMETIMES THE LDN SITE POSTS CAN MISLEAD YOU INTO THINKING, THAT IF YOU DON'T HAVE RESULTS LIKE SOME OF THE OTHERS, THEN THE LDN IS NOT WORKING.......THIS IS NOT TRUE. I AM STILL IN THE SAME SITUATION I WAS BEFORE LDN, EXCEPT FOR LITTLE THINGS.....LIKE BEING ABLE TO WIGGLE TOES AND A LITTLE BETTER BALANCE, AND KNOWING, IN THE BACK OF MY MIND, THAT THE LDN IS STOPPING MY PROGRESSION. For every action there's an equal and opposite reaction. I never thought that by talking about what LDN was doing for me, that others would compare their experience and think it wasn't working for them. Everyone has their own biochemical situation and medical history. I can only say what I'm doing (which is NOTHING except for LDN, no paxil, no copax, rarely aspirin, nothing but LDN), maybe that has something to do with it. All we can do is compare notes and make our own choices. To me, if LDN is going to kick start what's supposed to be working on it's own, then the body should/could, in theory, do the rest, based on what other factors are involved. But I sure am not going to make any recommendations, just personally, I would give up everything I was taking and doing, other than good food stuff. I only take vitamins sporadically, varied, and no longer any more than the minimum recommended dose, but usually just one of them, not 'with each meal'. I also have 3 super star chiropractors, and I have been a student of Dr. Wayne Dyer's wisdom for over 10 years now. To me, these are all major factors. But that's just me, everyone else gotta fend for themselves and do what they think is right for them. I think thought has alot to do with it -- I have found there is a Fear Factor with doing something everyone else thinks you're crazy to even consider. When I first started, I had a few bad thoughts that I let expand and I freaked myself out. Twice I did this. Almost did it again on July 4th when I first got set up at the camp site. But I have an awareness to this, and I know the power of it. If LDN is meant to stop further progression, that too is good enough for me. I MUST ADMIT, THAT IN THE FIRST 2 MONTHS, I WAS READY TO QUIT TOO, LIN, WITH THE LEG STIFFNESS AND ALL, BUT I DIDNT AND NOW I AM GLAD. I STILL HAVE SOME LEG STIFFNESS, AND SOME OF THE OTHER MS SYMPTOMS......BUT VEEEEEEERRRRRRY SLOOOOOOOOWLY, I AM FEELING STRONGER. IT'S NOT A CURE LIN....BUT I BELIEVE IT IS HELPING, IN A VERY SUBTLE WAY.......NOT IN A BIG BANG WAY, LIKE WITH GUY. AND WHO KNOWS FOR SURE....HE MAY HAVE BEEN GOING ONTO A REMISSION WHEN HE STARTED ON LDN, AND HE JUST THINKS IT'S THE LDN...LOL. When I feel leg stiffness I usually stretch my muscles. So I look strange getting out of a car and reaching for the sky for a few minutes. I don't think my legs are stiff now though... I think they're SORE! I also just spent 18 days in the last 23 days (except for 7/9,10,11,21,22) on my feet for double digit hours a day. They didn't start feeling this way until last night though. As far as REMISSION... how long does it take for a symptom to go into remission? If it is remission, no doubt it sure could be, then my left toes took 43 1/2 years to go into remission; my bladder took 13 months for the urgency to go into remission; and about 30 years for the frequency (it got worse in the last year, but I always went A LOT, a LOT More than I have been the last 90+ days); my RLS also was worse for the prior 13 months but it's been an sx for at least 4 years just not as bad; the sudden fatigue at specific times of the day, that took 24 years, maybe more; my T5 spasming took 6 or more years, can't remember exactly when that one started. And it's great, they all just coincidentally went into remission together. [..] ----- Original Message ----- From: Sally low dose naltrexone Sent: Saturday, July 19, 2003 3:57 AM Subject: [low dose naltrexone] Re: Mom's Fibromyalgia Hi Guy, Yes I too have a disc problem that showed up on my mri, [...] > > > Thank you Mark for keeping me and others informed about your mom's progress. It is good to hear that she is doing about the same as I am with LDN and her fibromyalgia symptoms. I will not stop taking this. It is the best thing with the least side effects that I have ever tried in my 20 year history of chronic pain!> > I weigh about 103 lbs. I am 5' 2 1/2" , very small bones! > > I started on 4.5 mg but went down to 3 mg in the second month, and at the moment I feel good on that amount. On 4.5 I felt a little Mymisspriss: That's why I started with 3.0, I'm only 5'4 and 130 plus until 1993 or so, my metabolism was very fast. YMMV Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.