MY FIRST 30 DAYS ON LDN --RON

[Guest guest]

STARTED LDN

AUG 2003

AFTER A YEAR OF GETTING INFO ON " LDN " AND TRYING TO GET AN RX FROM MY

NERO I GOT LUCKY AT MY GP. I TOLD HIM ABOUT IT AND THAT I WANTED TO

GET ON IT HE SAID " YOU WANT A RX FOR IT I'LL GIVE YOU ONE " SO HE DID

AT 3 MGS. NOW I AM TRYING TO FIND A PLAVE TO GET IT AS OF AUG 10 2003.

I HAVE CHOSEN SKIPS http://www.skipspharmacy.com , HIS PRICES ARE

GREAT AND HE KNOWS A LOT ABOUT " LDN " . I WILL ORDER MY LDN TODAY, 8-12-

2003. ORDERED AT 11 AM, SHOULD BE HERE IN THE MAIL ON THE 15TH OR

16TH.

THIS IS HOW I AM NOW BEFORE STARTING THE " LDN " .

WHERE TO START? LETS SEE, I AM ALMOST CONFINED TO MY POWER

W/C, I CAN TRANSFER SOME. I SPEND MOST OF THE DAY UNTIL ABOUT 1 PM IN

MY CHAIR, THEN TRANSFER TO MY RECLINER. PROBLEMS I HAVE NOW, CAN

HARDLY STAND ON MY OWN IF AT ALL, TO GET INTO THE BATHROOM I CAN

STAND AND MOVE SOME MOSTLY PIVIT, MY RIGHT SIDE IS MY WORST, MY RIGHT

ARM/HAND ARE NOT VERY USEFUL, MY RIGHT LEG IS AT BEST MOVABLE AT

WORST I HAVE TO DRAG IT, MY BLADDER IS VERY ACTIVE, CAN JUST MAKE IT

TO A JUG TO PEE, MY MIND IS SOMEWHAT CLOUDY MOST OF THE TIME, I GET

FATUGED EASY AND IT IS WORSE WHEN IT IS ABOVE 75 AND HUMID, MY BACK

IS ALWAYS STIFF AND SORE,MY EYES ARE BAD BUT THAT'S FROM THE

CATERATCS. I THINK DANNA REMINDED ME OF SOME THINGS I DID NOT PUT

DOWN. MY BOWELS ARE NOT UNDER GREAT CONTROL, MY WHOLR BODY GETS STIFF

AT TIMES, I NEED HELP GETTING INTO AND OUT OF BED MY RIGHT HAND IS

CURLED UP MOST OF THE TIME, I HAVE CLONESS A LOT IN MY FEET.I ALSO

HAVE A REACTION TO TEMPETURE CHANGES, OVER 80 AND I AM A WET DISHRAG,

UNDER 65 I AM STIFF AND CAN HARDLY MOVE OR EVEN STREATEN MY ARMS OUT.

THAT'S ALL FOR NOW.

MY " LDN " CAME FRIDAY AUG 15TH 2003 AND I STARTED IT THAT NIGHT.

AUG 16TH FIRST DAY

HAD A GOOD NIGHTS SLEEP, MOUTH IS A LITTLE DRY THIS MORNING

BUT THAT'S ALL. THE DAY WENT WELL AND I THINK I DID SEE SOME MINOR

IMPROVEMNTS BUT JUST MAY BE GRASPEN FOR THEM. I DID HAVE THE DIZZYS

OR LIGHT HEADEDNESS IN THE AM. TOOK PILL # 2 TONIGHT.

AUG 17TH SECOND DAY

ANOTHER GOOD NIGHTS SLEEP EXCEPT FOR MY RIGHT LEG AGAIN

DANCING. I HAVE THE DIZZYS AGAIN BUT THAT MAY BE FROM MY EYES. I CAN

NOT TELL IF THERE ARE ANY IMPROVMENTS OR NOT.

AUG 18TH THIRD DAY

I AM SLEEPING GOOD, I DID HAVE SOME DIZZYNESS WHILE

SLEEPING/LAYING IN BED AND MY RIGHT LEG IS STILL AT IT. AGAIN I FEEL

GOOD BUT SEE NO CHANGED.

AUG 19TH 4TH DAY

I HAD NO TROUBLE SLEEPING EXCEPT MY RIGHT LEG WAS DOING ITS

DANCING MOST OF THE NIGHT, IT WAS WORSE THAN THE LAST FEW NIGHTS, I

STILL HAVE SOME DIZZENESS WHEN I GET UP TO GET INTO MY CHAIR. SO FAR

I SEE NO CHANGES FOR ME, OH WELL MAY BE SOON I WILL.

AUG 20TH 5TH DAY

THIS MORNING WAS THE SAME, MY LEGS WERE BUSY AGAIN LAST

NIGHT. I SEEM TO HAVE SOMEWHAT BLADDER CONTROL, AT LEAST I GO MORE

THAN I USE TO AT 1 TIME. HOPEFULLY THIS IS A SHOWING THAT I AM

GETTING BETTER SOME. DANNA SAID MY LEGS DO NOT SEEM TO BE AS STIFF AS

THEY WERE. I GOT INTO MY CHAIR BY MYSELT FOR BED AND HAVE NOT BEEN

ABLE TO DO THAT IN A FEW WEEKS.

AUG 21ST 6TH DAY

SAME TROUBLE WITH MY LEGS DURRING THE NIGHT BUT I DID SLEEP

GOOD. I FEEL GOOD AND NOT QUITE AS STIFF. LETS SEE WHAT HAPPENS. THE

DAY WAS OK BUT AT BEDTIME IT WAS A LITTLE HARD FOR ME TO GET IN MY

CHAIR AND BED.

AUG 22ND 7TH DAY

SELPT OK, LEGS WERE DANCING AGAIN, STIFF GETTING UP AND STILL

STIFF. HAVE NO IDEA WHY. THE DAY GOT A LITTLE BETTER, OR SHOULD I SAY

I GOT BETTER. STRANGE THING ALSO A LITTLE FUNNY, SITTING IN MY

RECLINER AND MY RIGHT LEG STARTED HOPPING EVERY FEW MINUTES SO I TOOK

A ZANAFLEX AND AFTER AN HOUR IT SLOWED DOWN TO ALMOST NITHIBG, THEN

MY LEFT LEG STARTED DOING THE SAME THING, AFTER AN HOUR OF THIS I

TOOK A MIRAPEX AND BY BED TIME IT WAS NOT BAD, STRANGE.

AUG 23RD 8TH DAY

SLEPT GOOD BUT HAD LEGS GOING AT DIFFERENT TIMES, KINDA

RESTLESS, JUST MY LEGS ANYWAY. GETTING UP AND GOING WAS GOOD WITH NO

PROBLEMS. WHILE AT THE COMPUTER BOTH MY LEGS HAD SPASUMS THAT ALMOST

TOOK ME OUT OF MY CHAIR, IT ONLY HAPPENED ONE TIME, SO FAR. NO MORE

TROUBLE WITH MY LEGS, THEY WERE EVEN GOOD ALL DAY. I WAS OK BUT A

LITTLE AHAKEY GETTING INTO MY CHAIR TO GO TO BED.

AUG 24TH 9TH DAY

MY LEGS SEEM TO BE GETTING BETTER AT NIGHT, NOT SO ACTIVE. I

SLEPT GOOD AND HAD NO TROUBLE GETTING UP. I GUESS THIS LDN IS NOT

HELPING WITH THE TEMPTURE RANGES THAT I AM OK IN YET, IT WAS 60 IN

THE HOUSE WITH A SLIGHT BREEZE THIS MORNING AND MY BODY HAS A STIFF

REACTION TO THIS COOLNESS STILL.THE WHOLE DAY WAS NOT GOOD FOR ME, I

FINALY GOT WORMED UP ABOUT 1PM BUT ENDED BEAT AND TIRED THE REST OF

THE DAY. I NEEDED HELP TRANSFERING TO MY CHAIR AND BED.

AUG 25TH 10TH DAY

NOT A GOOD NIGHTS SLEEP, MY RIGHT LEG WAS CONSTANTLY

SPASUMING AND UNTIL AFTER I TOOK A ZANAFLEX IT DID NOT STOP. THEN

DURRING THE NIGHT I WET MYSELF AND THE BED SO THIS MORNING I WAS WET.

THE DAY SEEMS TO BE GOING OK SO FAR. THE DAY WAS NOT TO BAD, I HAD NO

STRENGTH AND THAT MADE MY MOVING HARD,

AUG 26TH 11TH DAY

MY LEGS WERE GOOD IN BED, I SLEPT GOOD. MY MOVEMENTS THIS

MORNING WERE HARD, I HAVE NO STRENGTH AGAIN, I THINK THIS IS FROM THE

MIRAPEX, I NEED TO CUT IT BACK. THE REST OF THE DAY WAS OK, EVEN GOT

TO BED WITHOUT MUCH HELP.

AUG 27TH 12TH DAY

I SLEPT GOOD, I AM STIFF AND HARD TO MOVE OR TYPE. I GOT

BETTER AS THE DAY WENT ON. I STILL DO NOT SEE MUCH IMPROVEMENT OTHER

THAN MY BLADDER BUT THEN IT HAS BEEN A HARD FEW DAYS. I GOT MYSELF TO

BED OK DANNA ONLY HAD TO POSITION ME RIGHT WHICH IS NORMAL.

AUG 28TH 13TH DAY

ANOTHER GOOD NIGHTS SLEEP, MY LEGS WERE A LITTLE ACTIVE BUT

NOT BAD. THE MORNING HAS BEEN OK. NOT TO BAD. I HAVE SOME OF MY

STRENGTH BACK NOW AND CAN DO SOME THINGS. LIKE GO TO THE BATHROOM AND

BACK TO MY CHAIR WITHOUT ANY HELP. I DO NOTICE SOME STIFFNESS AND

SORENESS IN MY ARMS IN THE MORNINGS THAT WORKS OUT DURRING THE DAY. A

GOOD DAY AND EVENING GOING TO BED, ONLY NEED A LITTLE HELP.

AUG 29TH 14TH DAY

I HAD A GOOD NIGHTS SLEEP AND MY LEGS WERE JUST A LITTLE

RESTLESS. NO TROUBLE GETTING UP AND GOING. STIFF IN THE ARMS AGAIN.

THE DAY WAS GOOD, I FELT BETTER ALL DAY AND IT WAS STRANGE, ALMOST

LIKE A NORMAL PERSON BUT NOT QUITW. I CAN MOVE A LITTLE BETER AND

THAT HELPS.

AUG 30TH 15TH DAY

I AM SLEEPING GOOD LATELY, MY LEGS STILL A LITTLE RESTLESS

BUT NOT BAD. I STILL HAVE THE STIFFNESS AND SORENESS IN MY ARMS IN

THE AM BUT IT DOES WORK OUT. I FEEL THE LSN IS HELPING ME ALL EXCEPT

MY EYES WHICH WILL BE FIXED SOON, NOV. THE DAY WAS GOOD FOR ME. I

ONLY NEEDED HELP GETTING UP FROM MY RECLINER TO GET INTO MY CHAIR,

ONCE UP I WAS ABLE TO MOVE GOOD WNOUBH TO SIT WITH NO PROBLEMS.

GETTING INTO BED WAS GOOD TOO, JUST NEEDED HELP TO GET POSITIONED.

AUG 31ST 16TH DAY

A GOOD NIGHTS SLEEP, MY LEGS WERE BETTER THAN THE NIGHT

BEFORE, THEY SEEM TO BE GETTING BETTER EVERY NIGHT. I HAD NO PROBLEMS

GETTING UP AND GOING WITH DANNA'S HELP. IT IS COOL OUT IN THE 50'S.

THE MORNING IS GOING GOOD AND I AM NOT AS STIFF AS THE PAST FEW DAYS.

THE DAY WENT WELL WITH NO PROBLEMS, EXCEPT FOR MY EYES ARE STILL BAD

AND GETTING WORSE. I AM FEELING BETTER AND EVEN STRONGER EVER SO

SLOWLY. I NEED LESS HELP TRANSFERING AND GETTING INTO BED.

SEPT 1ST 17TH DAY

IT LOOKS LIKE THERE IS A NEW TREND IN MY ABILITIES. BETTER

SLEEP AND BETTER MOVEMENTS, I STILL NEED SOME HELP BUT NOT AS MUCH.

THE MORNING IS GOING GOOD., I ENED UP ON THE BATHROOM FLOOR AND

NEEDED HELP BACK INTO MY CHAIR. GOING TO BED WAS NO PROBLEM, JUST

NEEDED THE NORMAL HELP.

SEPT 2ND 18TH DAY

I HAD A GOOD NIGHT WITH LITTLE LEG TROUBLE. ONLY WOKE UP NOW

AND THEN TO SEE IF IT WAS STILL RAING, IT WAS ALL NIGHT. I FEEL GOOD

THIS MORNING BUT IT IS A LITTLE COOL IN THE HOUSE, 65. WE TURNRD ON

THE FURNACE AND IT WAS NICE IN THE HOUSE. I FELT GOOD ALL DAY, TO BAD

I STILL HAVE EYE PROB;EMS. DANNA SAYS SHE SEES SOME CHANGES FOR THE

GOOD IN HOW I AM WITH BODY MOVEMENTS AND MY MIND. GOING TO BED WAS

NORMAL. I ORDERED A NEW RX TODAY FOR 4.5 MGS AND 90 DAY SUPPLY,

HAVING IT CALLED IN TO SKIPS, I WILL CHECK TOMORROW TO SEE IF THEY

GOT IT.

SEPT 3RD 19TH DAY

THE SAME ALL AROUND THIS MORNING, WEATHER AND BODY. I FEEL

GOOD AND THINK MY EYE TROUBLE IS MY WORST PROBLEM NOW. THE DAY WAS

GOOD WITH NO PROBLEMS. I EVEN GOT INTO MY CHAIR ALONE FROM THE

RECLINER AT BED TIME AND ONLY HAD HELP GETTING INTO POSITION. I

CALLED SKIPS TO SEE IF MY RX WAS THERE BUT NOT YET.

SEPT 4TH 20TH DAY

THE MORNINGS ARE GETTING TO BE THE SAME GETTING UP AND GOING,

NO PROBLEMS/ STILL HAVE THE EYE TROUBLE AND WILL UNTILL THEY GET

FIXED. I FEEL GOOD THIS MORNING WITH NO STIFNESS. I SEEM TO HAVE MORE

ENERGY TO DO THINGS AND MORE DESIRE. I DO HAVE SOME WEAKNESS IN MY

BACK, I HAVE TROUBLE SITTING UP WITHOUT SOME SUPPORT. MY BACK IS NOT

AS STIFF AS IT HAS BEEN. THE DAY WENT OK, I HAD SOME FATUGE FROM THE

HUMITY I GUESS BUT IT CLEARED UP ONCE I PUT THE FAN ON AND ON ME.

SEPT 5TH 21ST DAY

THE MORNING WAS NORMAL BUT MY LEGS WERE ACTIVE LAST NIGHT,

MAYBE FROM THE HUMIDY. MY NEW RX STILL HAS NOT BEEN CALLED IN. THIS

MORNING IS NOT BAD I'M JUST A LITTLE STIFF. THE DAY WAS GOOD FOR ME,

I DID GET A LITTLE FATUGED ANOUT NOON BUT WAS BETTER BY 2PM. I HAD NO

TROUBLE GETTING INTO MY CHAIR OR TO BED. I CALLED ON MY RX AND IT HAS

BEEN ORDERED BUT AT 3 MGS, MY GP WILL NOT GO HIGHER, HE WANTS ME TO

HAVE MY NERO TAKE IT UP, OH WELL.

SEPT 6TH 22ND DAY

IT WAS A GOOD NIGHT WITH LESS LEG ACTIVITY AND THE MORNING

WAS NORMAL. IT IS A LITTLE COOLER OUR 49 THIS AM AND 58 NOW AT

9:30AM. SO FAR IT IS A GOOD DAY. THE DAY WAS GOOD BUT I GOT A LITTLE

FATUGED IN THE EVENING AND THEN NEEDED HELP TO MY CHAIR AND BED.

SEPT 7TH 23RD DAY

THE NIGHT WAS REAL GOOD, NOT MUCH LEG TROUBLE. THE MORNING

WAS NORMAL. SO FAR IT IS GOING GOOD, I FEEL BETTER THAN LAST NIGHT

AND MOVE OK. GUESS IT IS THAT TIME OF YEAR, COOL MORNINGS AND NICE

DAYS WEATHER WISE. THE DAY WAS NOT BAD AT ALL, I GOT FATUGED IN THE

EVENING AGAIN BUT KNOW IT WAS FROM THE HEAT. I HAD NO TROUBLE GOING

TO BED.

SEPT 8TH 24TH DAY

I HAD A REAL GOOD NIGHTS SLEEP, MY LEGS WERE REAL GOOD. THE

MORNING WAS NORMAL AND I AM JUST A LITTLE STIFF OTHERWISE ALL IS

GOOD. IT IS 55 OUT AND WORMING UP AGAIN, HOPEFULLY I WILL NOT GET

FATUGED IN THE EVENING. BY THE TIME DANNA GOT HOME FROM THE ER AND

RADATION SHE DID NOT FEEL LIKE OPENING THE HOUSE SO RAN THE A/C. I

DID NOT GET FATUGED AT ALL. AND IT WAS A GOOD DAY FOR ME. I NEEDED

HELP TO MY CHAIE BUT TO BED WAS OK/

SEPT 9TH 25TH DAY

I SLEPT LIKE A BABY AND THE MORNING WAS NORMAL. SO FAR TODAY

I AM JUST A LITTLE STIFF BUT OK OTHERWISE, THE MORNING IS GOING

OK.THE DAY WAS GOOD, WE OPENED THE HOUSE AND IT DID NOT GET TO WORM.

I NEEDED HELP GETTING UP TO DET IN MY CHAIR BUT NO HELP FOR BED

EXCEPT FOR THE POSITING.

SEPT 10TH 26TH DAY

I AM SLEEPING REAL GOOD WITH VERY LITTLE LEG MOVEMENT. THE

MORNING WAS THE SAME NORMAL AND IS OK SO FAR. THE DAY WENT WELL AND I

FELT GOOD. I WAS ABLE TO GET MYSELF INTO MY CHAIR AT BED TIME THEN TO

BED, MARK HELPED GET ME INTO POSITION SINCE DANNA IS AT PATS FOR A

COUPLE OF DAYS.

SEPT 11TH 27TH DAY

NOT AS GOOD A NIGHT SLEEPING AS I MISSED DANNA AND WAS AWAKE

AT 4 AM AS KIM WAS GETTIONG READY FOR WORK. THE MORNING HAS BEEN AS

NORMAL AS CAN BE WITHOUT DANNA. THE DAY WAS OK BUT NOT TO GOOD, I DID

NOT FEEL RIGHT FOR SOME REASON. I NEEDED HELP TO MY CHAIR AND BED.

SEPT 12TH 28TH DAY

THE MORNING WAS GOOD BUT NOT NORMAL FOR SURE. I FEEL BETTER

TODAY AND SLEPT BETTER BUT STILL NOT REAL GOOD. THE MORNING IS GOING

OK SO FAR. THE DAY WAS REAL GOOD, I FELT A LOT BETTER AND MOVED GOOD.

I HAVE NOTICED I HAVE A LOT LESS LEG TREMMORS AND SPASUMS. I NEEDED

NO HELP GOING TO BED JUST THE NORMAL POSITING.

SEPT 13TH 29TH DAY

I SLEPT GREAT, DANNA IS BACK HOME. THE MORNING IS BACK TO

NORMAL WITH NO PROBLEMS. THE DAY IS STARTING OUT GOOD. THE DAY WAS

GOOD WITH NO TROUBLES. I NEEDED HELP INTO MY CHAIR BYR NOT TO BED.

SEPT 14TH 30TH DAY

I SLEPT GOOD AND THE MORNING WAS NORMAL. I AM A LITTLE STIFF

IN THE ARMS BUT GETTING BY. IT TURNED HUMID AND I FEEL THAT IS WHAT

CAUSED THE STIFFNESS. WE TURNED ON THE A/C IN THE AFTERNOON AND THAT

HELPED ME A LOT. I HAD NO TROUBLE GETTING UP OR GETTING TO BED.

SEPT 15TH 31ST DAY

NOT A GOOD NIGHTS SLEEP, I WAS NOT IN BED RIGHT AND WAS

UNCOMFORTABLE. GETTING UP WAS THE SAME BUT GETTING INTO MY CHAIR WAS

A LITTLE TRICKY AS DANNA COULD NOT HELP MUVH.. THE MORNING IS GOING

OK BUT STILL HUMID. I AM A LITTLE STIFF IN THE ARMS BUT NOR AS BAD AS

YESTERDAY. THE MORNING IS GOING SO, SO.

IT HAS BEEN 30 DAYS SINCE I STARTED " LDN " AND I HAVE SEEN

SOME MINOR IMPROVEMENTS IT HOW I AM. MOST IN MY LEGS, THEY ARE NOT AS

SPASTICK AND I HAVE VERY LITTLE TREMORS IN THEM. I SEEM TO HAVE A

LITTLE MORE STRENGTH AND ABILITIES IN MY LEGS. I DO FEEL A LOT BETTER

OVERALL. I FEL THE " LDN " HAS MADE SOME POSITIVE IMPROVEMENTS IN HOW I

AM.