Re: pain mgmt, doesage, LDN

[Guest guest]

I appreciate all of your investigative work. Because MS patients are so different and various things work differently on each one of us, I know that knowledge is power. I, also, believe that weight makes a difference in the amount of medication one should take. Thanks for keeping us informed. Sally A.

[Guest guest]

Seems intuitive, like you would not give extra strength acetaminophen

to a baby. Similarly I need more of it than my wife does who weighs

half what I do.

-Sullivan

> I appreciate all of your investigative work. Because MS

patients are

> so different and various things work differently on each one of us,

I know

> that knowledge is power. I, also, believe that weight makes a

difference in the

> amount of medication one should take. Thanks for keeping us

informed. Sally

> A.

[Guest guest]

Good Morning How are you doing today? I hope better. I too

Enjoy all your investigative work and thank you for all the info.

Have you been keeping a daily diary of your LDN experience? It

seems that you are having the reaction that I had after the first

day with LDN. I will tell you what everyone here told me, and also

what my pharmicist said......it's your atrophied muscles waking up

and needing attention....stretch, stretch, stretch. If you have a

mild muscle relaxant (I use Robaxin) it wouldn't hurt to take one as

needed, but not too much, because you don't want them too

relaxed...lol.

Hang in there, and find an LDN dose you are comfortable with, and

stick with it for the long haul. Things will improve and you will

see the benefit in time. I don't think switching doses back and

forth help at all....I know...I've done it. I'm feeling a little

better and stronger now though....so I know you will too.

Love and prayers

SallyC.

<chris_sullivan@s...> wrote:

> Seems intuitive, like you would not give extra strength

acetaminophen

> to a baby. Similarly I need more of it than my wife does who

weighs

> half what I do.

>

> -Sullivan

[Guest guest]

Hey I did write about being underdamped didn't I? But I did have

an attack. That means I can't walk, spill things, can't talk very

well, have to correct these epistles of mine umpteen times, fall

sometimes, and go very very slowly. Anyway I remember what they told

you. It's just that I had one wonderful afternoon and I want to get

back to that state. I am not stiff though. More limp than anything

else. I did not have that many atrophied muscles and I have been

trying to work those that may be (my physio told me that they would

not get back to normal, and I must just do my best).

So these things are new and I hope they'll soon go away. Meantime

my poor family is getting a bit frayed.

I'm on 50 ng/kg. I am still waking up (what's *that* about I wonder).

I am still in dark at 9pm from when I take LDN to when I wake up which

today was around 5am. I sleep fine. I start to stumble (can't walk

at all, must lie down or will fall -- fell twice last night) around

8pm.

I am on 100 mg of modafinil which I take in the morning with my

vitamins. All other medications have been stopped, including

amantadine. I don't like taking pills, but sometimes I gotta.

Hope this is the right dose.

Hope you (all) have a good day today. Keep the faith and remember

the facts.

-Chris

> > Seems intuitive, like you would not give extra strength

> acetaminophen

> > to a baby. Similarly I need more of it than my wife does who

> weighs

> > half what I do.

> >

> > -Sullivan

[Guest guest]

So sorry Chris. I hope you are better soon.

What is 50 ng/kg in mg...is that 3mg??

<chris_sullivan@s...> wrote:

> Hey I did write about being underdamped didn't I? But I did have

> an attack.

> I'm on 50 ng/kg. > Hope this is the right dose.

[Guest guest]

A nanogram is a thousanth of a milligram.

50 ng/k * (130lbs == 58.97 kg) = 3 mg

-Sullivan

> > Hey I did write about being underdamped didn't I? But I did have

> > an attack.

> > I'm on 50 ng/kg. > Hope this is the right dose.

[Guest guest]

So, if you weigh around 130, then 3mg is a good dose for me. Well I

weigh a little more than 130 ( I'm 5'7 " and large boned) so 3mg is

good. I'll take it...lol

Thanks Chris

Sally

<chris_sullivan@s...> wrote:

> A nanogram is a thousanth of a milligram.

>

> 50 ng/k * (130lbs == 58.97 kg) = 3 mg

>

> -Sullivan

>

> " Sally " <salpal@d...> wrote:

> > So sorry Chris. I hope you are better soon.

> > What is 50 ng/kg in mg...is that 3mg??

> >

> > <chris_sullivan@s...> wrote:

> > > Hey I did write about being underdamped didn't I? But I did

have

> > > an attack.

> > > I'm on 50 ng/kg. > Hope this is the right dose.