Guest guest Posted August 26, 2003 Report Share Posted August 26, 2003 Hi--I'd like to hear from primary progressive MSers who've been on LDN more than three months. Any symptomatic improvement? Any progression? Thanks--Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2003 Report Share Posted August 27, 2003 hi Group- Hi Martha- I'm trying to remember how the succession goes. I think I may be... I've had MS for 26 years- too. and on LDN for 1 week now- 3mg. Although I di8d try 4.5 for 3 nights. Until I talked to Wayne Loveland and Dr. 's office. I'll continue at 3 for one more week- then they will up it to 4.5 and make the filler CC. yea! Now here's the nifty thing- today for the fist time, I felt something change. It wasn't much and it didn't last long but it was incredible. For the past year I've had to use my can every time I leave the house (in the house I'm a wall walker). I was walking out in the (unlevel) parking lot and realized... I didn't need my cane. I picked it up and held it in the middle like a toy stick and walked to the house without one stumble or loss of balance. I remember!!! I remember what it felt like to need a cane. I mean at all! It's been years since I walked without fear of stumbling or falling over. I was so excited I came in and sat down right away and just soaked it up. Then called my friend who drove with me to Dr. 's office a week ago monday. What an incredible feeling! God bless me! God bless us all. I'm grateful just for the very clear reminder of being whole. I hope it does it again someday soon. ok- I'm done floating. I'll land now- thank you all for being here! alex > Hi--I'd like to hear from primary progressive MSers who've been on LDN > more than three months. Any symptomatic improvement? Any progression? > Thanks--Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2003 Report Share Posted August 27, 2003 totally awesome . These are the posts that are fun to read. :0)) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2003 Report Share Posted August 27, 2003 OH ALEX...WOW...I AM SO HAPPY FOR YOU...AND I AM REALLY GLAD I STEERED YOU TO DR. SCOTT AND WAYNE.....WONDERFUL NEWS...KEEP IT UP FOR ALL OF US. LOVE, SALLY > > Hi--I'd like to hear from primary progressive MSers who've been on LDN > > more than three months. Any symptomatic improvement? Any progression? > > Thanks--Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2003 Report Share Posted August 29, 2003 Martha, Thank you Quote Link to comment Share on other sites More sharing options...
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