Oh! Happy Anniversary to MSWatchers, an interesting year

[Guest guest]

Group Info

Members: 102

Founded: Aug 25, 2002

Language: English

Just realized the date! One year ago today I was inspired to create MSWatchers. MSWatch was my first and only MS communication medium at the time. I started MSWatchers here on because I was meeting people and talking via email. I found I would repeat a lot of the same things, so I decided to start a group so that I could keep in touch with the people I got to know, as well as having a place for the people I met to also meet other people with MS. And so MSWatchers grew.

After I heard about LDN in October, the group changed, my focus changed. I kept getting worse and worse and even the people around me were facing difficulties. July-November saw 3 heart attacks and open hearts were performed, one was a quad. Just before New Years Eve, friends had a car accident and were in the hospital instead of with us NYE. And a lot more. I wrote an email Goodbye 2002, but it continued past 2002, through March and into April. I spent Feb/Mar doing allergy testing. And then April 10th I got my prescription, April 15th I got my first LDN fill, and April 17th I started LDN. Then the fun began. My legs stopped shaking, my bladder stopped frequently urgenting, my T5 hugging and spasming went away, I discovered I could curl my left foot toes (after 43 years of not being able to). I took a test run overnight in mid June, was on my feet for 11 hours and walking in muddy grounds. Was a pretty good time. Decided I'd plan some camping trips. July 4th it all started. Appropriate day to gain my Independence, eh? LOL.

Many new groups formed in the last year. A few years ago we would all suffer with our family and friends being our only resources, other than the almighty neuro we were more than likely referred to, rather than hand picked ourselves. I still think, as many people with MS that will ready this message, we are still an INVISIBLE COMMUNITY. Sometimes a Spammer finds out, but for the most part, nobody really knows what we life with every day, what we go through, how we feel when they say things that they just won't hear our reason, it's "just an excuse" "Oh, so now you're going to use this MS as an EXCUSE every time?" Um, well, like, no, I have been using it as one, we just didn't know it, now that we know it, STOP COMPLAINING and criticizing. But now that I know it, they can think and say what they want. I know when I can, when I can't, and I do what I do, and that's all I'm gonna do, let them think what they want. They either choose to be with me for who I am, or they can just drift away. The ones that haven't gone away still don't quite get it. I can't control their understanding, but I sure have come a long way in the last year.

Thanks to all of you who have been with me through varying periods of it. And a special thanks to you few who've been with me the longest. I had quite a universe online before I was DX with MS. I knew NOBODY with MS personally, and even though I was living with Annual Exacerbations since 1993, the few people online who said they had MS wasn't something I understood. That's part of the reason I say we ARE invisible to the world. But we're starting to gather a lot of mirrors around, and the Movie Project (the message board at Your Movie Project .COM) http://www.yourmovieproject.com will hopefully put MS in a human public light when the book is published.

Wasn't expecting to type this much, but typing long messages to people with MS is IT for me. The only reason I would have ever pursued anything, and was, for 10 years worth, was because it interfered with my typing ability. You can mess with my legs, you can mess with my bladder, my back, my neck, but DON'T interfere with my ability to TYPE! That caught my attention. In March 2002, I thought I'd never type again. It was very strange seeing my left hand on a keyboard and my finger just freezing, floating, hanging out above the letter T, or E, or W or Q, for moments at a time, before moving again. I didn't understand it. I still think it's amazing that that can happen. I wouldn't understand it if I didn't see it myself, if I didn't live it. So I am very thankful I can type again. So that is why sometimes my messages are long. So sorry Once I get on the road, I won't see a keyboard before September, when I realize the day, I figured I'd let my fingers remember a year ago.

Good luck to us all! This is the Club none of us have asked to join, these forums help us all realize we are not alone. Most of us have many similar family and friend interactions. Without seeing other people type what we can ourselves type, we'd think we were alone. Thanks for reading my messages over the last year around the groups. I hope my Wayne Dyer and other sharings have helped and brought some smiles around the MS world. I'm listening to him now on my windows media player. Chiropractic, Wayne Dyer, lin Time Management and my LDN. One year ago I mentioned the first 3. Now I have 4 tricks in my Felix the Cat Magic Bag of Tricks. I was impressed in June with what is has done for me, or helped me do for myself, I don't know... but it sure did what it did. And now I'm having a summer unparalleled and very different. July and August is new and uncharted territory for me.

Mars is closest on Wednesday. It will be my first night out. I get the van in about 9 hours.

And they say that when you send a long message, people only see the first paragraph and then the last... so....

Since Memorial Day, MSWatchers members have been sending out those BUSINESS REPLY cards and fully addressed envelopes back to the companies. We were all going to write or create stickers that simply say 3 words: CURE MULTIPLE SCLEROSIS. All around the country we put them in mail boxes on the major holidays, so they're all there in the next day's pick up. We sent them out Memorial Day and July 4th so far. Labor Day is approaching. If you have been saving them, don't forget to send them out Monday. Not too late to start... all magazines, daily mail deliveries, TV guide.... they're Everywhere! I have a good pile through the summer, and I wasn't even home. My whole family is saving them up in piles. We are READY.

Here's to the Next Year I bcc'd this to more than just the groups I am in, to a few I thought may be interested in reading what we're up to.

-- LarryGC / LarryLDN on some systems

[Guest guest]

Larry,

You are so blessed and such a blessing to those of us with MS.

I never really got to know you, but I wish you the best of luck.

Margie

>

> From: " LarryGC " <larrygc@...>

> Date: 2003/08/26 Tue AM 03:42:41 EDT

> " MSWatchers " <mswatchers >

> Subject: [low dose naltrexone] Oh! Happy Anniversary to MSWatchers, an

interesting year

>

> Group Info

> Members: 102

> Founded: Aug 25, 2002

> Language: English

>

>

>

> Just realized the date! One year ago today I was inspired to create

MSWatchers. MSWatch was my first and only MS communication medium at the time.

I started MSWatchers here on because I was meeting people and talking via

email. I found I would repeat a lot of the same things, so I decided to start a

group so that I could keep in touch with the people I got to know, as well as

having a place for the people I met to also meet other people with MS. And so

MSWatchers grew.

>

> After I heard about LDN in October, the group changed, my focus changed. I

kept getting worse and worse and even the people around me were facing

difficulties. July-November saw 3 heart attacks and open hearts were performed,

one was a quad. Just before New Years Eve, friends had a car accident and were

in the hospital instead of with us NYE. And a lot more. I wrote an email

Goodbye 2002, but it continued past 2002, through March and into April. I spent

Feb/Mar doing allergy testing. And then April 10th I got my prescription, April

15th I got my first LDN fill, and April 17th I started LDN. Then the fun began.

My legs stopped shaking, my bladder stopped frequently urgenting, my T5 hugging

and spasming went away, I discovered I could curl my left foot toes (after 43

years of not being able to). I took a test run overnight in mid June, was on my

feet for 11 hours and walking in muddy grounds. Was a pretty good time.

Decided I'd plan some camping trips. July 4th it all started. Appropriate day

to gain my Independence, eh? LOL.

>

> Many new groups formed in the last year. A few years ago we would all suffer

with our family and friends being our only resources, other than the almighty

neuro we were more than likely referred to, rather than hand picked ourselves.

I still think, as many people with MS that will ready this message, we are still

an INVISIBLE COMMUNITY. Sometimes a Spammer finds out, but for the most part,

nobody really knows what we life with every day, what we go through, how we feel

when they say things that they just won't hear our reason, it's " just an excuse "

" Oh, so now you're going to use this MS as an EXCUSE every time? " Um,

well, like, no, I have been using it as one, we just didn't know it, now that we

know it, STOP COMPLAINING and criticizing. But now that I know it, they can

think and say what they want. I know when I can, when I can't, and I do what I

do, and that's all I'm gonna do, let them think what they want. They either

choose to be with me for who I am, or they can just drift away. The ones that

haven't gone away still don't quite get it. I can't control their

understanding, but I sure have come a long way in the last year.

>

> Thanks to all of you who have been with me through varying periods of it. And

a special thanks to you few who've been with me the longest. I had quite a

universe online before I was DX with MS. I knew NOBODY with MS personally, and

even though I was living with Annual Exacerbations since 1993, the few people

online who said they had MS wasn't something I understood. That's part of the

reason I say we ARE invisible to the world. But we're starting to gather a lot

of mirrors around, and the Movie Project (the message board at Your Movie

Project .COM) http://www.yourmovieproject.com will hopefully put MS in a human

public light when the book is published.

>

> Wasn't expecting to type this much, but typing long messages to people with MS

is IT for me. The only reason I would have ever pursued anything, and was, for

10 years worth, was because it interfered with my typing ability. You can mess

with my legs, you can mess with my bladder, my back, my neck, but DON'T

interfere with my ability to TYPE! That caught my attention. In March 2002, I

thought I'd never type again. It was very strange seeing my left hand on a

keyboard and my finger just freezing, floating, hanging out above the letter T,

or E, or W or Q, for moments at a time, before moving again. I didn't

understand it. I still think it's amazing that that can happen. I wouldn't

understand it if I didn't see it myself, if I didn't live it. So I am very

thankful I can type again. So that is why sometimes my messages are long. So

sorry Once I get on the road, I won't see a keyboard before September, when

I realize the day, I figured I'd let my fingers remember a year ago.

>

>

>

>

> Good luck to us all! This is the Club none of us have asked to join, these

forums help us all realize we are not alone. Most of us have many similar

family and friend interactions. Without seeing other people type what we can

ourselves type, we'd think we were alone. Thanks for reading my messages over

the last year around the groups. I hope my Wayne Dyer and other sharings have

helped and brought some smiles around the MS world. I'm listening to him now on

my windows media player. Chiropractic, Wayne Dyer, lin Time Management and

my LDN. One year ago I mentioned the first 3. Now I have 4 tricks in my Felix

the Cat Magic Bag of Tricks. I was impressed in June with what is has done for

me, or helped me do for myself, I don't know... but it sure did what it did.

And now I'm having a summer unparalleled and very different. July and August is

new and uncharted territory for me.

>

> Mars is closest on Wednesday. It will be my first night out. I get the van

in about 9 hours.

>

>

> And they say that when you send a long message, people only see the first

paragraph and then the last... so....

>

> Since Memorial Day, MSWatchers members have been sending out those BUSINESS

REPLY cards and fully addressed envelopes back to the companies. We were all

going to write or create stickers that simply say 3 words: CURE MULTIPLE

SCLEROSIS. All around the country we put them in mail boxes on the major

holidays, so they're all there in the next day's pick up. We sent them out

Memorial Day and July 4th so far. Labor Day is approaching. If you have been

saving them, don't forget to send them out Monday. Not too late to start... all

magazines, daily mail deliveries, TV guide.... they're Everywhere! I have a

good pile through the summer, and I wasn't even home. My whole family is saving

them up in piles. We are READY.

>

> Here's to the Next Year I bcc'd this to more than just the groups I am in,

to a few I thought may be interested in reading what we're up to.

>

>

>

> -- LarryGC / LarryLDN on some systems

>

>

>

>

>

>