Guest guest Posted February 14, 2002 Report Share Posted February 14, 2002 Dag... Hi..I know it has been a couple of days since you first wrote....I have not had a chance to read all the emails to see if you have gotten any answers to your question...if you haven't I am sure the people in this group who somehow know how to find answers to everything will get to you soon.... I am sorry that I really don't have any answers for you...but I did want to let you know that we have heard from you and will try to help... I am a mom here...it is my son who has AIH and PSC....which is another liver disease...both auto-immune..and some other auto-immune diseases...he is 19 now and was first diagnosed when he was 9....I have been on here getting and giving support for about 4 yrs....along with some other groups I belong to for support... I hope you find some answers...What kind of doctors is your wife going to ...is she seeing a GI or a Hep.... write and let us know what you have found out...if from somewhere other than here... Best to both of you Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2002 Report Share Posted February 14, 2002 Hello Friends Thank you for your replys to my E-Mail. Iv'e been a looker not a joiner on here for about a year or so now. I regard you all as old friends. Iv'e got up the courage to try an E- Mail. Now Iv'e Done it on behalf of my wife (Joyce) There'll be no stopping us. She's having a bad flare up now ( I know because I get it in the neck) Just have to grin and bear it and give her plenty of support and TLC. It helps that others such as your selves understand the problems. Our thoughts are with you all. May your God go with you's. LOL:-) DAG __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2002 Report Share Posted February 14, 2002 +My heart goes out to you (and of course your wife) -- it must be so hard being so helpless, It is so hard to really appreciate how someone else feels. Like I know how I feel at times but although I have the same basic condition I am aware of how different others experience the same thing. It is good you do care enough to be a support and hopefully there are good times for you even when things are tough. Maybe there needs to be a support group for those who are the carers etc of those of us with AIH. There are groups for those who are married or otherwise to alcoholics --so maybe you could set something up. Hang in there. We NEED our families!!! Caroline (NZ) --- Guy <dguysy@...> wrote: > Hello Friends > Thank you for your replys to my E-Mail. Iv'e been a > looker not a joiner on here for about a year or so > now. I regard you all as old friends. Iv'e got up > the > courage to try an E- Mail. Now Iv'e Done it on > behalf > of my wife (Joyce) There'll be no stopping us. She's > having a bad flare up now ( I know because I get it > in > the neck) Just have to grin and bear it and give her > plenty of support and TLC. It helps that others such > as your selves understand the problems. Our thoughts > are with you all. > May your God go with you's. > LOL:-) > DAG > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2002 Report Share Posted February 14, 2002 Welcome and Joyce! I am glad you took that first step to writing and communicating with us. Together we can row this boat more easily with many hands! debby Re: [ ] My Wife Hello FriendsThank you for your replys to my E-Mail. Iv'e been alooker not a joiner on here for about a year or sonow. I regard you all as old friends. Iv'e got up thecourage to try an E- Mail. Now Iv'e Done it on behalfof my wife (Joyce) There'll be no stopping us. She'shaving a bad flare up now ( I know because I get it inthe neck) Just have to grin and bear it and give herplenty of support and TLC. It helps that others suchas your selves understand the problems. Our thoughtsare with you all.May your God go with you's.LOL:-)DAG__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2002 Report Share Posted February 15, 2002 Sounds like she has a very understanding husband. Hope she feels better soon. Ann CT Re: [ ] My Wife Hello FriendsThank you for your replys to my E-Mail. Iv'e been alooker not a joiner on here for about a year or sonow. I regard you all as old friends. Iv'e got up thecourage to try an E- Mail. Now Iv'e Done it on behalfof my wife (Joyce) There'll be no stopping us. She'shaving a bad flare up now ( I know because I get it inthe neck) Just have to grin and bear it and give herplenty of support and TLC. It helps that others suchas your selves understand the problems. Our thoughtsare with you all.May your God go with you's.LOL:-)DAG__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 Hi Ken, I think we have disussed before how your wife and I have similar Healing Crissises. This is how I knew one was coming on. I was so hateful and hated the world. I soon discovered that it was the coffee enemas that relieved all the build up in the liver. I had a ND tell em once that you could tell the liver condition of grouchy people. After my experiences with it....I know it's true. Hope she is MUCH better today!! Edith In a message dated 02/23/2002 2:49:09 AM Central Standard Time, kimn01@... writes: > She's happy and her facial color is lot brighter. She's talking normal. > She said she was sooooo mad and didn't understand that this was part of her > healing crisis. I gave her glass of peppermint tea and this helped to calm > even more. She is now doing a midnight coffee enema to help flush out > more of that toxic bile. > > In any case, move on over Huges, my wife deserves a gold metal. > > > Ken > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 kimn01@... writes: > In any case, move on over Huges, my wife deserves a gold metal. > Well, if figure skaters could get the gold for their performance, your wife surely deserves the same for her endurance. That's quite a story and one that she (and you!) will never forget! in health, rachel~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 Diane, It was very hard at first for me also because I was so up tight about doing that in the first place. I found that I had to do them when there was no one here but me because my husband would knock on the door and ask if I went down the drain etc. He does not do health things soooo... Then secondly, I would take reading material that extrememly interested me ( I love history). I always put a clock on the bath tub edge and put in a comfortable pillow and read. I then found sometimes, I had actually gone way over the time. Charlotte Gerson gave me a hint that helped....allow the coffee in slowly so as not to stimulate things and have to release. She said to try for 15 min. I haven't done any in over a yr because I have not had that toxic feel. Good luck, Edith In a message dated 02/23/2002 10:37:17 AM Central Standard Time, dianatrudeau@... writes: > Edith > > question for you. I've been doing coffee enemas for a while now. At first > I felt a lot of benefit from them. Felt a lot less " poisoned " My question > is this. Accordint to the site I use to order organic coffee etc, you > should hold the enema for a minimum of 12 minutes in order for it to > stimulate bile production in the liver. I can't even get close to that. > Any tricks or suggestions??? > > Diane > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 Edith question for you. I've been doing coffee enemas for a while now. At first I felt a lot of benefit from them. Felt a lot less " poisoned " My question is this. Accordint to the site I use to order organic coffee etc, you should hold the enema for a minimum of 12 minutes in order for it to stimulate bile production in the liver. I can't even get close to that. Any tricks or suggestions??? Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 , I take a cleansing enema before the coffee enema. The temp. of the coffee enema has alot to do with holding it. It should be at least 100 degrees F. and not over 105 degrees. Thats the way I do it. Wally > Edith > > question for you. I've been doing coffee enemas for a while now. At first > I felt a lot of benefit from them. Felt a lot less " poisoned " My question > is this. Accordint to the site I use to order organic coffee etc, you > should hold the enema for a minimum of 12 minutes in order for it to > stimulate bile production in the liver. I can't even get close to that. > Any tricks or suggestions??? > > Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 sigh... now I have to buy a thermometer??? it never ends lol would 100F to 105F be sort of " baby bottle warm " ? thanks Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2002 Report Share Posted February 25, 2002 LOL, Diane It does make all the difference in the world! If the water is to cool it makes it harder to get a large volume in and to hold. I would buy a thermometer. Just trying to help out. Wally > sigh... now I have to buy a thermometer??? it never ends lol > > would 100F to 105F be sort of " baby bottle warm " ? > > thanks > > Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2003 Report Share Posted July 27, 2003 I just thought i would let everyone know that my wife has been on LDN now for two months, she is taking 4.5 mg and didn't have any side effects at all. She feels much better and stronger and she is starting to walk every day with her walker again but i must still be with her but before LDN she could hardly walk at all. It is so good to know that she doesn't have to have the injections anymore, she was on betaseron for about eight years and it sure didn't do much for her because in those eight years it took her from walking with a cane to a walker then a wheelchair so what good did it really do and we will never know for sure I just want to thank Phil Harding and Larry C for helping me get information for getting my wife a doctor and getting her on the LDN. We used Dr Sullivan in burg Pa wich is only about 45 miles from my place but we did everything by phone because of my wifes incontinence and now that is even improving as time goes by. this is a great site and my GOD BLESS everyone and keep helping each other because this is the only support group at this time but it is really working for alot of people. ann and Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2003 Report Share Posted July 27, 2003 The biggest blessing and gift that can be received is knowing that you made a positve difference in someone's life -- no matter how small... this truly is the secret of happiness and well-being. Phil Harding On Sun, 27 Jul 2003, terrysixx2003 wrote: > I just thought i would let everyone know that my wife has been on > LDN now for two months, she is taking 4.5 mg and didn't have any side > effects at all. She feels much better and stronger and she is > starting to walk every day with her walker again but i must still be > with her but before LDN she could hardly walk at all. > It is so good to know that she doesn't have to have the injections > anymore, she was on betaseron for about eight years and it sure > didn't do much for her because in those eight years it took her from > walking with a cane to a walker then a wheelchair so what good did it > really do and we will never know for sure > I just want to thank Phil Harding and Larry C for helping me get > information for getting my wife a doctor and getting her on the LDN. > We used Dr Sullivan in burg Pa wich is only about 45 miles from > my place but we did everything by phone because of my wifes > incontinence and now that is even improving as time goes by. > > this is a great site and my GOD BLESS everyone and keep helping > each other because this is the only support group at this time but it > is really working for alot of people. > > ann and Terry > > > > Quote Link to comment Share on other sites More sharing options...
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