Guest guest Posted September 30, 2003 Report Share Posted September 30, 2003 Everyone reacts differently, just as everyones MS is different. Some have posted that all symptoms improved , other , that a few have improved. No one can give you the answer to your question ,we can only tell you how it has affected us..... The tingling stopped after a month.(Only my one hand tingled) Bladder control fully recovered after 1 month . Energy greatly improved after a week and keeps improving. Balance better Walking , still diffficult but can walk longer distance(not by much) Because I have more energy I can exercise (weights,MS water aerobics, MSyoga) which is making me stronger.You must help the LDN work. Kiki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2003 Report Share Posted September 30, 2003 While taking LDN what does it do?Will it stop the burning,numbness and tingling?Will it stop muscle jerks and muscle twitches?Will it stop tremors in your body? Or does it just stop the progression of the disease? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2003 Report Share Posted September 30, 2003 I HAVE BEEN ON LDN ALSO SINCE APRIL, AND EXPERIENCED BETTER BALANCE FROM THE VERY BEGINNING....I HAVE PLAYED AROUND WITH THE DOSEAGE TO FIND THE RIGHT ONE FOR ME, IN ORDER TO REAP ALL THE BENEFITS I COULD, AND HAVE FOUND THAT THE LOWER I GO THE BETTER THE EFFECTS. I AM NOW ON 2MG AND RESPONDING QUITE WELL. I STILL DON'T HAVE MY " LIVE BACK " AS I WOULD LIKE IT, BUT I FEEL THE LDN WORKING NOW, AND WITH EXCERCISE AND TRYING TO EAT RIGHT, I JUST MIGHT GET A LITTLE OF MY LIFE BACK. I CHOSE NOT TO GIVE UP ON LDN AND, I THINK I MADE THE RIGHT DECISION. WE MUST ALL MAKE THAT CHOICE AND NOT EXPECT MIRACLES, UNLESS FROM GOD. LOVE TO ALL, SALLY > > > Everyone reacts differently, just as everyones MS is different. Some have > > posted that all symptoms improved , other , that a few have improved. No one can > > give you the answer to your question ,we can only tell you how it has > > affected us..... > > The tingling stopped after a month.(Only my one hand tingled) > > Bladder control fully recovered after 1 month . > > Energy greatly improved after a week and keeps improving. > > Balance better > > Walking , still diffficult but can walk longer distance(not by much) > > Because I have more energy I can exercise (weights,MS water aerobics, MSyoga) > > which is making me stronger.You must help the LDN work. > > > > Kiki > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2003 Report Share Posted September 30, 2003 I have been on LDN since April. I noticed an immediate increase in energy and decrease in fatigue. My brain is operating more correctly. My balance is much improved. My bladder issues are all normal again (90% of the time). The pain in my legs has totally disappeared! I don't feel like my MS is increasingly destroying me anymore! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2003 Report Share Posted September 30, 2003 I have been on LDN since April. I noticed an immediate increase in energy and decrease in fatigue. My brain is operating more correctly. My balance is much improved. My bladder issues are all normal again (90% of the time). The pain in my legs has totally disappeared! I don't feel like my MS is increasingly destroying me anymore! B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2004 Report Share Posted June 3, 2004 Hi Can anyone help me I have PPMS both my legs are not much use I walk short distances using a FES electronic stimulator and two walking sticks. Longer distances require the wheelchair.I am taking 70mg of Baclofen and 75mg of Dantroleen (muscle relaxant) per day. Would low dose Naltrexone help me ??? Look forward to your replies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2004 Report Share Posted June 3, 2004 Hi I have experienced very good results using LDN, started on 3mg and increased to 4,5mg over 2 months, i would say definitely worth a try, i'm sure you will be pleasantly surprised! Best regards ----- Original Message ----- From: davidpickstock@... low dose naltrexone Sent: Thursday, June 03, 2004 4:51 PM Subject: Re: [low dose naltrexone] LDn and MS Hi Can anyone help me I have PPMS both my legs are not much use I walk short distances using a FES electronic stimulator and two walking sticks. Longer distances require the wheelchair.I am taking 70mg of Baclofen and 75mg of Dantroleen (muscle relaxant) per day. Would low dose Naltrexone help me ??? Look forward to your replies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2004 Report Share Posted June 3, 2004 On Thu, 3 Jun 2004 10:51:13 EDT, you wrote: >Hi > Can anyone help me I have PPMS both my legs are not much use I walk >short distances using a FES electronic stimulator and two walking sticks. Longer >distances require the wheelchair.I am taking 70mg of Baclofen and 75mg of >Dantroleen (muscle relaxant) per day. >Would low dose Naltrexone help me ??? >Look forward to your replies , I'm another with PPMS and I found LDN helped a lot for a few months but then I started to get worse again. LDN is worth a try but it didn't stop progression for me. It's interesting that you can use a FES. I was assessed for one but I could not get the hang of it. It seemed to have a mind of its own and want me to walk at a specific pace. In my opinion FES is a great idea but needs further development. In the future I'm sure someone will produce a FES that can adapt to its user. I now use a TES which keeps my muscles in trim. It also stops lower leg cramps. That way I can manage with only 20 - 30 mg of Baclofen. If I take a higher dose my legs go very wobbly. The doses of relaxants you are taking would turn me into mush! Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2004 Report Share Posted June 3, 2004 I say it should help but maybe not immediatley It has taken seven months for me to notice any great difference in my balance and walking and that is after lots of trial and error on my part about doesage and time. Also transdermaly seems to work very good for me! For now......... Reg. -------Original Message------- From: low dose naltrexone Date: 06/03/04 09:40:24 low dose naltrexone Subject: Re: [low dose naltrexone] LDn and MS , Yes it would help. Regards, Tom ----- Original Message ----- From: davidpickstock@... low dose naltrexone Sent: Thursday, June 03, 2004 8:51 AM Subject: Re: [low dose naltrexone] LDn and MS Hi Can anyone help me I have PPMS both my legs are not much use I walk short distances using a FES electronic stimulator and two walking sticks. Longer distances require the wheelchair.I am taking 70mg of Baclofen and 75mg of Dantroleen (muscle relaxant) per day. Would low dose Naltrexone help me ??? Look forward to your replies ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2004 Report Share Posted June 3, 2004 , Yes it would help. Regards, Tom ----- Original Message ----- From: davidpickstock@... low dose naltrexone Sent: Thursday, June 03, 2004 8:51 AM Subject: Re: [low dose naltrexone] LDn and MS Hi Can anyone help me I have PPMS both my legs are not much use I walk short distances using a FES electronic stimulator and two walking sticks. Longer distances require the wheelchair.I am taking 70mg of Baclofen and 75mg of Dantroleen (muscle relaxant) per day. Would low dose Naltrexone help me ??? Look forward to your replies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2004 Report Share Posted June 3, 2004 It's interesting Steve that you said that about relaxants as that was exactly what put my brother in a wheelchair. Now that he is on ldn the relaxants are not needed any longer and he can now feed himself. However stress or an infection or the flue is still a big stop sign,however the last flue was real quickly passed. He has been primary progressive now for 12 years. I have been ppms for about seven. This is day 283 on ldn. It still gets better now that I am applying it transdermally! Reg -------Original Message------- From: low dose naltrexone Date: 06/03/04 10:25:46 low dose naltrexone Subject: Re: [low dose naltrexone] LDn and MS On Thu, 3 Jun 2004 10:51:13 EDT, you wrote:>Hi > Can anyone help me I have PPMS both my legs are not much use I walk >short distances using a FES electronic stimulator and two walking sticks. Longer >distances require the wheelchair.I am taking 70mg of Baclofen and 75mg of >Dantroleen (muscle relaxant) per day.>Would low dose Naltrexone help me ???>Look forward to your replies ,I'm another with PPMS and I found LDN helped a lot for a few monthsbut then I started to get worse again. LDN is worth a try but itdidn't stop progression for me.It's interesting that you can use a FES. I was assessed for one but Icould not get the hang of it. It seemed to have a mind of its own andwant me to walk at a specific pace. In my opinion FES is a great ideabut needs further development. In the future I'm sure someone willproduce a FES that can adapt to its user.I now use a TES which keeps my muscles in trim. It also stops lowerleg cramps. That way I can manage with only 20 - 30 mg of Baclofen. IfI take a higher dose my legs go very wobbly. The doses of relaxantsyou are taking would turn me into mush!Steve ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
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