RE: LDN, doctors, neurologists...

[Guest guest]

Very true I do believe its better to find something that can help

your body produce interferon rather than interferon straight.

I used to use something called immune prime to make interferon in my

system

I hope yo do find a good doctor who will help prescribe it. From what I

see there is no harm at all in trying it.

I know it depends on how desperate a person is and how understanding

their doctors are.

I hope yours is read to be educated.

Mira

On Monday, Aug 25, 2003, at 15:42 US/Central, Sullivan wrote:

> I'm sure a lot of doctors and neurologists will not prescribe LDN.

>

> There are a lot of ESP (economic, social, political) reasons not to.

>

> I intend to give my neurologist and my GP *one* *chance* to prescribe

> it for me, and then I go the other route. The doctors who are

> prescribing

> it already without seeing your whole file probably already believe it

> will

> help. Remember that they all took an oath to do no harm.

>

> That is the very least you can say about this drug: that it will do no

> harm. It may help. My doctors will not prescribe vitamin C to me but

> I

> take it. They don't distribute any vitamins to in-patients at

> hospitals,

> as a default thing, but considering the food, many should take them

> anyway.

>

> What matter most to me as a PwMS are that Drs. Bihari and Zagon think

> they

> have

> found a way to treat a part of the immune system, the system that is

> broken

> in MS and other diseases, that this is an orphan drug, and that the

> dose is

> one sixteenth that normally given for human drug addiction and

> approved for

> medical

> use by the FDA, and in Canada. Both of them *have* written papers on

> endorphin

> receptors. What do you think would happen if Dr. Bihari gave a press

> conference

> and announced to the world that LDN " cure " s all those diseases? His

> pockets

> are

> not deep enough to fully investigate these claims. All he has are

> anecdotes.

>

> There are precautions against with taking the therapy incorrectly.

>

> There is discord between LDN and the interferons. This means taking

> LDN as

> intended may involve going against your neurologist's recommendations

> for

> *other*

> medication. That is your personal decision, which no one can

> legitimately

> advise you on *except* your neurologist, and perhaps your GP.

>

> Personally I think I have neutralizing antibodies to alpha-1a

> interferon,

> and will be tested before I do anything. Then I will go on copaxone

> if my

> neurologist agrees, no ABCRs at all if not, and try LDN therapy by

> whatever

> means necessary. I will also titrate myself off interferon because I

> am

> afraid

> to trigger another relapse by going " cold turkey " .

>

> I am not saying anything about whether anyone should or shouldn't take

> interferon as well as LDN. I just want to avoid it myself.

>

> -Sullivan

>

>

>

>

[Guest guest]

I was intrigued by the final paragraph of your post. My wife shot Avonex and Rebif for over four years, slowly and steadily going down hill.I have been watching this board for months now, and, unless I missed a couple of posts, I can't remember anybody writing that they had a good experience with the beta interferons in treating their MS. I just can't remember anybody having anything good to say, but I do vividly remember a lot of folks blasting the three of them out of the water. Since starting LDN, my wife has been able to do some things that she hasn't been able to do in years. Unfortunately, these "miracle moments" are still happening between 2 and 6 a.m., but they are happening. Now, if we can just get that window to spread out in both directions, we're really onto something. Maybe with time. -Al "I'm not here to be history; I'm here to make history!" I am not saying anything about whether anyone should or shouldn't takeinterferon as well as LDN. I just want to avoid it myself.-Sullivan