Guest guest Posted August 15, 2006 Report Share Posted August 15, 2006 Ditto to what I just said, but didn't read your post yet. Sorry about adding more tonight (oops) But I am done on this thread:) Thanks a bunch! I had a lot to talk about at my ToastMaters meeting so I considered it good material to discuss *grin* lisa b > > Rick, > it is nice that you are doing so well. > > First, I want to dispel the myth that there are all sorts of supports and programs out there just waiting for us parents to knock on the door and ask. There are pitifully few out there and of those, the price is huge. Nothing is free except subscribing to a group and having friends to support you. That you get for free. > > There are no programs for either of my boys - one is 9, the other almost 18. Last I looked, OT and ST and PT are all to be paid by the parents because insurance many times excludes coverage for people with autism. Ours does. Until we can pass insurance parity for mental health and pervasive developmental disorders, we are pretty screwed here. The amount of therapy and quality given at school is not always the same or worthwhile. > > There are no free social groups either. Just getting the school counselor to look at an agenda for a social skill group is difficult. Then you have someone not even trained helping kids who have no clue. To get in a social group, it costs money. People pay or they do without. > > I think people see that we have a supposed " support system " in place - like an MR/DD, which is our state's way of dealing with disabilities - and they believe that help exists and is provided. They have no clue that this is not the case. Services are few, money is tight, administration is top heavy. They are not standing around waiting for us to show up and ask for help. They are finding ways to get rid of us so they can take care of the people who are more severely disabled. > > Now, having said that, I think we have totally exhausted this subject. Luckily, parents can do whatever they want with their kids and if they choose to keep them home, they can. For whatever reason. And that's ok. Making choices is ok. > > THE END. Let's try a new topic everyone!!! > > Roxanna > Re: ( ) Re: 17 yr old defiance, or Mothers Who Spoil > > > In the United States, Canada, and most first-world countries there are > plenty of resources for helping parents who have Asperger children. > Frequently, there are things like support groups, which are usually > free. And indeed, for children with Asperger's, the most important > resource is knowledge and information, which can be obtained cheaply > or even freely. > > When you are dealing with an Asperger's adult, if he or she wants to > make it in this world, you should support him. At the age of > forty-one, shortly after my diagnosis, I moved back in with my > parents, and my parents are willing to help me because they know that > I am a responsible individual. I don't come home stoned and violent > and attribute it to Asperger's. There are many days (and nights) which > are hard for me, but I don't use that as an excuse to give other > people grief. > > Rick > > . > > > > > Quote Link to comment Share on other sites More sharing options...
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