LDN and Avonex

[Guest guest]

Does anyone know of anyone taking LDN and Avonex? I know it's ok

with Copaxone, but is there anyone on it with Avonex?

I sent an email to the ldn website and the answer I got was that LDN

just can't be taken a narcotic and who says it can't be taken with

Avonex.

I don't understand this.

[Guest guest]

The injectables are an entirely different approach to MS. They

suppress the immune system. With LDN you are trying to wake it up.

So LDN and Avonex will not hurt but one may cancel the benefit of the

other, and obviously there is not enough data on LDN alone, let alone

LDN with anything else (except maybe narcotics). All we have are the

experiences of current and past LDN users and their doctors.

Copaxone is the same as Avonex from that point of view but it is not

an interferon, for whatever that's worth. My neurologist said I was

SPMS and unlikely to get any more benefit from these drugs (though

she was willing to try copaxone since I had not been on it yet).

Sullivan, TD

> Does anyone know of anyone taking LDN and Avonex? I know it's ok

> with Copaxone, but is there anyone on it with Avonex?

>

> I sent an email to the ldn website and the answer I got was that

LDN

> just can't be taken a narcotic and who says it can't be taken with

> Avonex.

>

> I don't understand this.

[Guest guest]

My MS became SP while I was taking Copaxone. The way it was progressing I would likely be on disability by now if I had not found LDN.

The best I can tell none of the CRAB drugs do anything for progression.

B.

----- Original Message -----

From: jchrissullivan

low dose naltrexone

Sent: Saturday, October 11, 2003 9:08 AM

Subject: [low dose naltrexone] Re: LDN and Avonex

The injectables are an entirely different approach to MS. Theysuppress the immune system. With LDN you are trying to wake it up.So LDN and Avonex will not hurt but one may cancel the benefit of theother, and obviously there is not enough data on LDN alone, let aloneLDN with anything else (except maybe narcotics). All we have are theexperiences of current and past LDN users and their doctors.Copaxone is the same as Avonex from that point of view but it is notan interferon, for whatever that's worth. My neurologist said I wasSPMS and unlikely to get any more benefit from these drugs (thoughshe was willing to try copaxone since I had not been on it yet).Sullivan, TD> Does anyone know of anyone taking LDN and Avonex? I know it's ok > with Copaxone, but is there anyone on it with Avonex?> > I sent an email to the ldn website and the answer I got was that LDN > just can't be taken a narcotic and who says it can't be taken with > Avonex.> > I don't understand this.

[Guest guest]

Hi Larry,

Wow, I thought avonex and LDN didn't work well together. I'm glad

it's working for you. I quit Avonex all together and then began LDN

months later. I was not getting better on the Avonex, as a matter of

fact I was getting worse. Since on LDN, I have not progressed, just

improved. I wonder if my being a female had an effect on my body's

reaction to the Avonex? Anyway, I'm glad the LDN is helping you.

God Bless,

Penny (the cheese)

> I have been on avonex for several years and on LDN for 5 months.

Since the LDN, I have fewer bladder spasms and no longer take

detrol. I am not worse in any way. I figure that if no one really

knows what causes MS, no one really knows what cures, or improves,

MS. So, I will continue to take both LDN and Avonex until my body

tells me not to. What would I be doing if I'd stopped the Avonex

when I started the LDN? I don't know, but I have a hard time

believing that I would be that much better.

> Kansas