I REALLY HATE TO RAIN ON YOUR PARADE

[Guest guest]

Hi all, I have been reading your wonderful uplifting posts about

your experiences with LDN. I so wish I could have the joy that you

are feeling right now.....but alas, I think I am having an

exacerbation. I can barely walk and am very stiff and sore.....even

my hands and fingers are weak and tingly and that is a new symptom.

I have a friend, who is Dr. Bahari's patient and she tells me that I

should get the original formula of LDN from him and start

over.....so I am going to do that to see how it works. She is doing

wonderfully, like you, and only after standing at her job for 4 hrs

does she even feel like she has ms anymore. She has been on LDN

since Dec 2002 and did well right from the start, had no SEs and was

back to normal by the time I started ldn in Apr 2003. She was on

4.5mg right from the beginning.

So I am going to stop the LDN until my compounder gets the original

formula from Dr. Bahari and sends it to me. Maybe a fresh start is

what I need.

I did very well at the beginning....got my balance back and I could

really feel the endorphine lift. But for the past week or so, I

have been going down hill and yesterday I fell on my butt...out of

nowhere, just fell. I am also having spasms again, very painful.

Please think good thoughts for me, as I enter a new phase of LDN.

God bless you all, Sally

[Guest guest]

Hi Sally,

I am so sorry that this is turning out like this for you. I really think

that if you call Dr. B's office that he can help you. Maybe that you need

to go to his compounder---Irmat in NY. Please keep us informed of your

condition. Keeping you in my prayers.

Marie

----- Original Message -----

From: " Sally " <salpal@...>

<low dose naltrexone >

Sent: Friday, September 05, 2003 9:16 PM

Subject: [low dose naltrexone] I REALLY HATE TO RAIN ON YOUR PARADE

> Hi all, I have been reading your wonderful uplifting posts about

> your experiences with LDN. I so wish I could have the joy that you

> are feeling right now.....but alas, I think I am having an

> exacerbation. I can barely walk and am very stiff and sore.....even

> my hands and fingers are weak and tingly and that is a new symptom.

>

> I have a friend, who is Dr. Bahari's patient and she tells me that I

> should get the original formula of LDN from him and start

> over.....so I am going to do that to see how it works. She is doing

> wonderfully, like you, and only after standing at her job for 4 hrs

> does she even feel like she has ms anymore. She has been on LDN

> since Dec 2002 and did well right from the start, had no SEs and was

> back to normal by the time I started ldn in Apr 2003. She was on

> 4.5mg right from the beginning.

>

> So I am going to stop the LDN until my compounder gets the original

> formula from Dr. Bahari and sends it to me. Maybe a fresh start is

> what I need.

>

> I did very well at the beginning....got my balance back and I could

> really feel the endorphine lift. But for the past week or so, I

> have been going down hill and yesterday I fell on my butt...out of

> nowhere, just fell. I am also having spasms again, very painful.

>

> Please think good thoughts for me, as I enter a new phase of LDN.

>

> God bless you all, Sally

>

>

>

>