How do you convince your doctor?

[Guest guest]

I have had multiple sclerosis now for 24 years.In in what is called

secondary progressive MS.It where you never get any more remissions

and your old disability damage just stays with you.I have used

crutches for 18yrs and braces the last 13yrs.

I have been on betaseron since it came out better than 10 yrs.Its an

injection and I hate it.But he has managed to greatly slow down

progression of the disease.This is what my neuro clings to and it

will be hard to pry him loose from this mostly stopped progression of

the disease.

I should be grateful but if I can do the same thing with a pill

daily why continue to a " pin cushion " with every injection of

betaseron?

Rosemary

[Guest guest]

> I have had multiple sclerosis now for 24 years.In in what is

called

> secondary progressive MS.It where you never get any more remissions

> and your old disability damage just stays with you.I have used

> crutches for 18yrs and braces the last 13yrs.

> I have been on betaseron since it came out better than 10 yrs.Its

an

> injection and I hate it.But he has managed to greatly slow down

> progression of the disease.This is what my neuro clings to and it

> will be hard to pry him loose from this mostly stopped progression

of

> the disease.

> I should be grateful but if I can do the same thing with a pill

> daily why continue to a " pin cushion " with every injection of

> betaseron?

> Rosemary

I don't. I gave it my best shot and I can't convince either of them.

This list seems to be dominated by PwMS, but some can and some can't.

I hope you do and that it works for you.

-Sullivan

[Guest guest]

When all else fails one can call Dr. Bihari or a Dr. Sullivan on the east

coast. Or, check out www.acam.org or www.lef.org for a forward thinking

Doctor.

Noland

----- Original Message -----

From: " jchrissullivan " <chris_sullivan@...>

<low dose naltrexone >

Sent: Tuesday, September 16, 2003 8:36 AM

Subject: [low dose naltrexone] Re: How do you convince your doctor?

>

> > I have had multiple sclerosis now for 24 years.In in what is

> called

> > secondary progressive MS.It where you never get any more remissions

> > and your old disability damage just stays with you.I have used

> > crutches for 18yrs and braces the last 13yrs.

> > I have been on betaseron since it came out better than 10 yrs.Its

> an

> > injection and I hate it.But he has managed to greatly slow down

> > progression of the disease.This is what my neuro clings to and it

> > will be hard to pry him loose from this mostly stopped progression

> of

> > the disease.

> > I should be grateful but if I can do the same thing with a pill

> > daily why continue to a " pin cushion " with every injection of

> > betaseron?

> > Rosemary

>

> I don't. I gave it my best shot and I can't convince either of them.

>

> This list seems to be dominated by PwMS, but some can and some can't.

>

> I hope you do and that it works for you.

>

> -Sullivan

>

>

>

>