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Oh boy..not sure why I did not see my message posted here. I posted

information about purchasing the audio tape of Dr. Bihari radio interview on

wbai in New York here yesterday....well at least I thought I did but I did

not see it in the daily digest. I'll post it direct from my mail box this

time instead of from the site:

I ordered the tape of the show by dialing (973) 762-5017. I used my Visa

card and was told that it would be $16.00 including the shipping fee. Karla

said that I would probably see the tape in about a week. Also the phone

number is going to change by Wednesday 10/8/03. If you live in New York and

can listen to the radio show you will no doubt be able to get that new phone

number very easily.

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  • 1 year later...

I think this is more or less a common occurence as far as what Arlene

is saying about her doc asking her not to advertise that he is

prescribing LDN for her. I believe it is happening alot - docs are

prescribing it but do not want to get overwhelmed with calls for

appointments, meanwhile, the phone consult docs are really racking

up.

I have to admit that although my first instinct would be to pass my

information along, if our doc did agree to prescribe but asked me to

keep quiet, I would do what he asked because I would do what I had to

do to keep the script for my son. If the doc didn't ask me to keep

quiet, I would shout it from the rooftops! This is the exact reason

why so many people are having more success in getting LDN from long

term family docs. I think when your doc has seen you go through alot

of MS meds without success, they are more willing to think outside

the box. In my son's case, I think his age and the " gamble " (in

their eyes) were just too much to ask them to take a chance on.

We use Dr. via phone consult, but I want to get away from that

as soon as possible. I don't like anything about it, but it got him

LDN, and that is all that really matters. Maybe we should all make a

point of asking the docs who prescribe for us if it is okay to refer

others to them. They have to be careful, though, which is exactly

why we have this whole dilemna.

I really appreciate your effort to get an updated list, Joyce. How

about calling all the compounding pharmacies across the states and

asking for their lists of doctors who prescribe??? I would be glad

to help with that chore, or maybe we could divide it up with where we

all live??? There aren't too many compounders in Kentucky, but I'll

see what I can find out that way. Most have toll free numbers, or

you could use one of those dollar per call dial up numbers. Let me

know what you think...Is this an idea?

Take care, and have a great weekend.

Kim

> Sorry Joyce, my doc asked me not to pass on this info. Wish I

could. He is

> still watching my results, which haven't been that great, so he's

a little

> reluctant.

> Arlene

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