Guest guest Posted August 25, 2003 Report Share Posted August 25, 2003 Hi Elyse, does almost 50 qualify? I am on ldn almost 2 months. So far my bladder control has improved tremendously (after 2 week) My left hand weakness improved to where I can crochet for an hour(used to be 10-15minutes.) Balance improved a little. I still need my cane and ability to walk more distance is not that much improved. Alot less fatigue.(I was not too bad, but did need a nap 3-4 times a week . Now it is 1-2x/wk.) The fact that I am no longer injecting Rebif has helped the stiffness. I know the rebif was causing most of it. All in all, I have not felt this good in a very long.....time. Please feel free to ask me anything else that may be of help. It took me a whole year to try ldn. I reached a point where I felt I had nothing to lose.You must be totally comfortable with your decision. Kiki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2003 Report Share Posted August 25, 2003 Elyse, I'm 52 and believe I have progressive MS as I've had no definite relapses since symptom onset/diagnosis a year ago. I've been on LDN for 17 days with no symptomatic changes as yet.--Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2003 Report Share Posted August 26, 2003 Mira, when will you begin the LDN. Thought you were on it already. Kiki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2003 Report Share Posted August 26, 2003 Pls. share that info it would be great. On Monday, Aug 25, 2003, at 15:42 US/Central, elyse scerbo wrote: > seek to speak with folks who have taken naltrexone who are older and > learn what has changed specifically > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2003 Report Share Posted August 27, 2003 I am 50 plus and since taking LDN have seen a change in my balance for the good. I sleep better than I have in years. My hand doesn't go numb at night. I feel good inside. I think that I walk better. I think that my spasms have improved.. Also on the Roy swank diet and am doing physical and water therapy. I also take supplements. But one day i forgot to take my LDN and the next day around 5pm my balance went haywire. Marie ----- Original Message ----- From: <wordww@...> " elyse scerbo " <elyse_peace@...> Cc: <low dose naltrexone > Sent: Monday, August 25, 2003 8:23 PM Subject: Re: [low dose naltrexone] CPMS/50+ years old > Pls. share that info it would be great. > > On Monday, Aug 25, 2003, at 15:42 US/Central, elyse scerbo wrote: > > > seek to speak with folks who have taken naltrexone who are older and > > learn what has changed specifically > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2003 Report Share Posted August 27, 2003 I 'm 51. I've been using LDN since late March. I've done the juggling act with dosage, going back and forth between 3.0 and 4.5 mgs. I was diagnosed with MS 15 years ago. I use a walker, a cane (for short distances), and at work I use a wheel chair since the building I work in expands dozens of acres. Overall, have I improved over the past 5+ months? Not really, but I feel better. There were days that I thought I was really improving, but then I'd regress some. The stress of work doesn't help so I take that into account. BUT, I haven't gotten worse and I don't miss the Avonex injections one bit! Nor do I miss the exorbitant (sorry if this is misspelled!) cost (even with insurance, Avonex was costing me $300/month). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2003 Report Share Posted August 29, 2003 Hi Elyse, In response to your question as to why I waited so long to try ldn.....(an honest answer) Do you know the saying..if it's too good to be true.... I thought Dr. Bihari may be a Quack!! I could find no other info except for the ldn website and felt I could not trust only that. No one I had spoken(all MS people) to had even heard about it. I brought it up to my neuro and she said, "I have heard of it but there are NO CLINICAL TRIALS!" I was diagnosed 2 yrs ago and fought taking any drugs but I started to fall and get worse.I heard all about this wonder drug Rebif, which was allowed to enter the US market earlier because it was so great.Well..one year later(on rebif) I am worse! Made an appointment with Dr. Bihari and fell in love with him.He is an older man, tall,kind,gentle, of Hungarian descent. Sooooooo dedicated and simple. He spent 2hrs.+ with my husband and I.(I have spent more money on 10 minute appts. in NY wich included rudeness and misdiagnosis) I decided LDN was the route for me.I had nothing to lose. I have always taken care of myself(I was a phys. ed teacher) I go to MS Yoga, Water aerobics, Gym, and take vitamins and eat well. I am angry with myself for not following my gut sooner. (I can say that now in retrospect.) I have never been one to believe doctors without researching. I was so scared and it seemed I knew more than all the other MSers I was asking for info from (ergo the Rebif.)This group is wonderful but it was not around before . There is some very good info on it(some chit chat too) but everyone is here because of their experience withLDN. Ask anything you want, anytime.Only you can decide what is good for Elyse. Sorry I rambled on....Kiki Quote Link to comment Share on other sites More sharing options...
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