Re: Dr. Bihari - questions

[Guest guest]

Hi Kathy,

Good questions, but you have to understand that , in my opinion,

those of us who are using LDN are doing so not necessarily because of

a doctors recommendation, but because we want to believe that there

is something better than mainstream, and we think we found it. You

have to be able to think 'outside' of the box on this. It's more of a

personal decision, and a personal quest to find it, get it, and use

it. Most doctors wont recommend something like LDN, for liability and

monetary reasons, you cant really blame them, they have a set of

standards they have to follow. But if you really want to start using

LDN, you've probably noticed by now that there IS a way to get it.

Good luck,

[Guest guest]

I don't personally have the answers to those questions but I certainly think

that an air of legitamacy should be lended to all of this. Would make things

a lot easier for all involved no doubt. I can only guess that several issues

are at play here. First of all you would have to realize that Dr. Bihari is

one man doing research and has done a lot of research with aids patients

more so then MS patients. He has no ax to grind and probably does not the

time or ability to buck the system so to speak. I'm sure he does not have

the money that all that would take either. We just need someone to spearhead

all this. These are all my own personal assumptions. You might ask one of

those doctors if they had indeed experimented with a drug that seemed to do

wonders for a certain disease and they had a lot of opposition from

pharmaceutical companies that made billions on the competing treatments,

what they would do to lend legitamacy to their studies and if they would be

willing to mortgage the house and then some for it. No one has anything to

gain by doing all this other then all of us that are benefiting from the

halting of our MS. I do think that Dr. Bihari does have some of his work

recorded somewhere. He is not some fly by night doctor. I just wish I knew

more about all of this to help you. Perhaps this is a question that someone

can bring up when they visit him the next time or perhaps the webmaster

could answer for us. These are all very legitimate questions. I'm sure that

several of the members that have used the over the phone consult could

better explain how that was handled. In my mind I am sure that part of that

whole issue deals with the fact that any doctor could look at this

medication and realize that it is just so harmless at this low dose and FDA

approved at a much higher dose for almost 20 years now. You might want to

mention that little issue of it being pretty much an orphan drug at this

point. I'm sure the doctors will be familiar with that. Oh boy...think I am

just ranting at this point....lol. Anyone else have any thoughts on this

subject? Not even sure about the MS society but didn't someone say that they

get quite a bit of money from those pharmaceutical companies? Things that

make you go hmmmmm......Joyce.

From: " Kathy Young "

low dose naltrexone

Subject: [low dose naltrexone] Dr. Bihari - questions

Date: Mon, 25 Aug 2003 16:26:36 -0000

hi!

Well, now my neuro is not comfy prescribing LDN for me. I can really

understand that, and can live with it.

Let me ask you if you know what he asked me.

Why has Dr. Bihari not published information in medical journals

indicating the results of LDN on various diseases?

I know the LDN site is great, but it's not really affiliated with Dr.

Bihari (is it?). It's a separate site, and I'm not sure I understand

exactly who maintains it.

I'm just trying to understand this better since my doctor posed the

questions. I'm not trying to get proof from you all that it works! I

have definitely decided on LDN, just now am wondering if I should

wait to see if/when I have another attack. Maybe I never would? OR,

at least wait until I have more MRI and see if new lesions show up.

BUT, still considering calling Dr Sullivan. Right now I'm just

confused.

My doc thinks the MS foundations would jump on a cheaper drug that

WORKS. Does anyone know why Bihari himself, hasn't made postings?

or, if he has, where are they? I would really prefer for MY doctor

to give me this medication. I would like that he was comfortable

doing it. He did say he would give me MS drugs right now, my % of MS

are 40-50% at this point.

And, people have said, what kind of doctors (Bihari & Sullivan),

would prescribe you drugs w/out ever having seen you, or have copies

of your MRI, or your medical history?

Please don't think I'm being sarcastic either, I am not, I'm just

basically relaying questions I've been asked by skeptics. Myself,

I'm not skeptical of either doctor. Maybe they do ask you for copies

of medical stuff? do they? I have my MRI reports, but that is all I

have in my possession.

Please give me some thoughts! I'm at a very confusing point. I was

set to go on LDN if he prescribed it, now he won't, and posed

questions and I'm just going to read some more for the moment.

thanks!!

Kathy

_________________________________________________________________

Get MSN 8 and help protect your children with advanced parental controls.

http://join.msn.com/?page=features/parental

[Guest guest]

Oh one thing Kathy.....have your doctor call Dr. Bihari direct..I've heard

it said that he never refuses a call from another doctor wanting info about

the LDN. Joyce.

From: " Kathy Young " <schnebbles@...>

low dose naltrexone

Subject: [low dose naltrexone] Dr. Bihari - questions

Date: Mon, 25 Aug 2003 16:26:36 -0000

hi!

Well, now my neuro is not comfy prescribing LDN for me. I can really

understand that, and can live with it.

Let me ask you if you know what he asked me.

Why has Dr. Bihari not published information in medical journals

indicating the results of LDN on various diseases?

I know the LDN site is great, but it's not really affiliated with Dr.

Bihari (is it?). It's a separate site, and I'm not sure I understand

exactly who maintains it.

I'm just trying to understand this better since my doctor posed the

questions. I'm not trying to get proof from you all that it works! I

have definitely decided on LDN, just now am wondering if I should

wait to see if/when I have another attack. Maybe I never would? OR,

at least wait until I have more MRI and see if new lesions show up.

BUT, still considering calling Dr Sullivan. Right now I'm just

confused.

My doc thinks the MS foundations would jump on a cheaper drug that

WORKS. Does anyone know why Bihari himself, hasn't made postings?

or, if he has, where are they? I would really prefer for MY doctor

to give me this medication. I would like that he was comfortable

doing it. He did say he would give me MS drugs right now, my % of MS

are 40-50% at this point.

And, people have said, what kind of doctors (Bihari & Sullivan),

would prescribe you drugs w/out ever having seen you, or have copies

of your MRI, or your medical history?

Please don't think I'm being sarcastic either, I am not, I'm just

basically relaying questions I've been asked by skeptics. Myself,

I'm not skeptical of either doctor. Maybe they do ask you for copies

of medical stuff? do they? I have my MRI reports, but that is all I

have in my possession.

Please give me some thoughts! I'm at a very confusing point. I was

set to go on LDN if he prescribed it, now he won't, and posed

questions and I'm just going to read some more for the moment.

thanks!!

Kathy

_________________________________________________________________

Get MSN 8 and help protect your children with advanced parental controls.

http://join.msn.com/?page=features/parental

[Guest guest]

I do everything via phone and fax

I can hardly get out of my house and my doctors work with me

so do my pharmacies

I get everything sent to me by mail or they drop it to me

I hope this helps.

Some doctors don't charge the full price for me anymore.

In Dr. Bihari's case you have to pay up front to talk to him once you

fax everything to his office. He can usually tell by blood tests as

well not just MRI results.

I hope this helps

and boy he would be way too busy to come on forum though I did ask him

about it said he didn't have the time

phone and fax are my life.

Hope this helps

Mira

On Monday, Aug 25, 2003, at 13:48 US/Central, wkendz 32 wrote:

> I don't personally have the answers to those questions but I certainly

> think

> that an air of legitamacy should be lended to all of this. Would make

> things

> a lot easier for all involved no doubt. I can only guess that several

> issues

> are at play here. First of all you would have to realize that Dr.

> Bihari is

> one man doing research and has done a lot of research with aids

> patients

> more so then MS patients. He has no ax to grind and probably does not

> the

> time or ability to buck the system so to speak. I'm sure he does not

> have

> the money that all that would take either. We just need someone to

> spearhead

> all this. These are all my own personal assumptions. You might ask one

> of

> those doctors if they had indeed experimented with a drug that seemed

> to do

> wonders for a certain disease and they had a lot of opposition from

> pharmaceutical companies that made billions on the competing

> treatments,

> what they would do to lend legitamacy to their studies and if they

> would be

> willing to mortgage the house and then some for it. No one has

> anything to

> gain by doing all this other then all of us that are benefiting from

> the

> halting of our MS. I do think that Dr. Bihari does have some of his

> work

> recorded somewhere. He is not some fly by night doctor. I just wish I

> knew

> more about all of this to help you. Perhaps this is a question that

> someone

> can bring up when they visit him the next time or perhaps the webmaster

> could answer for us. These are all very legitimate questions. I'm sure

> that

> several of the members that have used the over the phone consult could

> better explain how that was handled. In my mind I am sure that part of

> that

> whole issue deals with the fact that any doctor could look at this

> medication and realize that it is just so harmless at this low dose

> and FDA

> approved at a much higher dose for almost 20 years now. You might want

> to

> mention that little issue of it being pretty much an orphan drug at

> this

> point. I'm sure the doctors will be familiar with that. Oh boy...think

> I am

> just ranting at this point....lol. Anyone else have any thoughts on

> this

> subject? Not even sure about the MS society but didn't someone say

> that they

> get quite a bit of money from those pharmaceutical companies? Things

> that

> make you go hmmmmm......Joyce.

>

>

> From: " Kathy Young "

> low dose naltrexone

> Subject: [low dose naltrexone] Dr. Bihari - questions

> Date: Mon, 25 Aug 2003 16:26:36 -0000

> hi!

> Well, now my neuro is not comfy prescribing LDN for me. I can really

> understand that, and can live with it.

> Let me ask you if you know what he asked me.

> Why has Dr. Bihari not published information in medical journals

> indicating the results of LDN on various diseases?

> I know the LDN site is great, but it's not really affiliated with Dr.

> Bihari (is it?). It's a separate site, and I'm not sure I understand

> exactly who maintains it.

> I'm just trying to understand this better since my doctor posed the

> questions. I'm not trying to get proof from you all that it works! I

> have definitely decided on LDN, just now am wondering if I should

> wait to see if/when I have another attack. Maybe I never would? OR,

> at least wait until I have more MRI and see if new lesions show up.

> BUT, still considering calling Dr Sullivan. Right now I'm just

> confused.

> My doc thinks the MS foundations would jump on a cheaper drug that

> WORKS. Does anyone know why Bihari himself, hasn't made postings?

> or, if he has, where are they? I would really prefer for MY doctor

> to give me this medication. I would like that he was comfortable

> doing it. He did say he would give me MS drugs right now, my % of MS

> are 40-50% at this point.

> And, people have said, what kind of doctors (Bihari & Sullivan),

> would prescribe you drugs w/out ever having seen you, or have copies

> of your MRI, or your medical history?

> Please don't think I'm being sarcastic either, I am not, I'm just

> basically relaying questions I've been asked by skeptics. Myself,

> I'm not skeptical of either doctor. Maybe they do ask you for copies

> of medical stuff? do they? I have my MRI reports, but that is all I

> have in my possession.

> Please give me some thoughts! I'm at a very confusing point. I was

> set to go on LDN if he prescribed it, now he won't, and posed

> questions and I'm just going to read some more for the moment.

> thanks!!

> Kathy

>

> _________________________________________________________________

> Get MSN 8 and help protect your children with advanced parental

> controls.

> http://join.msn.com/?page=features/parental

>

>

>

[Guest guest]

I know Dr. Bihari said he would talk to any doctor or pharmacy if they

wish to talk about LDN.

I gave all my doctors and pharmacy his numbers.

Mira

On Monday, Aug 25, 2003, at 13:49 US/Central, wkendz 32 wrote:

> Oh one thing Kathy.....have your doctor call Dr. Bihari direct..I've

> heard

> it said that he never refuses a call from another doctor wanting info

> about

> the LDN. Joyce.

>

>

> From: " Kathy Young " <schnebbles@...>

> low dose naltrexone

> Subject: [low dose naltrexone] Dr. Bihari - questions

> Date: Mon, 25 Aug 2003 16:26:36 -0000

>

> hi!

>

> Well, now my neuro is not comfy prescribing LDN for me. I can really

> understand that, and can live with it.

>

> Let me ask you if you know what he asked me.

>

> Why has Dr. Bihari not published information in medical journals

> indicating the results of LDN on various diseases?

>

> I know the LDN site is great, but it's not really affiliated with Dr.

> Bihari (is it?). It's a separate site, and I'm not sure I understand

> exactly who maintains it.

>

> I'm just trying to understand this better since my doctor posed the

> questions. I'm not trying to get proof from you all that it works! I

> have definitely decided on LDN, just now am wondering if I should

> wait to see if/when I have another attack. Maybe I never would? OR,

> at least wait until I have more MRI and see if new lesions show up.

> BUT, still considering calling Dr Sullivan. Right now I'm just

> confused.

>

> My doc thinks the MS foundations would jump on a cheaper drug that

> WORKS. Does anyone know why Bihari himself, hasn't made postings?

> or, if he has, where are they? I would really prefer for MY doctor

> to give me this medication. I would like that he was comfortable

> doing it. He did say he would give me MS drugs right now, my % of MS

> are 40-50% at this point.

>

> And, people have said, what kind of doctors (Bihari & Sullivan),

> would prescribe you drugs w/out ever having seen you, or have copies

> of your MRI, or your medical history?

>

> Please don't think I'm being sarcastic either, I am not, I'm just

> basically relaying questions I've been asked by skeptics. Myself,

> I'm not skeptical of either doctor. Maybe they do ask you for copies

> of medical stuff? do they? I have my MRI reports, but that is all I

> have in my possession.

>

> Please give me some thoughts! I'm at a very confusing point. I was

> set to go on LDN if he prescribed it, now he won't, and posed

> questions and I'm just going to read some more for the moment.

>

> thanks!!

> Kathy

>

> _________________________________________________________________

> Get MSN 8 and help protect your children with advanced parental

> controls.

> http://join.msn.com/?page=features/parental

>

>

>

[Guest guest]

For more information about LDN and MS, etc., you might try

www.mwt.net/~drbrewer . There appears to be a world of info there about

LDN. If you probe that site far enough you will find some of the info is

free. The rest you pay for.

Noland

----- Original Message -----

From: " Kathy Young " <schnebbles@...>

<low dose naltrexone >

Sent: Monday, August 25, 2003 10:26 AM

Subject: [low dose naltrexone] Dr. Bihari - questions

> hi!

>

> Well, now my neuro is not comfy prescribing LDN for me. I can really

> understand that, and can live with it.

>

> Let me ask you if you know what he asked me.

>

> Why has Dr. Bihari not published information in medical journals

> indicating the results of LDN on various diseases?

>

> I know the LDN site is great, but it's not really affiliated with Dr.

> Bihari (is it?). It's a separate site, and I'm not sure I understand

> exactly who maintains it.

>

> I'm just trying to understand this better since my doctor posed the

> questions. I'm not trying to get proof from you all that it works! I

> have definitely decided on LDN, just now am wondering if I should

> wait to see if/when I have another attack. Maybe I never would? OR,

> at least wait until I have more MRI and see if new lesions show up.

> BUT, still considering calling Dr Sullivan. Right now I'm just

> confused.

>

> My doc thinks the MS foundations would jump on a cheaper drug that

> WORKS. Does anyone know why Bihari himself, hasn't made postings?

> or, if he has, where are they? I would really prefer for MY doctor

> to give me this medication. I would like that he was comfortable

> doing it. He did say he would give me MS drugs right now, my % of MS

> are 40-50% at this point.

>

> And, people have said, what kind of doctors (Bihari & Sullivan),

> would prescribe you drugs w/out ever having seen you, or have copies

> of your MRI, or your medical history?

>

> Please don't think I'm being sarcastic either, I am not, I'm just

> basically relaying questions I've been asked by skeptics. Myself,

> I'm not skeptical of either doctor. Maybe they do ask you for copies

> of medical stuff? do they? I have my MRI reports, but that is all I

> have in my possession.

>

> Please give me some thoughts! I'm at a very confusing point. I was

> set to go on LDN if he prescribed it, now he won't, and posed

> questions and I'm just going to read some more for the moment.

>

> thanks!!

> Kathy

>

>

>

>

[Guest guest]

Hi Kathy,

[...]

> Let me ask you if you know what he asked me.

I think it's interesting that he at least asked you these questions..

my local neurologist here in Binghamton didn't even want to bother

with anything like that.. all he kept saying was that he wouldn't take

the chance that he might lose his license should something happened to

me because of LDN <grin>.. I can't wait for my next appointment with

him.. he'll see that something indeed _did_ happen here <smile>.. but

not what he was worried about ... yesteday, I actually went up a

flight of steps to the second floor (old victorian house) with about

no effort at all.. this was amazing to me.. my daughter even exclaimed

when she saw me coming <grin>.

> Why has Dr. Bihari not published information in medical journals

> indicating the results of LDN on various diseases?

As some have said here, your Dr. should call Dr. Bihari for those

kinds of details..

> I know the LDN site is great, but it's not really affiliated with Dr.

> Bihari (is it?). It's a separate site, and I'm not sure I understand

> exactly who maintains it.

Dr. Bihari is involved in it from what I understand.. When he was

speaking with me on the telephone, he said to me that the page was

going to be updated 'shortly' .. and then it was - so I would expect

that someone in his office does take care of that for him (makes

sense.. I wouldn't expect him to do that himself).

[...]

> My doc thinks the MS foundations would jump on a cheaper drug that

> WORKS. Does anyone know why Bihari himself, hasn't made postings?

Could be expense.. could be that until a double-blind study is done,

postings in the journals aren't possible.. I really have no idea.

> And, people have said, what kind of doctors (Bihari & Sullivan),

> would prescribe you drugs w/out ever having seen you, or have copies

> of your MRI, or your medical history?

>

Heh.. My primary neurologist of the last 20 some years has been Dr.

Mark Horwich, who is affiliated with Cornell-Medical Center/NY

Hospital, and who maintains an office on E. 68th St, Manhatten..

I've always thought he was tops with his treatment of me and MS.. but

after speaking with Dr. Bihari, I couldn't remember Dr. Horwich being

as thorough in his questions regarding not only my situation with MS,

but also with my complete family history.. (children, sisters, etc.

etc.). Dr. Bihari was on the phone with me for at least an hour. He

knows my complete medical history now <grin>

If I hadn't been diagnosed yet, I could see one's concerns..

> Maybe they do ask you for copies

> of medical stuff? do they? I have my MRI reports, but that is all I

> have in my possession.

Well, he asked me for my neurologist's name, etc, and I wouldn't doubt

he's contaced Horwich's office if he felt the need for those type

reports.. but geez, I've had MS for 28 years this July I think

there's a point when all that paperwork becomes a bit redundant, you

know?

>

> Please give me some thoughts! I'm at a very confusing point. I was

> set to go on LDN if he prescribed it, now he won't, and posed

> questions and I'm just going to read some more for the moment.

See if your Doc will call Dr. Bihari to get those questions answered..

Then perhaps then he will prescibe it for you.. if not, well, take

things one step at a time..

Take care,

Janis

[Guest guest]

Hi Kathy,

I went to see Dr. Bihari in May but that was the day that he was taken to

the hospital so I never did see him. but I brought my medical records with

me and my previous MRI's. I left them in his office and then the following

week I had a phone conversation with him. The secretary told me to bring any

records that pertained to my health.

Marie

----- Original Message -----

From: " Kathy Young " <schnebbles@...>

<low dose naltrexone >

Sent: Monday, August 25, 2003 12:26 PM

Subject: [low dose naltrexone] Dr. Bihari - questions

> hi!

>

> Well, now my neuro is not comfy prescribing LDN for me. I can really

> understand that, and can live with it.

>

> Let me ask you if you know what he asked me.

>

> Why has Dr. Bihari not published information in medical journals

> indicating the results of LDN on various diseases?

>

> I know the LDN site is great, but it's not really affiliated with Dr.

> Bihari (is it?). It's a separate site, and I'm not sure I understand

> exactly who maintains it.

>

> I'm just trying to understand this better since my doctor posed the

> questions. I'm not trying to get proof from you all that it works! I

> have definitely decided on LDN, just now am wondering if I should

> wait to see if/when I have another attack. Maybe I never would? OR,

> at least wait until I have more MRI and see if new lesions show up.

> BUT, still considering calling Dr Sullivan. Right now I'm just

> confused.

>

> My doc thinks the MS foundations would jump on a cheaper drug that

> WORKS. Does anyone know why Bihari himself, hasn't made postings?

> or, if he has, where are they? I would really prefer for MY doctor

> to give me this medication. I would like that he was comfortable

> doing it. He did say he would give me MS drugs right now, my % of MS

> are 40-50% at this point.

>

> And, people have said, what kind of doctors (Bihari & Sullivan),

> would prescribe you drugs w/out ever having seen you, or have copies

> of your MRI, or your medical history?

>

> Please don't think I'm being sarcastic either, I am not, I'm just

> basically relaying questions I've been asked by skeptics. Myself,

> I'm not skeptical of either doctor. Maybe they do ask you for copies

> of medical stuff? do they? I have my MRI reports, but that is all I

> have in my possession.

>

> Please give me some thoughts! I'm at a very confusing point. I was

> set to go on LDN if he prescribed it, now he won't, and posed

> questions and I'm just going to read some more for the moment.

>

> thanks!!

> Kathy

>

>

>

>