Guest guest Posted October 8, 2003 Report Share Posted October 8, 2003 , please read about the long term effects of steroids. You are too young to be doing this regularly. Most of my lesions are on my spine not my brain. The brain is more forgiving. The spine has less room for the nerves to fix if there are lesions. You may have a UTI or somekind of infection. How about your teeth? Any infection will cause symptoms to get worse. My neuro has told me to go for a Urine test always before she would give me steroids(in the past) She is a woman, so maybe she thinks differently from a man. Twice , she was right. Happy about your successful surgery, START PAINTING! Kiki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2003 Report Share Posted October 8, 2003 Good morning, : Prior to doing anything rash, you might want to consider contacting Dr. Bihari and discussing your situation with him. OR, maybe, Dr. Sullivan. I'm sure they have more experience with LDN problems than your neuro and would want to know of your problems. Noland ----- Original Message ----- From: " alpha light " <firstlight530@...> <low dose naltrexone > Sent: Wednesday, October 08, 2003 6:38 AM Subject: [low dose naltrexone] thinking... > Hi kids- > > I've been on LDN for almost 2 months. I think, more than anything, > I've been getting worse...little by little. I've noticed my bladder > control is less control than is used to be. The stiffness is still > there and my left leg is dragging more than usual. > I have had brief moments where it seemed like things were better but > they never last long. > I'm beginning to think " I might " go back to my monthly steroid > treatments. I quit doing them when I started the LDN because I didn't > think they did any good. > I think I'm also going to talk to my neuro about doing a spinal MRI- > something he has NEVER done. > I take a bunch of hebs and vitamins everyday and I am careful about > what I eat. I do stretch most of the time plus I have a peddlar to > help me keep my legs and arms moving. > I'm not going to stop the LDN, in any case. > > I did have my laser eye surgery yesterday (thanks to a friend who paid > for it). It went really well. I can see!!! It's really cool. I have to > go back for my post op check in a few minutes. > > I'll talk to you all later. > alex (with old eyes learning new tricks!) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2003 Report Share Posted October 8, 2003 Hi , I am so sorry for the backward slides. I understand, because, as you know, I went thru the same thing. It turns out, that I did have a UTI and was also stressed out about my Daughter (being dx with MS). As you know, both things can cause ms symtoms to rear their ugly heads. You have been stressing out lately about you Lasik surgery....that alone, could be your problem,,,,,and you should check to make sure you don't have an infection (UTI). Don't do the steroids...at this point, it would do more harm than good. The only time steroids worked on me was the very first time....after that notta...except for raising my blood pressure and weakening my bones. Hang in there , I am doing better now...no giant leap, but better.....And you will too.... With you all the way, Sally " alpha light " > Hi kids- > > I've been on LDN for almost 2 months. I think, more than anything, > I've been getting worse...little by little. I've noticed my bladder > control is less control than is used to be. The stiffness is still > there and my left leg is dragging more than usual. > I have had brief moments where it seemed like things were better but > they never last long. > I'm beginning to think " I might " go back to my monthly steroid > treatments. I quit doing them when I started the LDN because I didn't > think they did any good. > I think I'm also going to talk to my neuro about doing a spinal MRI- > something he has NEVER done. > I take a bunch of hebs and vitamins everyday and I am careful about > what I eat. I do stretch most of the time plus I have a peddlar to > help me keep my legs and arms moving. > I'm not going to stop the LDN, in any case. > > I did have my laser eye surgery yesterday (thanks to a friend who paid > for it). It went really well. I can see!!! It's really cool. I have to > go back for my post op check in a few minutes. > > I'll talk to you all later. > alex (with old eyes learning new tricks!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2003 Report Share Posted October 8, 2003 Though a spinal MRI is not rash. It just takes a helluva long time. You might be in that tunnel for an hour, and have sore elbows when you come out. Not bruised though and only if you're a tight fit like me. It's a good thing to have more info. -Sullivan > Good morning, : > > Prior to doing anything rash, you might want to consider contacting Dr. > Bihari and discussing your situation with him. OR, maybe, Dr. Sullivan. > I'm sure they have more experience with LDN problems than your neuro and > would want to know of your problems. > > Noland > > ----- Original Message ----- > From: " alpha light " <firstlight530@y...> > <low dose naltrexone > > Sent: Wednesday, October 08, 2003 6:38 AM > Subject: [low dose naltrexone] thinking... > > > > Hi kids- > > > > I've been on LDN for almost 2 months. I think, more than anything, > > I've been getting worse...little by little. I've noticed my bladder > > control is less control than is used to be. The stiffness is still > > there and my left leg is dragging more than usual. > > I have had brief moments where it seemed like things were better but > > they never last long. > > I'm beginning to think " I might " go back to my monthly steroid > > treatments. I quit doing them when I started the LDN because I didn't > > think they did any good. > > I think I'm also going to talk to my neuro about doing a spinal MRI- > > something he has NEVER done. > > I take a bunch of hebs and vitamins everyday and I am careful about > > what I eat. I do stretch most of the time plus I have a peddlar to > > help me keep my legs and arms moving. > > I'm not going to stop the LDN, in any case. > > > > I did have my laser eye surgery yesterday (thanks to a friend who paid > > for it). It went really well. I can see!!! It's really cool. I have to > > go back for my post op check in a few minutes. > > > > I'll talk to you all later. > > alex (with old eyes learning new tricks!) > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2003 Report Share Posted October 8, 2003 The make bigger MRI tunnels now might save your elbows. <chris_sullivan@s...> wrote: > Though a spinal MRI is not rash. It just takes a helluva long time. You might be in that tunnel for an hour, and have sore elbows when you come out. Not bruised though and only if you're a tight fit like me. It's a good thing to have more info. > -Sullivan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2003 Report Share Posted October 8, 2003 First I want to thank everyone for their support- everyone. This is a great group of people. People willing to take responsibility for their own lives. It's great to be in the presence of leaders (trying to drag their " follower " neuroligists along!) I do think I should have a spinal MRI- although being somewhat claustraphobic... an hour - really????? ugh. ummmm... still maybe once for the records. I do, however, fit in those tubes quite well. (5'7 " / 125 lbs) I wonder if I empty out all the capsules and mix it with water- or split it in half and then mix it... ??? maybe I could control the amount without throwing any away. Yeah- I already know it tastes like sucking on an aspirin. Who cares if it works. Stressed over the lasik- maybe in a good way- a little worried but mostly excited. I'm going to try more aerobic and deep breathing techniques. Get the oxygen moving better. you guys are so great. We should have our own website with stats on our personal experiences with LDN. A place for all the newcomers to check out. Not a site to compete with the low dose naltrexone.org- but to expand it with the ordinary people using LDN. Answering some questions that the other site may have missed. Maybe that would help get Montel's attention. He likes real people. alex Quote Link to comment Share on other sites More sharing options...
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