Re: My doc not wanting to give me LDN

[Guest guest]

HI Kathy.....as I said before, I totally understand your position in

wondering whether you need any medication at this point. I felt the same way

for many many years. Could have taken one of those ABCR's but I just never

felt that I needed to take anything so drastic when I was doing so well. I

personally think it was all those endorphins that I was producing with all

the exercise but I didn't know that then. I would just be worried that if

you wait for another attack that it might leave you with some form of

disability....it is a hard decision and one that you alone must make.

As far as why Dr. Bihari has not published studies on MS...my best guess

would be that MS is not really his specialty. More a bi-product of what you

discovered while researching Aids and cancer. I am only guessing here so who

knows. I'd venture to say that most doctors have one area that they

concentrate on and I don't think that MS is Dr. Bihari main area of

interest. Joyce.

From: Kathy Young

low dose naltrexone

Subject: [low dose naltrexone] My doc not wanting to give me LDN

Date: Tue, 26 Aug 2003 17:31:29 -0700 (PDT)

- yes I do realize that you all have decided for yourselves that LDN

is the way to go, and I can always call Dr. Sullivan.

I was just hoping to possibly find out where ther is some info that Dr.

Bihari had published himself regarding LDN and MS. I can sure find enough

support for it out here, which was alot of what I took him. I have not found

any published info by Dr. B regarding MS though, with the exception of the

LDN site, which he does not run.

I wonder myself, now, why he hasn't proceeded to publish things on it? It

sure seems that he should! He seems to have published quite alot on HIV and

LDN.

And, Joyce - yes - I thought/hoped he was going to call Dr. Bihari, but

apparently he didn't. I dont know how pushy to get, you know? I like him

alot and don't want to make him mad I'm a coward maybe!! I don't know.

I am going to read a while more and very possibly call Dr. Sullivan.

I find it curious that my neuro would go ahead at this early point in time

and give me the " real " MS drugs, should I say ok (which I will not). I want

LDN, the question still is, do I get it now (not being dx yet, only have 1

small lesion and 1 flareup), or wait for another " possible " attack. Will I

ever have one? I don't know, but I feel that the doc must feel fairly

certain I have MS. Or he would not let me go on those drugs. That fact in

itself, is just about enough to make me phone Dr. Sullivan.

I was just hoping someone knew why he hadn't published stuff himself

regarding his findings on the LDN/MS.

Thanks!

Kathy

Kathy

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