okey dokey guys

August 18, 2003

Okey dokey...well, for those of you who do not understand why everyone was

upset with Jeff, let me just say that he is extreemly negative and posts

things that do not concern us... That said, here is my story:

I started in May on 3 mg of ldn. (at bedtime). I never had a problem

sleeping with it, thankfully. Well, let me back up a little. I did

novantrone for 2 1/2 years and hit the " life max " last Nov. I was very

concerned that I didn't want to backslide. I started out with total

paralisis from my waist down on my right side. I also had many other side

symptoms (fatigue, balance, cognitive, incontinence, blah blah blah)

Well, the novantrone gave me back my leg and some strength. I was truly a

success story for novantrone.

Back to Nov. since you get the chemo every 3 months I was concerned what

would happen in Jan. that is when I would usually get my next infusion, but

wasn't. Well, come January and I am very fatigued, still

have my leg, but feeling not so good...(aka-scared) Well, then I went to

the neuro and he wanted me to start copaxone. No problem, I'll try that.

But, applied for subsidy and was turned down, even in Canada the copaxone is

$900 a month. Considering I don't make that much in a month, I couldn't

afford the drug. Sooooo I had to look for something else. Hense, ldn. It

kind of fell in my lap, when I read about it I said that was for me. Now

for my results: As you all have been hearing, the ldn stops our progression

so often we don't " see " results. But I can tell you, I have more energy

than before, I am no longer scared because I feel like the energizer bunny.

Sometimes my head wants to go faster than my body. Also, my hair, which even

before chemo was extreemly thin, is now beautiful (for that alone I'm

happy). I do believe that the ldn is working in my head, and I feel much

better in general. It hasn't given me anything back except my energy, isn't

that enough? I will never give up my ldn. As a matter of fact, next weekend

is the Women's Retreat for MS and I am going to try to find others on ldn

there and hear their stories.. Is anyone going? It is in So. Florida...By

the way, Skip's pharmacy is only around $11 for a month of 3 mg. and no, I

don't work for him, I'm glad to have found him because I just paid Irmat

$38... Well, sorry to be so long, keep positive everyone, I believe that is

half the battle....Lynn

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