don't accept medical advice from miffed strangers

[Guest guest]

AAaarrrghh! I'm replying to myself again!

I hope NOBODY takes the bad advice I just gave in a fit of madness.

If my own theory is correct, that behaviour could PROVOKE AN MS

ATTACK. Don't mess around with the timing on such a short term or

you may mess up your circadian rhythms but good. OK? Ignore my last

post. Please. I'm not a doctor, and I don't want to cause any

further troubles for anyone. Thanks.

-Sullivan

> > Hello again! I haven't posted in a while, but I haven't missed a

> day on this board. I wanted to weigh in today on two burning

> questions which come up time and again in this forum. Those

> questions would be (a) is it possible, in terms of dose, that less

> might be more? and ( contrary to Dr. Bihari's recommendation,

might

> there be any upside to splitting one's daily dosage? When my wife

> Debbie finally got off Avonex and Rebif after four years on that

> road, she started to get her life back a little. When we got her

> introduced to LDN, more improvement ensued. I've talked with her

at

> length about the threads on this board which discuss why is is

> unlikely that LDN will ever have any clinical studies done for its

> impact on MS because of the $$$$$$$ factor and the antagonism it

> would get from big pharma and the traditional medical mindset. I,

> personally, love the idea that we here - all of us - are running

our

> own clinical study, albeit informal and anecdotal, day in and day

> out . . . . and that our story - our results - mean something - if

> only to us. Truth is, there's power in that - there's an awful lot

> of power in that. We have changed minds already - - like that of

our

> neurologist, who wrote the scripts for both of us based on

> information we brought him from this board. The bottom line is

this.

> LDN has very little downside, comparatively speaking. It's not

like

> that multitude of drugs we see advertised every day on TV which run

> through 90 seconds of side effects - everything from possible

stroke

> to oily discharge (my favorite) - where you're left with the idea

> that the disease couldn't possibly be as bad as the side effects of

> the drugs they're pushing to treat it. Armed with that logic,

three

> days ago we got large prescriptions filled for 1.75 and 1.5 mg. of

> LDN. Our filler, incidentally, is gelatin. Ron, our compounder,

> feels gelatin to be the best for mixing LDN. Deb had been taking 3

> mg. each evening before bed and had been getting some 2 a.m. to 6

> a.m. " miracles " from time to time, but by morning and throughout

the

> day things were pretty much the same as they were before she

started

> LDN. She did that for about 2 months. Three nights ago Deb took

1.5

> mg. before bed and another 1.5 mg. mid-morning. And the difference

> is hard to describe. Aside from all the motor improvements, etc.,

> some of which are sustained throughout the day, I am having a hard

> time believing the attitudinal change. I actually heard her say

she

> felt good yesterday morning for the first time in Heaven knows how

> long. The girl can smile, and that smile was as beautiful

yesterday

> as it was the first day I met her. Three days does not a success

> story make. I know that. But we're 3 for 3 heading into tonight.

> And we're branching off into a relatively fertile area of our

> collective LDN research in this large, collective, clinical study

of

> ours. Semi-pioneers of a sort. Just wanted to report in to the

> troops that things are looking very good on this flank. Certainly

> will keep you posted as we move further down this road. -Al

> >

> > _______________________________________________