Guest guest Posted August 21, 2003 Report Share Posted August 21, 2003 ha ha Your in the right place. Put your helmet and glasses on and read away We are all in the same boat. Mira On Wednesday, Aug 20, 2003, at 20:02 US/Central, obg14580 wrote: > Hi all .....just joined..... I was wondering if there is anyone > taking LDN and has Multiple Sclerosis. > > Thanks > Cabbie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2003 Report Share Posted August 21, 2003 Hi Cabbie, I've been taking LDN for 2 1/2 months and have had MS for 26 years. Doing great on the LDN and my other regimen. Am on a special diet, supplements and water and physical therapy. all of them are working great together. feel better than I have in years. Good Luck Marie ----- Original Message ----- From: " obg14580 " <Cabbie54@...> <low dose naltrexone > Sent: Wednesday, August 20, 2003 9:02 PM Subject: [low dose naltrexone] MS and LDN > Hi all .....just joined..... I was wondering if there is anyone > taking LDN and has Multiple Sclerosis. > > Thanks > Cabbie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2003 Report Share Posted August 21, 2003 Hi Cabbie, I am taking LDN and was dxn's with MS in '84. There are many others here as well. Diane ----- Original Message ----- From: " obg14580 " <Cabbie54@...> <low dose naltrexone > Sent: Wednesday, August 20, 2003 8:02 PM Subject: [low dose naltrexone] MS and LDN > Hi all .....just joined..... I was wondering if there is anyone > taking LDN and has Multiple Sclerosis. > > Thanks > Cabbie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2008 Report Share Posted March 28, 2008 > > Hi all .....just joined..... I was wondering if there is anyone > taking LDN and has Multiple Sclerosis. > > Thanks > Cabbie > Hi Cabbie, I too have MS after first joining this group I would have given my first born for ldn. It still sounds good. I'm starting to read more messages about disappointments. I was going to get it with no script. I asked my neuro about ldn today. She said she would research it and give me her opinion. Maybe I'm depressed today, but right now I don't care one way or the other. I'm sure you've heard about so many fantastic treatments and cures that just disappear after a while. I'm starting to think ldn is just more snakeoil poured over the MS crowd. This stuff seems to make everything better from asthma to arthritis to crohns and beyond. I hope it works for everyone for everything and i'd love to wear a rainbow everyday. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2008 Report Share Posted March 28, 2008 I take LDN for Secondary Progressive MS and Transverse Myelitis for 2 yrs and 6 months and with great results. My Dr keeps telling me whatever your doing keep doing it and I say its LDN.... Hugs & Blessings, Crystal LDN_Users Group Owner Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 2 years & 6 months on LDN with Skip's Pharmacy..... Crystal's MS,TM & LDN Website Crystal's LDN Gift Shop Crystal's LDN Support Group Skip's Compounding Pharmacy LDN Website [low dose naltrexone] Re: MS and LDN >> Hi all .....just joined..... I was wondering if there is anyone > taking LDN and has Multiple Sclerosis. > > Thanks> Cabbie>Hi Cabbie, I too have MS after first joining this group I would have given my first born for ldn. It still sounds good. I'm starting to read more messages about disappointments. I was going to get it with no script. I asked my neuro about ldn today. She said she would research it and give me her opinion. Maybe I'm depressed today, but right now I don't care one way or the other. I'm sure you've heard about so many fantastic treatments and cures that just disappear after a while. I'm starting to think ldn is just more snakeoil poured over the MS crowd. This stuff seems to make everything better from asthma to arthritis to crohns and beyond. I hope it works for everyone for everything and i'd love to wear a rainbow everyday. Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2008 Report Share Posted March 28, 2008 Hi " newbies " , I have been on LDN for almost 1 month for MS. I look forward to taking it every night vs the Copaxone. I'm not expecting a miracle. I just want to keep from having a relapse and I believe if I take LDN and follow the other recommendations that will happen. Don't get discouraged if your neurologist won't prescribe it. Since it's not approved by FDA in low dose they usually won't. Best thing is to check with your primary care giver. If that person won't there is a list of Doctors that will. Betty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2008 Report Share Posted March 28, 2008 I have so many saved stories of people with great results. I know that there are also those that don't do well, but mostly they do. It is completely worth trying, but don't give up your first born for it. We will find another way. Aletha [low dose naltrexone] Re: MS and LDN >> Hi all .....just joined..... I was wondering if there is anyone > taking LDN and has Multiple Sclerosis. > > Thanks> Cabbie>Hi Cabbie, I too have MS after first joining this group I would have given my first born for ldn. It still sounds good. I'm starting to read more messages about disappointments. I was going to get it with no script. I asked my neuro about ldn today. She said she would research it and give me her opinion. Maybe I'm depressed today, but right now I don't care one way or the other. I'm sure you've heard about so many fantastic treatments and cures that just disappear after a while. I'm starting to think ldn is just more snakeoil poured over the MS crowd. This stuff seems to make everything better from asthma to arthritis to crohns and beyond. I hope it works for everyone for everything and i'd love to wear a rainbow everyday. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2008 Report Share Posted March 28, 2008 Yikes!! , Cabbie's message you quoted was written waaaaaaay back in Aug 2003!! They were a very active member of the group for a while but as with many others seems to have eventually dropped off the list given the LDN was working and they probably got sick of off topic posts etc. Their last post was Aug 2007. I don't have MS myself but a form of motor neurone disease and can tell you it is certainly NOT snakeoil!! The reason why it works for so many conditions is obvious once you appreciate how it is thought to work i.e. by increasing endorphins. Please try it and see for yourself but be aware that nothing works for everybody. That said, it is known that certain things can inhibit its effectiveness so if it doesn't seem to be working for you explain the circumstances on here and we will try to help. scott hilst wrote: > > >> Hi all .....just joined..... I was wondering if there is anyone >> taking LDN and has Multiple Sclerosis. >> >> Thanks >> Cabbie >> >> > Hi Cabbie, I too have MS after first joining this group I would have > given my first born for ldn. It still sounds good. I'm starting to read > more messages about disappointments. I was going to get it with no > script. I asked my neuro about ldn today. She said she would research > it and give me her opinion. Maybe I'm depressed today, but right now I > don't care one way or the other. I'm sure you've heard about so many > fantastic treatments and cures that just disappear after a while. I'm > starting to think ldn is just more snakeoil poured over the MS crowd. > This stuff seems to make everything better from asthma to arthritis to > crohns and beyond. I hope it works for everyone for everything and i'd > love to wear a rainbow everyday. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2008 Report Share Posted March 28, 2008 I am also going to start tapering off my copaxone. I just have one question and concern. What if we have to go to the hospital,say for a surgery. We will probably have to go off LDN for a while.Should we then use copaxone so we won't be unprotected? [low dose naltrexone] Re: MS and LDN Hi "newbies",I have been on LDN for almost 1 month for MS. I look forward to takingit every night vs the Copaxone. I'm not expecting a miracle. I justwant to keep from having a relapse and I believe if I take LDN andfollow the other recommendations that will happen.Don't get discouraged if your neurologist won't prescribe it. Sinceit's not approved by FDA in low dose they usually won't. Best thingis to check with your primary care giver. If that person won't thereis a list of Doctors that will.Betty Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.