Guest guest Posted September 24, 2003 Report Share Posted September 24, 2003 Thank you. I sent it without any of your addys. Margie > > From: " Bren " <TwisterAlley2@...> > Date: 2003/09/24 Wed AM 10:49:13 EDT > low dose naltrexone > Subject: [low dose naltrexone] Re: My MS story before LDN...Margie > > Margie...yes you may. You can use my name but remove ALL my email information. > Bren, > > Can I e-mail our support group your story without using your name, e0mail name or e-mail addy. > > Margie > > > > From: " Bren " <TwisterAlley2@w...> > > Date: 2003/09/24 Wed AM 10:17:59 EDT > > low dose naltrexone > > Subject: [low dose naltrexone] My MS story before LDN...there's a link to it inside > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2005 Report Share Posted February 4, 2005 Hi Bren I have SPMS and I have just started on LDN - 4 days actually - I have noticed my leg is a little worse than usual !!! I have heard that sometimes your symptoms exacerbate when you first start LDN and then subside - Is this correct >From: " Bren " <TwisterAlley2@...> >Reply-low dose naltrexone >low dose naltrexone >Subject: [low dose naltrexone] Re: Progression while on LDN >Date: Fri, 04 Feb 2005 04:39:45 -0000 > > > > > > > I was diagnosed with MS in 1995. In Dec. 2002 it > > became " progressive " MS. This was after having been on Avonex for 3 > > years. I started LDN 4.5mg in Dec 2003 and Procarin in Feb 2004. I > > am definitely more stable and doning better than I was the previous > > year but I have had relapses. In June of 2003, approx. 6 months > > after starting LDN and Procarin I lost some of the vision in my left > > eye. Currently my left leg is going numb, started about a month ago > > in my thigh and is steadily prgressing down my leg. All this is > > new, the majority of my problems before this were with my right > > side, not my left. > > > > I'm not saying that LDN and procarin aren't helping me, but I'm not > > convinced anymore than I was with the injectibles that I've tried > > that this is not just the natural course of my disease. I will see > > my neurologist next month and I will discuss having an MRI done. If > > that MRI shows any progression, I will want to change my > > medication. I have been fortunate to have a doctor who is open > > minded enough to let me try different meds as long as they wouldn't > > cause me harm. > > > > I also have a friend who is definitely in secondary progressive MS. > > She tried LDN for 6-8 months, I think she is still taking it, but it > > has not slowed her progression in any way that she can tell. > > > > I'm not trying to discourage anyone from trying it, I'm just posting > > this to let others know it may not be right for everyone with MS. > >=============== > >Where are you getting your LDN script filled? > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2005 Report Share Posted February 4, 2005 Yes, in the first 3 months of beginning LDN one might experience an increase in old symptoms. These should start to settle down when your endorphis level off. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2007 Report Share Posted February 7, 2007 Vic, No, I have never done that. How much do you take? -- Re: [low dose naltrexone] Re: Bren ; Have you tried taking more vitamin B complex? It works for me. vic [low dose naltrexone] Re: Bren >> ,> > I don't mean to interrupt, but, I too, was spastic before LDN. I've tried several fillers, and none made a difference for me.> > Marcie=======My goal for Ms. Marcie is to get her electrolytes checked. I'm fearing you are becoming dehydrated from not eating or drinking enough. And this summer I hope you can find a way to get some pool therapy for those muscles that are wasting away from lack of use. If I didn't have this conference to put together I'd be packing for a trip to your house Marcie. Once this conference is over, maybe I can do that. No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.432 / Virus Database: 268.17.29/673 - Release Date: 2/6/2007 5:52 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2007 Report Share Posted February 7, 2007 > > Bren, > Why are you saying that to Marcie. Since we are both complaining of the > same problem. I'm sure you have a reason just please explain to me. > Thanks, > ======== , Marcie and I speak by phone almost every other day, I'm just picking on her because I know she has not been eating enough here lately and may be not getting some vital nutrients that would help her current situation. And being confined to a wheelchair will allow muscles to atrophy and we need to help her find avenues to get help for those wasting away muscles. Marcie's got friends trying to help her find organizations that can help her get exercise and other therapies her body needs to function. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2007 Report Share Posted February 7, 2007 Marcie and , Than it's ok. Start eating and drinking better, OK??? -- [low dose naltrexone] Re: Bren >> ,> > I don't mean to interrupt, but, I too, was spastic before LDN. I've tried several fillers, and none made a difference for me.> > Marcie=======My goal for Ms. Marcie is to get her electrolytes checked. I'm fearing you are becoming dehydrated from not eating or drinking enough. And this summer I hope you can find a way to get some pool therapy for those muscles that are wasting away from lack of use. If I didn't have this conference to put together I'd be packing for a trip to your house Marcie. Once this conference is over, maybe I can do that. Quote Link to comment Share on other sites More sharing options...
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