trials, alternatives, boredom

[Guest guest]

I am tempted to say that it is because the makers of crabs are

making so much money that the doctors are afraid to cross them.

But it is probably more like the fact that doctors are really

concerned not to harm, and the medication is not approved by

the usual government bodies, plus there are lawyers waiting

to sue anybody I pay them to including doctors who are really

doing good things. The fact that there is a paying customer

who wants to sue is all that matters to them.

Anyway, I was bored waiting for my appointment and wanted to

do *something*. So I thunk back to Crain and Shen, and there

just might be something I can do even if I don't get LDN right

away... I'll let you know.

I talked to somebody about placebo control and we agreed there

must be something less voodoo to use. He said there is another

method that might be better. Trend analysis takes a sick person,

measures them for a while without changing any medication, and then

decides what the trend is. Are they getting better, worse, how fast?

What is the slope of the trend of the measurable, empirical symptom

data? Now start the proposed treatment. See if the slope changes,

and if there are any obvious discontinuities. If enough sick people

are measured one can generalize about what the slope should be on

average. If the trial data is significantly different from average,

the treatment is doing something.

Some people will say that the placebo effect could still explain

the difference. To them I say, if the treatment really works over

say 2 years, and you can fool people into doing the same thing

by telepathy, GO AHEAD AND DO IT. You will be paid handsomely for

your mind power cure.

-Sullivan

>From: Cabbie54@a...

>Date: Sat Sep 20, 2003 5:27 am

>Subject: Fwd: Thank you..........Cabbie

>Hi All

>I really understand the problem between Imuran, Rebif Vs. LDN.

> There has been so many positive changes just in the first

>week that LDN tips the scale. I did talk to my GP yesterday

>and his only solution was to take an antidepressant pill.

>Oh.........Sometimes...he just frustrates me. I asked him again

>to call Dr. Bihari and talk with him. Well, I called and thought

>I had gotten Bill the assistant but the gentlemen who answered

>was Dr. Bihari himself. The Dr. and I did have a short talk and

>we both agreed that I had some issues: starting the diet,

>Imuran, Rebif, depression now with taking LDN. He told me to

>call back and make an appointment with Bill. I am glad that

>I did this because I will get the right answers and present

>to him my concerns.

>Just by talking to a few friends who have MS from my RAMS group,

>they have copied the information on the LDN site and submitted

>it to their DR's. As a matter of fact the one DR. called me

>and got the information on LDN. I told him what I have

>experienced. He asked for the pharmacist's phone number and

>is going to call Kim from the Medicine Shope in Canadaguia.

>I also, encouraged him to call Dr. Bihari. According to my

>friend Bobbie, her DR is an Internist and he is an innovative

>Dr. Also, another friend, has copied and has mailed the

>information from the LDN site to her neuro before her appointment.

> According to , her DR is very open to suggestions.

>What I really do not understand, if we do not have a cure for MS

>and they cannot give us a definite medicine to stop the MS for

>instance ABC R then why are they so adamant about not letting

>us try LDN to see if it does do the trick.

>Thank you all those who responded so quickly to my plight.

>I will find a solution!

>Cabbie