Guest guest Posted September 15, 2003 Report Share Posted September 15, 2003 Hi everyone- I've been on LDN now for 3 weeks. I know I have more energy most of the time. Although somedays (like today) I can still sleep 14 hours. Part of that is probably from not having a reason to be active. None the less- I am troubled by the stiffness. I had problems with it before I started taking LDN. Somedays it feels worse. I do a lot of stretching. I know the stretching helps. Anyone have any other ideas? maybe I should try a warm salt water soak? Well- I am sure that the LDN is doing something positive. I do feel better most of the time. Perhaps it's slower going because I've had MS for 26 years. I know there are people in this group who have had MS the same or longer- I'd like to hear what *you* think? thanks everyone- alex (aka: rkd_a, changes id) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2003 Report Share Posted September 15, 2003 I hear you , I am where you are and I have been on LDN for 5 months. There must be a lot more damage to my nerves to correct. I just know that the ldn is stopping the progression. I do feel better since being on ldn.....a feeling of well being......and I just keep HOPE alive, that God will see fit to give me just a little bit more. I was hoping to be a little more ambulatory. Maybe in time huh? Love, Sally > Hi everyone- > I've been on LDN now for 3 weeks. I know I have more energy most of > the time. Although somedays (like today) I can still sleep 14 hours. > Part of that is probably from not having a reason to be active. > None the less- I am troubled by the stiffness. I had problems with it > before I started taking LDN. Somedays it feels worse. I do a lot of > stretching. I know the stretching helps. Anyone have any other ideas? > maybe I should try a warm salt water soak? > Well- I am sure that the LDN is doing something positive. I do feel > better most of the time. Perhaps it's slower going because I've had MS > for 26 years. > I know there are people in this group who have had MS the same or > longer- I'd like to hear what *you* think? > thanks everyone- > alex (aka: rkd_a, changes id) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2003 Report Share Posted September 16, 2003 Hi I think your PT hit the nail on the head....that is exactly what is wrong with me and I know it...need to stretch almost constantly...and i'm going to get on my bike to...I have one like they have in therapy...sits on the floor and you sit in chair and pedal. I like that much better than getting on a bike that hurts your butt. I am going to try splitting my dose too....half at night and half in morning. Will let you know if it works for me. I believe you're right about the stiffness too....I don't think it has anything to do with fillers at all....just your muscles waking up and wanting some attention....the more atrophy you have the more stiffness. The only thing with fillers, would be if you are allergic to it. Thanks for reafirming my feelings....and much love and luck to you. Sally ----- Original Message ----- From: alpha light Sally Sent: Monday, September 15, 2003 11:46 AM Subject: Re: stiffness Hi Sally-et al-I keep thinking... I feel better since starting LDN but I feel stifferthan I use to. It reminds me very much of when I was in physical therapy almost 2years ago.My PT used to tell me with "tone" comes the stiffness. That I neededto do more stretching than exercising. Lots of warms up for these coldmuscles. It did help but I felt like I was climbing a 90° hill.hmmmm....... things are different now- with the LDN.I know I have atrophied muscles.I have been stretching but maybe I need more than that?I'm going to hit some of these garage sales and see if I can find aexercise bike for my cold muscles that the LDN is trying to heat up.I'll bet anyone who is feeling stiff it's because tone is returning tocold muscles- stretch and mild exercise should help relieve some ofthe stiffness. Maybe relieve all of it?thoughts?alex> I hear you , I am where you are and I have been on LDN for 5 > months. There must be a lot more damage to my nerves to correct. I > just know that the ldn is stopping the progression. I do feel > better since being on ldn.....a feeling of well being......and I > just keep HOPE alive, that God will see fit to give me just a little > bit more. I was hoping to be a little more ambulatory. Maybe in > time huh?> > Love, Sally ************************************************************** This message was scanned by the Avast Anti-Virus Gateway ************************************************************** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2003 Report Share Posted October 9, 2003 I too have some stiffness but it isn't at any special time. It seems to be slowly fading a little. B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2003 Report Share Posted October 10, 2003 I am experiencing the same and have been on LDN for 6 months. I'm on 3 mg and even tried 2 mg for a few days. I have to admit that it's scaring me a bit. -----Original Message-----From: szaffa1@... [mailto:szaffa1@...]Sent: Thursday, October 09, 2003 6:34 PMlow dose naltrexone Subject: [low dose naltrexone] Stiffness It has been almost a month now that I am experiencing extreme stiffness and weakness of my right leg between the hours of 3 PM and 9PM. I have been on ldn for 3 months. It has gotten to the point where I can barely walk late in the day and have fallen several times. I'm wondering if anyone else is experiencing the same thing and if it could be a side effect of ldn. Perhaps the timing? I do great late at night and in the morning. Thank you, Stella Quote Link to comment Share on other sites More sharing options...
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